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Complex hyperplasia with atypia Complex hyperplasia with atypia

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  #1  
Unread 08-25-2002, 01:33 PM
Complex hyperplasia with atypia

I have PCOS, and have been fighting hyperplasia for 20 years. I've had every fertility treatment known to man, (and one not known) without success. I do not get periods often, but when I do - it's bad! My last hemmorage was in May, and the D&C came back complex hyperplasia with atypia, and polyps.

I have tried provera in the past, but obviously it was a temporary fix. My GYN says since I have achieved the magic age of 40, and obviously unable to concieve, a hyst is the way to go. I don't have pain, discomfort, or other bothersome symptoms - except once or twice a year when I bleed for weeks and pass huge clots.

I have scheduled a hyst, and everything goes except for the cervix. Now I am starting to worry about what life will be like afterwards - i.e. surgical complications, surgical pain, my mood, my love life, and my decision to have a hyst in general.

My GYN gave me the name of a GYN/Oncologist for a second opinion. The second opinion agrees with the first. My GYN does not do the surgery anymore because of his insurance costs. The GYN that he rents office space from does. I saw him separately and he agrees with the decision, and will do the surgery. Now my Mom calls me today, and says she spoke to someone who knows two people who went to my GYN, and he told them they need a hyst, and referred them to someone for a second opinon who agreed. Then they went to someone else who told them they didn't need it. My Mom is famous for not getting the story right, but the seed has been planted.

The point I am getting at is - do you just keep going for opinions until you find someone who says you don't need a hyst, and take his opinion? Should I be concerned that this is a scam? Is there anyone out there with complex hyperplasia with atypia who did nothing, and everything is OK? I know it's only pre-cancer, but it does have a 30% "chance" of turning to cancer.

I'm sorry this is so long, but now I am more confused and scared than before about the surgery and the after effects I mentioned before. I need some encouraging words!
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  #2  
Unread 08-25-2002, 04:59 PM
Complex hyperplasia with atypia

Hi Joanne,


Man, once that seed is planted!!! Even I don't trust him now!
I think the oncologist counts as a second opinion. But....if it were me, I would not go any further with your gyn because he does not do surgery. I would ask the oncologist for a new gyn surgeon and see him. This will solve 3 things..it gives you an unbiased third opinion, it gives you a new gyn who operates, and you will be out of the scam idea. Mom's mind and your mind should be at ease. Insurance company should back you because no.1 does not do surgery. Clear as mud isn't it??

As far as info on the pre cancer situation, ask the same question on the forum,"cancer concerns", and they will help ya out.
Best of luck
  #3  
Unread 08-25-2002, 05:06 PM
Complex hyperplasia with atypia

Oops, just me again. Did ya catch the thread from Judy55 with similiar diagnosis? You have a bit more going on I think, but they sure are talking over there. *dancing*
Maralyn in California
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