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Scared in Ohio Scared in Ohio

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  #1  
Unread 09-24-2002, 06:13 PM
Scared in Ohio

I recently was told by my OBGYN that I have cervical cancer. I had a cone biopsy and a D&C on 9-20. After the surgery the doctor said that it was worse than he had thought. He told me I will have to have a abd. hysterectomy, but he wants to wait until he gets the results back from the biopsys. He wants to do this immediately after we get the results back. I dont get my tests back until 9-30. I hate the waiting.
When I first went to see the Dr. he said that we caught it in time. But each time I go back, the news gets worse.
I'm trying to keep my thoughts positive but its getting harder and harder. I dont know anyone who has went through this so if any one has words of wisdom, please reply. I could sure use it about now.

Will I be able to take care of my kids immediately after surgery. How long is recovery time. Should I try to get someone to help take care of them???? I'm the sole prvider for my family, I have insurance but no short term disability insurance. Any advice?

Cheryl
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  #2  
Unread 09-24-2002, 06:30 PM
cervical cancer

Dear Cheryl40, I am so sorry about your recent diagnosis. You must be in shock. Your doctor will eventually tell you what stage the cancer is and then you will know better what you are dealing with. You are right when you say the waiting is the worst part. Keep supportive family and friends around for you. I had cervical cancer stage 2A. I had radiation and an abdominal hyst. You will need someone to help out with your children after the surgery. You will not be able to lift and moving about will be uncomfortable for a couple of weeks. You will not be able to drive for some time also. See if someone can help with the children and the housework.
I don't know what stage you are but understand that many people will be along to reply to your post that have survived cervical cancer and many will come along that are just in the begining stages of treatment. Hopefully we can all provide you with some support and maybe even answer some questions.
Take care and I will keep you in my prayers.
  #3  
Unread 09-24-2002, 06:37 PM
Scared in Ohio

(((Cheryl)))

Welcome to Cancer Concerns . I am so sorry to hear that you have received bad news. You're right--the waiting is the worst! It is so hard to keep positive thoughts going at a time like this. Try the best you can, because I believe that positive thoughts are powerful medicine. But at the same time, it's important for you to feel free to express your sadness and grief. It's OK to cry and it's OK to vent and it's OK to feel scared and it's OK to feel whatever it is you are feeling. And always remember that cancer can be beat!

Typical recovery from a TAH is 6-8 weeks. You're going to need some help, especially the first 2-3 weeks. You will only be allowed to lift 5-8 pounds (a gallon of milk or less), and you really need to spend a lot of time lying down so that all of those internal stitches can heal. Please go to our home page, scroll down to the bottom, and read through our pull-down menus. There's lots of good information there to help you prepare for surgery. Actually, just click here--->Home Page. Also, please feel free to visit our Pre-op Message Board, where lots of other women are preparing for their hysterectomies for various reasons.
And of course, you are always welcome to visit us here anytime and we will be happy to support you through the trials and tribulations of a cancer diagnosis.

I, also, am the sole provider for my family. It's very stressful to know that there will be no income for a while. But remember--it's important to take the time off work so that you can recover fully.

Good luck, Cheryl! Please keep us posted as you receive your pathology reports and are learning more about your treatment options. I will be keeping you close to and in my 'ers.

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  #4  
Unread 09-24-2002, 06:52 PM
Scared in Ohio

Dear Cheryl,

I was diagnosed with cervical cancer stage 1B2 last December, and I had a radical hysterectomy followed by 5 weeks of chemo and radiation. I know you are scared right now, but keep in mind that there are lots of options for you and it will depend on what stage your cancer is at -- early stages have a great cure rate -- that's the good news.

You don't say what ages your children are -- if they are school age or above, they can do a lot to help YOU (fetching you things from upstairs, bringing you drinks, going with you on walks when you feel up to it, etc.). You will NOT be able to lift toddlers or preschoolers for 6 weeks at least, so if your kids are young, help is a must. Also, you won't be able to drive for quite a while, so if they need transportation anywhere, now is a good time to line up some volunteer drivers. Also, if you have freezer space and the inclination, getting some meals in the freezer is a good idea as is stocking the pantry with lots of cereal, easy spahgetti sauce, etc.

The waiting is not fun, but for me, it was helpful to spend that time thinking ahead and trying to organize things for my family as best I could (also, I had last minute Xmas preparations to handle, so that kept me really busy). If you are involved with a church, let them know what you are going through so they can help too!

Finally, and you will hear this again on this site I am sure, PLEASE see a GYN Oncologist -- they are really specialized in what you are facing, and you want the very best treatment options that are available. If your recommended surgery is a radical hysterectomy (which is more involved), you must have someone with lots of experience doing that procedure. You may have to get to a teaching hospital in a large city to find this type of care, but it is worth whatever it takes to get there!

Let us know how you are doing and when you find out your stage! Welcome to our forum!

Joanie
  #5  
Unread 09-25-2002, 05:24 AM
Stay positive

Hey Cheryl,

My name is mellissa and i am 24 years old , a year ago i was diagnosed with stage 1b adenocarcinoma of the cervix and underwent a radical hysterectomy with pelvic lymphandectomy.

I totally understand how you must be feeling at the moment and agree that the waiting is the worst. I know how hard it is but it will get easier, But after your Hyst YOU MUST REST UP. No heavy lifting, straining, etc. just watch Jerry Springer and read loads of books, listen to music etc (I dont have a DH, but i do have a great MOM who did everything for me)

This time of uncertainty will pass and you will see the light at the end of the tunnel.

Keep Smiling and be brave.

lots of love,

Mellissa xx
  #6  
Unread 09-25-2002, 08:48 AM
Hi Cheryl

I can't help with the cervical cancer situation, but I did have the abdominal hysterectomy. You will definitely need help for a while if you have children unless they're old enough to help with laundry, dishes, etc. Also there is a time when you can't drive and you'll be very sore and tired too for several days after you get home. The important thing is to listen to your doctor and don't do anything more than he/she allows. I know it's nervous time--please check pre-op and line up help with the children and household for when you're post-op.
  #7  
Unread 09-25-2002, 12:43 PM
Scared in Ohio

I know where you are coming from. I went to the dr because I didn't have a period. Thought I was pregnant. It was cheaper for me to go to the doctor on insurance than to buy a home test. Good thing. Found out I had fibroids, then my pap came back abnormal. My gp sent me to a gyn for colposcopy. It came back worse. High grade change cannot rule out cancer, so the gyn did a LEEP procedure. he told me even if it turned out to be cancer that the LEEP removes it 99% of the time. Well, did that and had a regular appt. to go in for check up and results. Got a call at work, the doctor needs to see you now. Well you know it's not gonna be good news. I go in and find out the LEEP didn't get it all and I've gotta have the TVH. I went for a second opionion to a GYN/ONC. She was wonderful. She was a specialist at all this and I decided to stay with her. She did a TAH/BSO and exploratory surgery. She said everything went great. She decided my lymph nodes looked OK and so did everything else. I get the results of my path report on Friday. I'm hoping the news will stay positive this time. Anyways, as far as things are planned now, I won't have to have any chemo or radiation unless something else shows on the path report. Feel free to send me a private message or e-mail if you need to talk. 's
  #8  
Unread 09-25-2002, 05:31 PM
Scared in Ohio

((Cheryl)), I am also in Columbus and had my surgery done by a wonderful gyn/oncologist. My gyn referred me to the gyn/onc for suspected uterine sarcoma. However, my tumors were benign but I am really glad my surgery was done by an gyn/onc. You really should get a referral to see a gyn/onc., there are several good ones here in Columbus.

Check with your HR person to see about disability. You should be able to get leave for FMLA, even though you may not get full pay (or any pay). It depends on the size of your employer. My Dr was very good about doing all the paper work for my leave. He also prepared me for recovery and told me what my limits would be and what kind of help I would need.

It sure is scary to go through all this. I will be thinking about you.
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