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Severe Dysplasia Severe Dysplasia

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Unread 09-16-2002, 05:30 AM
Severe Dysplasia

Although I rarely post, I come to this site almost everyday.... It is wonderful to have a place where other people are experiencing similar feelings!

A couple of questions... I will be having a TVH for severe dysplasia on 10/2. It will be a great relief to have this done and over with, to stop wondering whether there is actually cancer there.

Has anyone had a hyst for dysplasia and then found out it was invasive cancer from the path report? If they find cancer at that point, will they operate again to remove ovaries, etc???

My doctor says "Don't worry, cervical cancer is very slow moving". But it has been almost 7 months since the cone, and there were not clear margins, plus for the last 4 months I bleed a little every time my husband and I have sex. Isn't that the first symptom of cervical cancer??? Is it possible the bleeding is just because she removed so much tissue with the cone? While I am not beside myself worrying...this stuff just goes through your mind over and over and over.....

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Unread 09-16-2002, 05:51 AM
Severe Dysplasia

I had a TVH for severe dysplasia. (cin3). I am reading post daily, but rarely post also. I just don't have too much to offer.

When you're dr. is in there, she'll check everything out, including your ovaries. Really, you're chances are slim to none that severe dysplasia turned into invasive cancer this quickly!! You have just as good a chance the severe dysplasia could have reversed itself. That is what happened to me!!

Now, I could tell you don't worry, but we all know better!! Just try and stay busy and don't let your imagination run wild!!
Unread 09-16-2002, 12:33 PM
Severe Dysplasia

I hope you're seeing a gynocological oncologist. Cleveland's a big city so there should be some. Since your surgery is not until 10/2, you have time for another opinion. I've read some posts from other ladies who had surgery by a gyn, found out from the path report there was cancer and then had to have another surgery. The gyn/oncologist is trained to deal with this from the beginning.

Try not to worry to much (right!), but definitely try to see a gyn/onc as soon as possible.
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Unread 09-16-2002, 03:08 PM
Severe Dysplasia


Unread 09-16-2002, 03:57 PM
hi kedda...

i too was diagnoised with severe dysplasia and after the conization found that the doc wasnt able to get it all with the cone...the cancer scare in itself is enough to drive you mad with worry...

i wish i could help more with your question but know that you are not alone and the scare is very real....

keep in touch and God Bless...

p.s. let me know if you find out anything...

TAH 9/30.....cin111, pcos
Unread 09-17-2002, 03:26 AM
Severe Dysplasia

Hi Kedda,

I had my surgery for cervical cancer, definitively diagnosed by a LEEP with cone biopsy and at that time, the margins were not clear so I didn't know what to expect either after the hyst. In my case, I hadn't even been to the GYN in about 10 years, had no symptoms, so really had no idea how long the cancer had been growing.

I was also told by my Drs. that cervical CA is very slow growing, but it is natural to worry. Just hearing cancer throws you into a real tailspin! I was fortunate and surgery has been all the treatment I've needed, except for all the follow-up visits and repeat PAP's to keep checking. But, that's a small price to pay...and I tell myself I'm making up for the foolishly missed appointments over the years before

I have to say that I agree about seeing an ONC GYN. If you aren't already, then make an appointment now before your surgery. My GYN referred me to my ONC GYN as soon as my first pathology reports came in. I love my GYN, and trusted her completely when she told me that an ONC GYN is the expert and now I couldn't agree more.

Best wishes and s
Unread 09-17-2002, 06:54 AM
Severe Dysplasia

Ok, made an appointment for a consultation with a gyn/onc this Friday. Thanks for the encouragement, for some reason I feel guilty about seeing another doctor....

Just another quick question. I called my GYN's office to get a copy of my records. They don;t want to give them to me, they will only send them to the other doctor's office. What are my legal rights for copies of the path reports?
Unread 09-17-2002, 09:29 AM
Severe Dysplasia

Hi Kedda,

I am not an attorney so I can't speak specifically to legal rights. However, I am 99% sure that you should be able to obtain copies of all personal medical documentation. I am in a different state, but in my case I simply had to sign a release and they mailed the records directly to me a couple of weeks later. Whether this was a "legal" right or simply courtesy on behalf of my doctor's office, I am not completely sure. Good luck.

Unread 09-17-2002, 02:54 PM
Severe Dysplasia

The DR should give you your records. That's strange. You could fax the release to the GYN/Onc and have him fax it to your DR. One time, I was at one DR's and while I was there he called a different DR and had a path report and blood work up faxed to him on the spot. That method may work.

I'm really glad you're seeing a gyn/onc. It's good to know ALL your bases will be covered. Be sure to post after your appointment. Also, check some of the drop down screens for hints on questions to bring.
Unread 09-17-2002, 05:11 PM
Severe Dysplasia

I believe that you have a legal right to your own records. I've asked for medical records many times. For some reason they always said there will be a charge for giving them to me but there would be no charge for sending them to another provider. The good thing about getting them in your hands is that you won't get to the new dr and find out something fell through the cracks and the records aren't there.

It was 14 months between my first abnormal pap and my hyst. I got a little surprise when I got my path report after the hyst. It showed CIN3 which I was expecting...but also showed CIS which I wasn't expecting. After my initial freak-out I calmed down and learned that CIS is a step before invasive cancer and my dr (gyn-oncologist) insists on considering it a pre-cancer.

Good luck with your appt on Friday. I know it's hard, but try to believe that it most probably has not progressed and the hyst will take care of it.


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