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Complex hyperplasia with atypia - very lost Complex hyperplasia with atypia - very lost

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Unread 07-10-2018, 12:51 PM
Complex hyperplasia with atypia - very lost

Hello everyone! My name is Nicolette. I am 24 and scared out of my mind. I was seeing a fertility specialist because husband and I have been trying to get pregnant for over a year with no luck. I’ve had very irregular periods lasting from 2 days to months and then none at all. They did an endometrial biopsy to test for endometriosis and it came back as “complex hyperplasia with atypia”. My fertility doctor said it is precancerous and NOT cancer. He referred me out to a gyn oncologist and I have an appointment this Thursday. The wait is killing me. I am so scared. I want to have a baby and I keep reading about people needing hysterectomies. I already lost one ovary (left) due to a dermoid cyst at 18. I feel like the universe is playing a cruel joke on me. Anyone have this and have it successfully taken care of without a hysterectomy and even went on to get pregnant?
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Unread 07-10-2018, 04:44 PM
Re: Complex hyperplasia with atypia - very lost

First, take some deep breaths as it really does help. I'm so sorry you're dealing with all of this and at such a young age as well. But, I am very glad you're being referred to a gyn/onc as they are the experts and will best be able to advise you, including your fertility concerns. I had a different type of cancer but do believe there are hormonal treatments which might be an option, depending on your particular situation. So, please try not to let your mind race too far ahead of things.

For your gyn/onc appointment, write down any questions or concerns you might have and take someone else with you, if possible (another set of ears). Also, be sure to get copies of your path reports, etc., so you'll have them for your own reference. Sending hugs and calming thoughts your way.

Unread 07-10-2018, 07:19 PM
Re: Complex hyperplasia with atypia - very lost

It's pretty common for women who haven't had children yet to be offered progestin (hormonal) therapy if they have hyperplasia or even endometrial cancer that appears to be early stage. The idea is that you do the therapy for a certain number of months to see if it clears out the hyperplasia/cancer. *If* it does, then you get pregnant quick as you can after that.

In cases of cancer, usually women will be advised to have a hysterectomy after the birth, because there's a high likelihood that the cancer will come back. In your case where you have hyperplasia, your doc may be more willing to adopt a wait and see attitude.

My mother had progestin therapy for another reason. She was 79 at the time she was diagnosed with complex hyperplasia *without* atypia (a lower risk form than what you've got). Because of her age and other medical conditions, she was a poor surgical candidate, so she was treated with Depo Provera instead. She passed away five years later, but *not* from cancer.
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Unread 07-13-2018, 02:21 PM
Complex hyperplasia with atypia - very lost

I had the same diagnosis as you . I was referred to a gyno oncologist. They have me the option of hormone therapy or a hysterectomy. I had just had a uterine ablation that would make it difficult to biopsy the uterus later on and I already have four kids so I chose the hysterectomy.
There is another woman on here that was diagnosed around the same time as me and then found out that she was pregnant.
Unread 07-15-2018, 09:31 AM
Re: Complex hyperplasia with atypia - very lost

Hi Sweetie,
I'm so sorry you have to deal with this at your young age. I recall my doctor said that IF I were of childbearng age when my dx of complex hyperplasia with atypia hit and I wanted to become pregnant he would treat my case with hormones to try to push back the bad cells.He noted one would have to try to become pregnant soonest. He did say if one became pregnant, he would do a complete hysterectomy once the child is born.I also believe we've had such cases discussed on this stie and perhaps you can search for them using: complex hyperpasia with atypia, becoming pregnant, etc.
There is hope, Pls consult with several specialist (gynecologic oncologist) I'll be keeping you in prayer. Do keep us posted.

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