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Upcoming hysterectomy 10/10: new and nervous (endo, age 26) Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

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  #1  
Unread 09-11-2017, 11:30 PM
Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

Hi my name is kitra, I'm 26 and I have two little boys. I am scheduled for a lavh on October 10th and I'm just nervous. I have endometriosis that causes extremely painful cramps constantly and I haven't had periods for almost six months. My body is out of sorts and has been for quite a while. The thing I'm most worried about is how to prepare mentally and if the surgery will more or less make the pain go away.
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  #2  
Unread 09-12-2017, 09:32 AM
Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

  Quote:
Originally Posted by Ateam12 View Post
Hi my name is kitra, I'm 26 and I have two little boys. I am scheduled for a lavh on October 10th and I'm just nervous. I have endometriosis that causes extremely painful cramps constantly and I haven't had periods for almost six months. My body is out of sorts and has been for quite a while. The thing I'm most worried about is how to prepare mentally and if the surgery will more or less make the pain go away.
Glad you are here!! For me my surgery took away the awful pain, but it took about 6-8 weeks post op to really start feeling better. Read the boards here, best resource you can get. I really practiced my breathing to get my anxiety and pain under control. My biggest fibroid was the size of an orange and gave me nothing but grief. 12 weeks and I'm basically pain free.
Good luck
  #3  
Unread 09-12-2017, 01:41 PM
Re: Upcoming hysterectomy 10/10: new and nervous

GOOD luck!!

My surgery is in Nov. I have endo too and I am really hoping that surgery helps out tremendously!

Good thoughts coming your way!!
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  #4  
Unread 09-12-2017, 09:34 PM
Re: Upcoming hysterectomy 10/10: new and nervous (endo)

Hi Ateam12 to HysterSisters!

I am so glad you found this site. You are very young to be having this surgery.

I have never had endo, but have learned from this site that a hysterectomy will not cure endo. Neither will removing your ovaries. You need an expert to remove the disease. Here are articles that may provide information:
Can Endometriosis Return after a Hysterectomy?
2 Big Reasons to Keep Your Ovaries ? Even If You Have Endometriosis
Should I Keep My Ovaries or Not If I Have Endometriosis?


Having a hysterectomy is MAJOR SURGERY and needs to be considered carefully. You may want to get an alternate opinion, especially from an endo expert.

  #5  
Unread 09-13-2017, 01:31 PM
Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

Thanks for your replies! I have already gone through all the other steps to try to get rid of the end. From birth control to getting the endometriosis removed through laporoscopys. But my endometriosis is so severe and fast growing my gyno thinks this would be the best option for my case. And I would trust my doctor with my life. He is beyond amazing. I know this is a major surgery but I feel that this is the right step for me. But it's still scary to think about. Especially since I have two little boys under the age of three.
  #6  
Unread 09-13-2017, 05:14 PM
Re: Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

I have endo too - very severe. And I have seen over 4 different doctors and two specialists. A hysterectomy alone is not a "cure" and technically there is no "cure" but removal of the endo is your best bet.

I am done having kids and older than you but I have been told that when it is that severe sometimes removing it and saving the organs isn't always an option and they may not know that until they go in. Maybe your doc can remove it. Just make sure that it's removed and not just drained. Mine was just drained and the tissue was left because my first doc was not a specialist! And boy did it come right back.

I guess it's best to be prepared for worst case - I know all too well the pain it causes and the potential damage if left untreated to other organs.

So many good thoughts coming your way!!!!
  #7  
Unread 09-13-2017, 08:11 PM
Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

I have no reservations on getting a hysterectomy because one, I can't have any more kids, and two , I have always had gynecological problems. I had some pretty cancerous cells growing on my cervix about six years ago that was removed, and also like I mentioned severe endometriosis. I have tried to do my best on researching other alternatives and remedies but I feel like this is my best bet. My doctor has tried everything else to get the pain and adhesions to go away but without any luck. So I'm really hoping his will do the trick
  #8  
Unread 09-13-2017, 09:17 PM
Re: Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

I'm new here too!! I was excited to find your surgery is the same as mine, October 10th! I also have 2 young kids but am slightly older then you at a ripe 39 lol. I'm SO nervous which means full of jokes and lots of shopping loll! I have NO idea what to expect, I'm kind of looking at the 2 wks of bedrest as a vacation lol.
  #9  
Unread 09-13-2017, 09:27 PM
Re: Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

Your doctor may have tried everything he can do -- as has many of our OB/GYNs. But that's the thing -- local OB/GYNs aren't endo specialist so more often than not their best just isn't good enough. My own OB/GYN, as knowledgeable and talent as he was, could not treat the endometriosis on my bowel walls so my endo problems continued beyond my hysterectomy.

Removing the uterus doesn't remove endo. You can have severe endo without a uterus; even having no ovaries doesn't mean no endo. The key is to find a surgeon with expert skills and knowledge who will be able to locate and remove the existing endo using a method that really removes it and doesn't leave any behind or creat additional scar tissue. For many of us, that means finding a specialist.

As I mentioned, I continued to have endo problems even after my hysterectomy because endo was intentionally left on my bowel walls. When symptoms became bad enough, I traveled to an endo specialist for excision surgery. That was in 2008 and I am still endo pain and symptom free today, even though I was originally a stage IV and I have both ovaries.

  #10  
Unread 09-14-2017, 12:41 AM
Upcoming hysterectomy 10/10: new and nervous (endo, age 26)

This is to reply to #9 .
That makes me really nervous. If you had known about the specialist before you had your hysterectomy would you have gone a different route? And how did they end up knowing it was on your bowels? Were you having any symptoms that would have suggested that or was it only found in surgery?
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