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Want kids...not hysterectomy. Want kids...not hysterectomy.

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  #1  
Unread 08-25-2002, 09:56 AM
Want kids...not hysterectomy.

Wondering if anyone out there opted for chemo/radiation instead of the hysterectomy?
I am 29 and my husband and I desperately want to have a family. I went off birth control in January and in June went for a pre-natal visit hoping to get pregnant soon. Just my luck...at that visit, I had my first abnormal pap...indicating severe dysplasia. This led to biopsies, ecc scrapes, etc which confirmed CIN III in the cervical canal. I have just had a cone biopsy done last Wednesday and now I'm in waiting for results. I have not gotten word that it is cancer yet but my doc and I spoke of the options. He knows I want kids and so we discussed chemo/radiation in hopes to save my uterus.....if worse comes to worse.
Just curious if anyone has thoughts on this. This may be premature but I want to be ready and not have to make rash decisions because I'm in denial.
Thanks.
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  #2  
Unread 08-25-2002, 10:06 AM
Want kids...not hysterectomy.

Hi there, I wanted to I am sorry you are having to go through all this. It sounds very similar to what have recently gone through. My cone biopsy result was cancer and so a hysterectomy is the only course. When I asked my dr about radiation he explained that radiation with my cancer being in the very early stages would do more harm than good. He also said that if my dh and I wanted more children then he would do a deeper cone. If your diagnosis is CIN111 then I would think if your pathology from the cone is clear there is no reason at this time to have a hysterectomy.

Obviously you must make the decision with your dr and dh but be sure to explore all your options before you decide anything.

If you ever want to visit please email me.

Take care
((((hugs))))
  #3  
Unread 08-25-2002, 02:15 PM
Want kids...not hysterectomy.

s Melby

I am sorry to read you are so young and having to make this decision. Please confer with a gyn oncologist before you decide what measures would be appropriate.
Best wishes!

karenann
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  #4  
Unread 08-25-2002, 04:13 PM
Second Karenann's Suggestion

The GYN/ONC is the person to consult. He/she is the most knowledgeable and will give you the best advice--and never be afraid to ask for a second opinion either. I wish I had something comforting to tell you--I feel bad that you are so young and in such a sad situation. Please try the GYN/ONC and I've sent up a er for you that you receive the best help possible.
  #5  
Unread 08-25-2002, 04:21 PM
Want kids...not hysterectomy.

(((Melby)))

So sorry to hear you are having these concerns. Try to remember that a cone biopsy is very frequently all that is needed to take care of this problem. Cervical dysplasia typically takes many years to progress to cancer, so hopefully yours has been caught early. I had a cone biopsy in 1987 and had no further problems for 10 years (during which time I had 4 children). I did later have a recurrence though, and ended up with a TAH in Feb 2001.

A consultation with a gyn/onc is really a good idea, particularly if a hysterectomy is recommended. Here is a link to some information about treatment of cervical cancer (should yours have progressed to that): http://www.cancerbacup.org.uk/info/cervix/cervix11.htm

Also, I did find a thread here that referred to a procedure that is being done experimentally in women with early-stage cervical cancer. It might be worth asking your doctor about this (please keep in mind that I am not recommending this procedure per se--only your doctor knows what's best for you, but if you are looking for options to discuss with your doctor then here is that information:

https://www.hystersisters.com/vb2/sho...=trachelectomy

Good luck, Melby! I hope all turns out well for you. Please keep us posted on what is happening!

  #6  
Unread 08-25-2002, 05:38 PM
Want kids...not hysterectomy.

((Melby))

Try to remember there is usually no rush with cervical cancer - as the other ladies have said - it can take a long time to progress. You are doing the best thing possible for yourself by exploring your options. Take your time - see a gyn onc if you can - and even a second gyn onc if you have the slightest concern.

I am so sorry that you have to deal with this decision at a young age. I wish you and your husband lots of happiness in the future



Dorrie
  #7  
Unread 08-25-2002, 05:55 PM
Want kids...not hysterectomy.

Melby,
I sure hope it doesn't come to a hysterectomy for you but, besides a 2nd and 3rd opinion, you may want to also talk to a fertility specialist. I know there are ways out there to freeze your eggs worst case scenerio. A surrogate parent could still have YOUR child. I know there is so much to think about but just know there is a lot of info available out there on this exact topic when you are ready to look for it. Even oncologists know of other alternatives. Certainly none of it is ideal but it isn't entirely hopeless.
I pray for peace of mind for you and your husband and the wisdom to make the best choices.
  #8  
Unread 08-26-2002, 07:19 AM
Want kids...not hysterectomy.

Hi ladies.
Thanks so much for all your replies. It really helps to have such wise advice. My doc just called this morning with "good news and bad news". He said the good news is that my margins on the cone were clear...the bad news is that it was, in fact, cervical cancer. He believes the cone cured me for now and that my hubby and I (as soon as I'm healed) should get on with the whole baby thing.
Wow...I'm sort of freaked out. I'm so very thankful right now that it was caught but still have so many questions I didn't think to ask him.....like how do we know it didn't spread and will it eventually come back...and is it inevitable that a hyster is in my future, etc? I'm filled with strange emotion right now.
Truthfully...I feel like I'm in a different world.
You ladies are so wonderful and so brave.
I love this website and know there are friends out there for all of us.
Thank you!
melby
  #9  
Unread 08-26-2002, 11:35 AM
Want kids...not hysterectomy.

Melby! that is very good news! I'm so happy for you. I guess it's time for you and your dh to "get busy" Best of luck to you!!

Write down any questions you have, that way it will help you to remember when you have a chance to speak further with you dr.

Sending you many positive thoughts and (((hugs)))
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