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Premenopausal endometrial cancer Premenopausal endometrial cancer

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Unread 08-15-2002, 05:53 PM
Premenopausal endometrial cancer

Hi Everybody,
A doctor scared me today by saying for me to be 47 and have endometrial cancer is highly unusual, that most women who get it are older. Is that true?


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Unread 08-15-2002, 06:38 PM
Premenopausal endometrial cancer

s Judy

Probably most gyn cancers strike older or post menopausal women. But as evidenced by this site and others, many women are considerably young when diagnosed with their cancers. I too was told when diagnosed with ovarian cancer at a premenopausal 49 that I was younger than the norm. But there are many women with my diagnosis that are much younger. The same probably holds true for endometrial cancer.

Unread 08-15-2002, 09:21 PM
Premenopausal endometrial cancer

Hi Judy,

I too am pre-menopausal and was diagnosed with endometrial cancer in May--had my hyst on June 4. I'm 46 years old. I think I read somewhere that 75% of women who get endometrial cancer are post-menopausal, so we are definitely in the minority on this one.

Best of luck to you--I hope all goes as well for you as it has for me so far!
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Unread 08-15-2002, 09:53 PM
Premenopausal endometrial cancer

I was diagnosed this July with stage 1 endometrial cancer. I am 44 and had none of the things commonly associated with this type of cancer. We were all totally was my dr. I have read that endometrial cancer is on the increase with younger women that wouldn't be considered at risk. I sure hope they can determine if there is a factor in this increase.
I see my onc/gyn/surgeon next week. I am a little nervous about the "check up" hurting. My pathology report from surgery came back with confirmation of the stage 1, no lymph node involvement. The surgeon said I will not need any further treatment....YIPEE!! Just check ups. What is the typical check up regiment?
Unread 08-16-2002, 07:09 AM
Premenopausal endometrial cancer

I was post-menopausal when diagnosed. However, I've certainly talked to my daughters (ages 29 and 26) about watching out for this. All the women in my mom's side of the family have had all the reproductive organs cancers. We're so high risk it's ludicrous. I can't wait for the medical community to finalize some of the gene testing they've been talking about. It would be really interesting.

I'm here for you, be sure to send an email.
Unread 08-16-2002, 07:09 AM
Premenopausal endometrial cancer

Hi Karenann, Cwilli & Chris,
I read that a lot of young women got gyn. cancers because their mothers had taken DES to prevent miscarriage. Now it turns out DES was used by the Dairy Industry and fed to many of the cattle in this country from the 50's through the 70's. Who knows the impacts of that on our health. Probably why 7th Day Adventists, (often vegetarians), have a much lower gyn. cancer rate.

Another thing that throws doctors off about my case is I am thin and not large breasted, so they say, "You are not the estrogen dominance type." But one oncologist said because I am 5'9", 145 lbs, that estrogen is held in the muscles and tissue, as well as the fat, so people on the big side, like me, fit the pattern also.


Unread 08-16-2002, 08:18 AM
Premenopausal endometrial cancer

Hi Laura,
I think your post appeared after I had replied to the others. Is that possible?

I am so happy for you that you are doing well! That inspires me.
And I agree that women need to be made more aware of this.

Unread 08-16-2002, 12:17 PM
Premenopausal endometrial cancer

Well I will try this again. I posted once and it didn't post.
Dare to in DC
My gyn told me about genetic testing, but warned there are no laws protecting you from the outcome....I thought about it and decided I wouldnt touch it with 10 ft pole. A patient that is found to be pre-disposed to a certain disease could face discrimination on the job, healthcare, life insurance. . I know there is a colon cancer link (my dad, cured 1969 and 1994)and that myself, sibs, grandchildren need to be screened for it. Until genetic testing is governed by laws such a ADA I will stay away from it. Also I don't think the regular screening would change if genetic testing showed a pre-disposition. If there is a family history it is important to be checked regurely. I know with my dads history of colon cancer and now my endo C I have to have check up and periodic testing.

Judy. I asked my mom (now 82) about the DES link. She had a miscarriage in 1956 two years before she had me. She said no she hadnt taken it, but I don't know if she would of even questioned an RX that her beloved dr. had given her. The prior miscarriage fuels my speculation, especially since gyn cancers do not run in the family. However, my gyn says there may be a link ??with my endo C and my dads colon cancer....
I had not heard about cattle being given DES but that would answer some of the ??'s about why endo C is on the rise, especially in younger, thin, typically not at risk women.
Unread 08-16-2002, 08:14 PM
Premenopausal endometrial cancer

Hi, Judy. I was 47 when I was diagnosed with endo. cancer as well. I am overweight, so that probably had something to do with it, as I have been on the 'plump' side through out adulthood, although not obese. I was in 'peri-menopause' when diagnosed; bleeding pattern had changed [duh!], but no hot flashes, or other symptoms of menopause. I corresponded with another lady thru another site who had surgery the same day as me for the same thing; she is only 42 years old, and very thin. I think we are going to see more and more of this type of cancer, and at a younger age, if the weight thing is connected to estrogen dominance, as I have read. In my case, there has been no gyn. cancers in my family. My grandfather is the only one I know of who had cancer at all, and he was 91 when he died; he had prostate cancer in his 80s and had his testicles removed, but the cancer spread anyway; I did not know that was the cause of death until this past year, and he has been dead for 3 years now.

Anyway, it is interesting. I am going to ask my onc./gyn when I have my next check up why it is that post menopausal women are the ones who are the highest risk for this cancer, yet it is predominantly due to high estrogen levels. This doesn't make sense to me. Anyone else have any ideas on this??

Take care, Judy.
Unread 08-17-2002, 06:06 AM
Judy, I'm 29

Hello there! My name is Paula and I'm 29. I was recently diagnosed with stage 1 endometrial cancer. I'm 3 weeks post-op and doing great. My FIRST doctor told me the same thing that you were told.....he made me feel as if I were the only person under the age of 50 who had ever gotten this. My doctor now, from a top 10 cancer institute, told me that he deals with women in their very early 20's and that this is becoming more and more normal. My pathology came back as they expected, stage 1 and I won't need any further treatment! Good luck to you!

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