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my gyno is puzzled my gyno is puzzled

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  #1  
Unread 08-31-2002, 09:43 AM
my gyno is puzzled

Okay, here goes everything. In April I went to visit a gyno after a large polyp had been found on a yearly (actually first yearly in 15 years). He sent me for an ultrasound. At the ultrasound an abnormally thick stripe (12mm) on endometrial tissue, along with too many cysts to count. He then sent me for a sonohysterogram which was not completed because I crashed big time on them. He was scheduled to do an endo biopsy in his office the following week, but after my reaction to the sonohysterogram he decided that he was going to do a hysteroscopy and D&C under anesthesia. From this I was diagnosed with a mild case of complex atypical hyperplasia. He suggested a hysterectomy since I was already post-menopausal, but he wanted to discuss my case with a gyno/onco. The gyno/onco suggested 90 days of progostrone with a follow-up D&C. After reading all kinds of bad things about Megace I was not excited about that route, but decided 90 days isn't very long. I tolerated the 40mg of Megace well "after" we decided it was best to split the pill and take half in the morning, and half at night. I actually lost over 30 lbs in the 90 days I was on it. I had my follow-up D&C on the 23rd. There was good news and puzzlement. The path reports did not show any malignancy or hyperplasia, but the growth of the endometrium as well as the growth of polyps and cysts was puzzling. He took the pictures from the Hysteroscopy and D&C with the path results over the gyno/onco. Her office called me at work to set up an appointment for Sept. 30th, under the request of my gyno (to make sure there wasn't something he was missing). I don't have much pain, no bleeding, just a feeling of pressure in my abdomen when I am standing or walking, and lower back pain. Does anybody have a clue? Maybe someone has already gone through this? I have been for CT scans, ultrasounds, colonscopy, hysteroscopies (2), D&C's (2), CA125, etc., is there any more abuse out there?

Valerie
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  #2  
Unread 08-31-2002, 03:20 PM
my gyno is puzzled

s Valerie

I'm glad that your gyn is finally having you see the gyn oncologist in person. Perhaps you will get some more definitive answers during that consultation.
Let us know how you make out.

karenann
  #3  
Unread 08-31-2002, 04:43 PM
Gyn/Onc Consult is Excellent Idea

That doctor should be a real expert at puzzling situations and hopefully can get something more definitive for you. Please let us know what you find out.
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  #4  
Unread 08-31-2002, 04:47 PM
my gyno is puzzled

Actually, on a cancer board, you really don't want to ask what else can do - believe me - there's always something

Seriously though - I think we've all been there. It's not unusual for all the testing to be done by your regular gyn, sometimes with a couple of phone consults to a gyn oncologist. Since all is not resolved to your or your gyn's satisfaction, you are doing exactly the right thing - going to see the gyn onc in person. Let us know what happens.



Dorrie
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