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Fistula leaking urine through vagina Fistula leaking urine through vagina

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  #1  
Unread 07-21-2000, 03:30 PM
Fistula leaking urine through vagina

Hi everyone, I am 8 weeks post op. My doctor thought I had ovarian cancer and I didn't but I did have stage four endometrosis. I had a horrible surgical experience. The morphin didn't work. I almost bleed out on the operating table and I was in the hospital for six days went home with a drain and a cath in. About 4 weeks post op I started leaking urine. I couldn't get my Doctor to respond to my calls and finally saw her last week. I have urine leaking out of my vagina now it turns out I have a fistula. I rare complication of a hyst. Here is the deal there is only one treatment and that is another surgery. They want to do it soon. In September. I am totally freaking out. I run my own business and can't imagine how it will survive being shut down for another four to six weeks. I can't, don't want to go through the pain.. the horrible pain again.. I am angry and frustrated and now since there is no one with fistula experience in my area a expert has to come in from out of town.

My doctor after the hysterectomy told me I should never have abodominal surgery again because of the damage and scar tissue but now I have to.. I can't believe this.. I am so angry and all of this because she nicked my bladder put in stitches and one came out...

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  #2  
Unread 07-21-2000, 04:14 PM
Fistula leaking urine through vagina

Hi Elli we talked the other night. you will be in my thoughts and prayers sweetie i know anothet surgery is not what you want i have been there and doing it again. we are here for you any time. take care warm and gentle hugs to you
  #3  
Unread 07-21-2000, 09:37 PM
Fistula leaking urine through vagina

Hi
I just had my fistula repaired on 7-6-00. My hyst was 4/17 and believe me it has been a living nightmare. I was terrified about pain and being out of work for months and money, adhesions, etc........I worried about it all. But I came to realize I can not change this and it won't disappear.

I suffered pretty bad incontinence from it and I was very ready to get it fixed by the time surgery came up. So far I am dry and I get my suprapubic cath out on Monday!!! I will also have a cystogram then to make sure all is healed up. I had 2 fistula's and a great Urologist Surgeon to fix it. I had the best in the area take care of this. Make sure the surgeon you are getting has a lot of experience and a good success rate.

I had an abdominal vertical 10 inch incision and a suprapubic cath and a JP drainage tube in my tummy and a foley cath when I woke up. Yes it hurts, but it is less then the hyst at least I thought so. But they kept me on good drugs for 2 days longer then the hyst. But all in all I feel great and it is only 2 weeks out. Believe me I am not lifting a finger around here, rest is impairitive to recovery with this. Every doctor has their own technique though. There are several ways to try to repair this senseless complication. You can email me with any questions
[email protected] Good Luck to you I do understand completly what you are going through emotionally and physically. ((((HUGE HUGS))))
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  #4  
Unread 07-22-2000, 06:01 AM
Fistula leaking urine through vagina

Elli, I am so sorry you will have to have another surgery I have been there. I've had 2 more surgeries since my Hyst. You will be in my thoughts and prayers. This is a wonderful place for support so many of us are facing complications after this surgery and it helps so much to know you are not alone. We are here for you anytime
  #5  
Unread 07-22-2000, 12:35 PM
Thank you for responding :0

Everyone,

Thank you so much for responding. I felt so horribly alone since this happened and so grossed out by this peeing all over myself I just wanted to crawl in a hole and I was to humilated to really confide in many people here aside from my partner. I am so miserable and depresseda and hate wallowing in it. I want to be o.k again and healthy again and I am so scared that this surgery won't work or I will need to have it again..

Thank you to everyone of you I can't imagine not having a place to feel supported and understood during this time.


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