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I hope it's o.k. to ask this... I hope it's o.k. to ask this...

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Unread 10-04-2002, 08:28 AM
I hope it's o.k. to ask this...

I hope you don't mind my asking this question. I am a dweller on the "road" and have run into another problem. My new gyn found a large mass in on or around my last remaining ovary on the right. She seems kinda nervous and has me going for a sono today( she wanted it done yesterday, the day she found it, but no one could do it). My question is, is it possible that ovarian cancer can start on the inside of an ovary, thus "looking" o.k. during a hyst, but possibly changing? I can't help but worry....as she seems quite concerned and mentioned a CA125 after she hears about the sono. My DS had cancer at age 2 1/2 so I KNOW anything can happen. Any insight would be appreciated....I'm drinking my 32 oz. now as my appt. is at 2:00pm. Thanks again, Love, Tickles
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Unread 10-04-2002, 09:06 AM
I hope it's o.k. to ask this...


Remaining endometriosis can give this appearance to an ovary as well. Plus it can elevate your CA-125.

And my surgeon told me at my six-week appointment that "we could have kept your right ovary, it looked pretty normal." Well, that's not what my path report said -- "dense filmy adhesions cover the right ovary". By the same token, endo (or cancer) could have been microsopic at the time of surgery, but have grown since then.

It's not uncommon to develop cysts on remaining ovaries. Often it's nothing more than the "normal" cysts of the egg popping out of the follicle, but then not going down afterward thanks to changes in blood supply and function. I do that's what it is for you.

Good luck on your visit, and on the CA-125.

Unread 10-04-2002, 09:44 AM
I hope it's o.k. to ask this...

s Tickles

Unfortunately the answer to your question is yes. Cancer can develope even after the ovary looked normal at the time of your surgery.
If your ultrasound (and I hope it is done intravaginally) continues to make the ovary look suspicious, please schedule an appointment with a gyn oncology surgeon. They are the experts.
Best wishes to you. Let us know how you make out.

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Unread 10-04-2002, 12:34 PM
I hope it's o.k. to ask this...

Hi Tickles...
I certainly hope that you are seeing an oncologist gynocologist. If not, please get a second opinion from one. They are the people who can really answer all your questions and know what to look for during surgery. Mine did and after a hyst. and chemo, i am doing fine..
Unread 10-04-2002, 03:29 PM
No real answer

No, they did not do it intravaginally. Now I'm upset they did not. All she would say was...it's big. And your ovary is not where it should be. Gee thanks. I know nothing. Rosalie, are you saying you found out about your cancer after a hyst and "normal" looking ovaries? If so, I'm going to a gyn/onc asap. I'm concerned about this. The tech had a very odd look on her face, and actually concentrated in areas I didn't think were of importance. I'm sitting on pins and needles. Thank you all so much...Love, Tickles
Unread 10-04-2002, 05:29 PM
I hope it's o.k. to ask this...

s Tickles

Try and stay very calm until you hear from your gyn. This mass still has a chance of not being connected with your ovary at all. But if it is, get an appointment with a gyn oncologist. Let us know. You will be in my thoughts and prayers during this trying time. Waiting and not knowing is the pits.
I was sorry to read that you've been through cancer before with your young son. I hope he is well today.

Unread 10-04-2002, 05:53 PM
Thank you

Thank you all for your support and insight. Karenann, thank God, yes my son is just fine so far. He had a very rare cancer called rhabdomyosarcoma. EXTREMELY aggressive, but by the grace of God, it was caught in the first stage and he underwent a year of very very aggressive chemo. We lived at the hospital and thanfully my mom was able to take care of my then three month old DD. He is 5 years cancer free off treatment. So, I know it's beatable! I just want to find it early if it's there and kick it's butt! I don't know, but I have a weird "feeling". Could be paranoia, naturally after my DS's experience. But, I know my body well, and I just wonder.... I will let you know, but the look on that womans face makes me wonder. Thank you so much again! Love, Tickles(Cathy) P.S. Where in N.J. are you ? I'm also a Jersey gal..if you'd rather pm feel free!
Unread 10-04-2002, 09:05 PM
I hope it's o.k. to ask this...

Hi Tickles!

It sounds like you're going about things in the right order, getting it checked into and making sure what it is you're dealing with.

I did want to share a couple things my Gyn Onc mentioned to me when my cancer was first discovered. We had a coversation regarding "how" they tell they might (and I stress "might" here) be dealing with a cancer. One way is by the size, shape, texture and density of any "masses" or "growths".

He said that a misshapen, "bumpy" or uneven and non opaque growth might be more prone to be cancerous than one that is smooth, evenly shaped and non-opaque. Although nothing is ever certain until pathology is performed, this is one way to plan ahead "just in case".

I hope you will seek a second opinion after you get more information. Its always a good idea to get as much information, especially from specialists as you can.

I hope everything turns out to be nothing to worry about and btw, congrats to your son. That's a wonderful outcome to what I can only assume was a very difficult thing for your family to go through.

Please keep us posted on how things go for you and we'll all be saying an extra prayer that everything turns out okay.


Unread 10-05-2002, 03:30 PM
I hope it's o.k. to ask this...

My ovaries were enlarged when they did the ultrasound. When I had the hysterectomy and my ovaries were removed, the gyn said they looked just fine (big sigh of relief from me and family). He was sure they were not malignant. 3 days later the path report came back (on Valentines Day) that they were both indeed malignant. It just hadn't advanced to the surface of the ovary.
I am not telling you this to scare you, just to inform you that it happens. Information is power!
Unread 10-06-2002, 06:18 PM
You are so right

Information is power! Believe me, I'd welcome any info at all...it does not scare me, it makes me feel stronger in that I know more of what to ask/look for. So thank you, and please, I'd ra ther be told what the real deal is/could be! I truly appreciate it! I'm so sorry you had to hear that after you thought, o.k., I'm alright. Then BOOM. That had to be so hard. Yes, my DS's cancer was tough on all of us, especially when my then DH gave me the I don't love you anymore during his chemo. Needless to say, marriage counseling during your DS's chemo is a tough mix. We did not make it, but God had a plan, and plopped a wonderful, caring man in my lap (practically!) who loves me and my DD and DS as his own. He would jump in front of a train for either of them let alone me. He never had married, nor had children and is 17 years my senior(and an electrician....sorry, something sexy to me about that!). I tease him and say you waited for me! I'm so glad he did....we were made for each other. Anyway, enough sap....thank you all for caring and I'll let you know! Love, Cathy

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