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Another prolapse ALREADY Another prolapse ALREADY

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  #1  
Unread 10-22-2002, 10:39 AM
Another prolapse ALREADY

Had a TVH + Burch, bladder and rectum repair for severe prolapse on 5/28/02. By September something had uncomfortably "fallen" again!!! Doctor says it's vaginal vault or an enterocele. At 52, I hate the thought of having to rely on a pessary for the rest of my life, but I couldn't face another surgery so soon. Has anyone dealt with a pessary? Are you supposed to have "pressure" or a "crampy" feeling while you're wearing it? The doctor said to remove it before intercourse. Will this become a "pain in the neck" in a few months? Also, how do you find a uro-gyn that is really good? Am I the only one in the world that has gone through 5 hours of this surgery and had this happen??? I am sooooo DISAPPOINTED !!!
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  #2  
Unread 10-22-2002, 11:09 AM
Another prolapse ALREADY

My mother (age 72) just started wearing a pessary. If you can feel it, either it's not in right or it's not right for you. She had to go back to her doctor once to get it right. Now she can't feel it at all. She did have to start doing Kegels, though, because now the she has it in the bladder is supported better and has a straighter path "out" so she has to be careful about incontinence. But she thinks the Kegels are helping.

I hope this helps a little bit until someone with more knowledge comes along.
  #3  
Unread 10-25-2002, 06:39 PM
Another prolapse ALREADY

I too am disappointed...had a Burch in Sep 1998 with A & P repair, a hernia repair in Apr 1999 only to have a uterine prolapse...sooo out with the uterus (TVH) in Apr 2002....I wanted my doc to open up my Burch incision and make sure all was well...he insisted it was not necessary and the burch was still good. Well, guess what??? By July I have a pretty big cystocele and a rectocele and I am so disgusted I haven't even called him yet about it....I am beginning to think there are no good docs in this town....my doc who did the Burch retired, but I guess he won't come out of retirement for me....haha....there are no uro-gyns here either....what to do? what to do????
I really don't want to have that surgery done again....it really was not pleasant! Hope you find your answers, and when you do, let me know!
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  #4  
Unread 10-29-2002, 09:05 AM
Another prolapse ALREADY

Terry, Can't tell you how much I appreciated you writing! I was in tears thinking I was the only person in the world that the surgery didn't work for. What to do??? My doc confirmed "something" has fallen - most likely either a vaginal vault or enterocele bulging into the vagina. Doctor told me another prolapse sometimes occurs 5-10 years down the road, but never so soon. I wonder if the doctor didn't do something correctly or if I was injured when another doctor was in a hurry and literally ripped the packing out 2 days following surgery. Guess there's no way to prove anything. .. Doc says there's 3 options: a pessary, vaginal surgery that is done mainly by "feeling", and abdominal surgery where mesh is sewn in. I'm probably not explaining it very well ... but the surgery should be done by a uro-gyn (which seem to be hard to find). Meanwhile, I was fitted for a pessary which bides me time to decide what I'm going to do. Personally, the pessary is a lot different than I imagined and not bad at all! If sized and fitted correctly, you do not even feel it and you forget that there's any prolapse at all! It's easy to remove for intercourse. Best of all, I can resume an active exercise routine with no worry or problems!!! I still plan to find a good uro-gyn sometime, but at least I can function normally while I get over this extreme disappointment and decide what to do!!! Thanks again for sharing your situation with me - it certainly boosted my spirits sharing this situation with someone who "has been there"! Kajsa
  #5  
Unread 10-29-2002, 11:42 AM
Another prolapse ALREADY

Hi Kaj,

I can relate! I had TVH and rectocele reapair in 2000 and now
have cystocele. The doctor offered to fit me for a pessary, but I tried that back a few years ago and was given this "huge" knob thing that I hated. Do you mind my asking what yours is like.
I have been told that there are numerous kinds out there and I should ask for a "ring" device. I am going to try to hold off on surgery also, but the pain is getting really excruciating, as I have to sit for hours and hours at work and my bladder is so low that it is pushing against the rectocele repair and making me really miserable! I feel like I'm sitting on a golf ball and it is stretching and pulling on my skin. OUCH!!! Sorry.....don't mean to be graphic

I am wondering, what is the difference in the bladder repairs ie.
burch and lift? The gyn didn't really get into the procedure, only that he can do it, but if the prolapse gets too bad,,,,I should let him know, because it gets harder to repair.



Nel
  #6  
Unread 10-29-2002, 02:18 PM
Another prolapse ALREADY

Nel, that sounds extremely uncomfortable! A pessary might be an easy solution if you don't want surgery. There are several different types of pessaries - the most common being a rubber circle (similar to a diaphram) with four holes in it - 2 small holes for any "drainage" and 2 finger size holes for removal. There are different sizes so you have to be fitted by your gyn. You fold it in half for insertion and insert it just as you would a tampon. Two to three times a week you insert an antibiotic type gel called Trimo-San with an applicator. I had to return to the doctor within 2/3 days to have it checked for comfort, and to see if it was irritating the vagina. (Sort of like a new pair of shoes - you have to wear it a few days to check for comfort!) With the correct size, however, you don't even know you're wearing it! I did find photos and info on them on a website, but I don't know that address offhand. If you plug in the word "Pessary" in search, several websites appear. I was in tears over the thought of a pessary as I equated it to my grandmother! I am still very disappointed that my surgery has partially failed, but the pessary has been a lifesaver until I figure out what I'm going to do.

Concerning the difference between the Burch and a lift ... I thought the Burch was a type of lift. My gyn described the Burch as a delicate balancing act. I really don't know. Meanwhile, find a good gyn (mine is female) to fit you with a pessary if possible for your condition. It's been a cheap, quick, and easy "fix" for my condition without surgery!!! Kajsa
  #7  
Unread 10-30-2002, 08:29 PM
Another prolapse ALREADY

hi..its me again.....I have been thinking about the pessary. It might be a temporary fix until I can think about another surgery. Aside from the fact that surgery is traumatic, I just can't afford to take time off work...I have a daughter in college and 3 other kids, and even tho I would get paid, I wouldn't have my commissions. In addition to the fact that I have had alot of time off for the other 3 surgeries in the last few years.
My grandma had a pessary and she was always saying she hated it. Although she was in her 70s and not sexually active. She had to go to her gyn every 3 months to have it removed and cleaned. She said it would stink....but you have made me think either she had a different kind or they have changed some....yours sounds no worse than a diaphram, which I have used. So maybe I should call the doctor for an appt.
I feel as though something is falling out, especially if I am on my feet,walking or cleaning etc...God knows I can't not clean!!! lol
My poor 16 yr old son has been carrying the laundry baskets and I think he is getting sick of it and so am I...but I think maybe I should never be lifting such heavy loads.
Just a warning to other sisters out there....I helped my DH lift our old washing machine whe we replaced it about 5 years ago...I felt a burning pain in my abdomen and next thing was the 1st cycstocele, rectocele, prolapse, hernia and I am still dealing with all of this....so a word to the wise...tell your friends, even if you think you can do what a man can do....don't!!! We are not built the same. There is a reason a man has more muscle!!!
So I will get off of my soap box and stop preaching....but thanks for the pessary info...I will think about it.
  #8  
Unread 10-31-2002, 09:46 AM
Another prolapse ALREADY

Terry, I was nervous to try a pessary, too, as my grandmother had horror tales about them. Other than another surgery, I had no other choice ... so I thought I'd at least give it a try. My gyn told me that I was young enough to put it in and take it out myself whereas older women have to rely on the gyn to do that. Therefore, I wear it only when I need to and clean it myself. It's not bad! To coin a phrase, I think they've "come a long way, baby"! Good luck!
  #9  
Unread 10-31-2002, 12:29 PM
Another prolapse ALREADY

Kajsa, thank you so much for the advise. I think maybe I will reconsider trying the pessary until I am ready for surgery.

Talbrig, I know how you feel about the pressure of trying to stand and do things. This thing is awful. I, too, can't take the time off work right now, I work a full-time and 2 part-time jobs with my husband laid-off from work for 1+ year. Yesterday, I was just beside myself wondering what we are going to do! but today I feel a little better. I decided that worrying is only going to wear me out even more...and I won't be able to keep going.

I am seeing the doctor in March to be rechecked for the cystocele, but I'M really getting uncomfortable. I also need to lose weight, so the pressure of dieting is really getting to me also. The gyn told me (in a nice way of course..he's a sweetheart) that losing weight will be a help and I told him, yes, I was on a diet, which I am. Then he suggested an exercise program. Don't people get it??? Like you said, even carrying laundry with a hernia is terrible!

Oh well,

Thanks again ladies and keep me posted, it helps to know other people understand and are going through the same thing.

Nel
  #10  
Unread 10-31-2002, 06:21 PM
Another prolapse ALREADY

you are right...they (especially doctors) think that you can just say "off with the weight" and you lose weight...I have been fighting that battle since I was 10! The only time I was ever thin was when I was dancing ballet as a teenager everyday for several hours....and even then I would make myself throw up if I perceived that I had eaten too much....At least now I have normal meals and eating habits, but a desk job, lack of exercise (due to lack of time and the cystocele issue) do not help. I live on a rural unlit road, so walking after dark is out. Getting the kids off in the morning, cooking supper etc...every minute s taken. I don't know how people do it...I just can't put another thing in my day. Well, I need to stop whining. But it is sooo hard. Thanks for listening.
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