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New here: complex hyperplasia w/o atypia - failed hysteroscopy New here: complex hyperplasia w/o atypia - failed hysteroscopy

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Unread 06-08-2018, 05:04 PM
New here: complex hyperplasia w/o atypia - failed hysteroscopy

Hello all -

Just signed up as I’m partway through the journey toward what I suspect will eventually be a hysterectomy, and I felt it was time to quit lurking.

I had some unusual bleeding between October and February, so called my doctor and went in. Blood tests have always shown I am not yet menopausal but I usually have maybe one period a year. My PCP ordered an ultrasound that showed a 9mm endometrial lining (after having been bleeding for two weeks straight) and an 8mm mass of some sort. I was referred on to a GYN, who did an in-office biopsy that came back as complex hyperplasia without atypia.

The GYN recommended we do further biopsying rather than just accept the initial, because she was concerned it was only two small random samples that may not be reflective of all that could be there. I underwent a D&C/hysteroscopy yesterday with the intent of more comprehensive biopsying and placement of a Mirena IUD.

I was still out of it when she spoke with my husband, who isn’t always the best at getting all the details. He said she told him that my uterus is oddly shaped and she could not see or access a portion of it; nor could she access the 8mm mass to see what it is. Based on my anatomy, she recommended I not have that procedure again and she said I am not a candidate for the IUD. (Does that sound normal?) She was able to take some further samples from the portion she could access and we’re waiting for labs on them now. I’ll meet with her again on the 20th.

I’m 56 and have just about every known risk factor for endometrial cancer that there is. Frankly at this point I’d just like to have a hysterectomy and get it over with.

I guess this is a bit rambly - looking for kindred souls and any experience and advice others can share with me. Does any of this sound similar to your experience?

Thanks for reading if you got this far!

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