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  #1  
Unread 10-11-2002, 07:48 AM
abnormal pap

please bear with me on this cause I'd like to explain my history.
12 years ago I was diagnosed with HPV. In that period of time I have had a cryo (yuck) ... and two lazer surgeries.
Now I have pretty much a non exsistant cervix. I have been getting my check ups regular and paps always came back normal.
Until this weeks. The nurse called this morning and wants me to come back in April... APRIL?!!! I said is it mild dysplasia and she said something about squamous cells... who the hell knows.
I am to go in on tuesday for an ultrasound because of my enlarged uterus... and then see the doc in a month for the results.
I'm scared to death ... I'm tired of all this stuff.
Thanks for listening
Rainee
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  #2  
Unread 10-11-2002, 10:34 AM
abnormal pap

s Rainee

Welcome to Cancer Concerns.
Your pap smear showed squamous cells and the doc wants to repeat that in six months. Is this the normal time frame to repeat that procedure? Sounds a bit long to me. You are having an ultrasound for an enlarged uterus and your doc will give the results in a month?
If I were you, I would surely want the results sooner than in a month!!!!
As a matter of fact I would demand to know the results in a weeks time at best. Depending on the those results, perhaps it is time to get a new doc or a second opinion. Gyn oncologists are the experts.
Ladies who share your problems will be along shortly.
I hope you keep in touch with us.
Best wishes.

karenann
  #3  
Unread 10-11-2002, 11:29 AM
abnormal pap

Hi,

If you are concerned then ask for a colposcopy to make sure. Squmous is just the type of cell.
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  #4  
Unread 10-11-2002, 01:44 PM
abnormal pap

You go, Karen!! Before you know it you'll sound like me (very radical!!! and very pushy!!!!). Now for my Karen imitation (you've taught me how to think before I post and be more reasonable)

Rainee, I had a different kind of cancer, but I did have a pelvic ultrasound. I went for the results at my DR's in 10 days. Some women have gone even earlier. There's no reason why you have to wait a month. And April does seem to be a long way off for another pap.

Is your DR a gynocological oncologist? We highly recommend a gyn onc. They're really the experts.

Keep posting - this is a great site full of lots of women who have been like you, asking questions, not sure what's appropriate treatment and time frames, and just needing support only other women can give. We're here for you.
s,
Laura
  #5  
Unread 10-11-2002, 01:59 PM
abnormal pap

Hi Rainee
Well all has been said by all!!
Make sure that you see an oncologist gynocologist.. They are the experts and know exactly what to look for. Keep in touch.
Rosalie
  #6  
Unread 10-11-2002, 04:16 PM
abnormal pap

's Rainee!

I'm sorry you are having this problem. It sure is annoying and frightening, isn't it? I also have had a long history with abnormal PAP's and cryo's and biopsies. Six months sounds like a really long time to me, too. My doc always did a follow-up no longer than 3 months after an abnormal PAP, and when the one just before my hysterectomy came back abnormal he went straight for the biopsy (because I was already having PAP's every 3 months for follow-up from my cryo). Since you have such a significant history, you might like to request a more aggressive approach.

In the meantime, make sure you are taking good care of yourself. Eat well, get lots of rest, get some exercise, take a multivitamin. That pesky HPV can be beat, but our immune systems really have to be working at their maximum level.

Good luck!
  #7  
Unread 10-11-2002, 04:42 PM
hi there thanks for the responses

When I see him for my follow up in a month I will ask him what he's thinking.. I am an medicaid so not all options are open to me.
It's been years since I had a pap come back abnormal.
I figure if the ultrasound shows something of concern they will call me sooner.
This is all so new to me with the fibroid stuff any way.
HPV no. like I said a cryo and two lasers.. the first laser I had out of control bleeding.
I wonder if they just take what's left of my cervix out it would be better for me?
he said as far as fibriods.( if thats what it is) he doesn't do surgery unless they are causing a problem.
he siad by 50 they will shrink anyway.



Thanks
  #8  
Unread 10-12-2002, 09:17 PM
abnormal pap

Rainee,

I would definitely ask your doctor to do a colposcopy ASAP, or I would make an appointment to see a gyn/onc.

I was 42 when I was diagnosed with cervical cancer. I had a couple of cryosurgeries when I was approximately 20. The doctor did not schedule me for paps every three months like is recommended. I did have one every year though. Not a one came back positive.

When I had my pap in 2000, it came back as benign atypia. I did miss my pap in 1999 because my Mother was having a breast biopsy at the time, and I let my pap slide. I probably wouldn't have, because my gyn told me as many as I'd had that came back negative, the chances of me getting cancer was slim to none. This was not the same gyn that performed the cryosurgeries.

Well, he did a colposcopy right away (thank goodness). He told me before the procedure that he didn't expect to find anything, but if he did, he would take some biopsies. He took some biopsies, and they came back as invasive cervical cancer. He was shocked. In all the years he has been practicing, he never had a pap that came back as benign atypia end up being invasive cancer.

He immediately referred me to a gyn/onc who performed a radical hysterectomy right away. He feels strongly that my cancer was a result of the cryosurgeries I'd had almost 20 years ago.

Now I'm not trying to scare you into thinking you could have cancer. I'm just relaying my story. I personally feel that six months is a long time to wait. I'm very grateful that my doctor was diligent in performing the colposcopy even if he didn't think he would find anything.

Feel free to e-mail me if you have any questions.
  #9  
Unread 10-13-2002, 06:47 AM
You sound like me!

I've been dealing with AB paps for 7 very long years. I've had 2 LEEPS, 2 Cone Biopsies and more colposcopies that I lost count. I literally have a "stubby" cervix and there is NOTHING else to remove. I have gone every 3 months - 6 months for PAPS the past 7 years with only 2 Normal ones in between. In April my PAP came back Atypical and the GYN wanted to wait 3 months to redo it. In August it came back CIN3 with high grade endocervical lesions. I had a Colposcopy performed on September 12th which came back normal at the outside of my cervix graduating to CIN 3 deeper. I am scheduled for an TAH/BSO on November 21. I opted for the BSO since I have NO family medical history.

Six months seems to be a very LONG waiting period. Three months seems to be the norm. Cervical Cancer is one of the slowest growing so I wouldn't be too worried about that BUT I would also call my dr. again and make a 3 month appointment or even go one step further and insist on a colposcopy. The waiting period is the hardest and 6 months not knowing would cause anyone major anxiety attacks!

Good luck!
  #10  
Unread 10-14-2002, 06:00 PM
Hi Rainee

I understand what your are going through with medicade. You do not get the same treatments or the avalibility of doctors either.
My paps always came back as normal until a year and a half ago. After the red tape with medicade I finally found a gynocologist, (actually the nurse practitioner saw me), and she ordered a colposcopy. So I agree with the others that this is the next thing that should be done. It showed that I had atypical hyperplasia. Once this result came back they wanted to do a D&C. I had this performed and it showed a raised area that they called atypical complex hyperplasia. Or as they told me... Pre-cancerous cells.

Why oh why can the ones that cannot afford the best doctors have to suffer with there own life? If medicade did not give me such grief, we could have gotten to this sooner and maybe I would not of had to go through a hysterectomy.

But my experience has taught me one thing. If you have to go to a clinic. Insist on the nurse practitioner. She can do everything that the doctor can. Also she does more than the doctor will such as tests, ect. This nurse practitioner also found my thyroid nodules, which are very big and could turn cancerous if not kept up with.

I can only offer this to comfort you. When my D&C came back with those results.. I was sent to a cancer specialist to go over my choices. He said I could put the surgery off for a year if I wanted but not much longer. So please do not feel you have to be pressured into any decisions.

I too would not wait 6 months for the follow up. Not because of it being something. Just for your peace of mind.

All the best to you,

Michelle
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