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Cystocele and Rectocele Symptons Cystocele and Rectocele Symptons

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Unread 11-05-2002, 09:24 AM
Cystocele and Rectocele Symptons

I had a TVH on 5/17/01 and have had problems ever since. I have had trouble sitting. I can only sit for a short period of time before my pubic bone, inside of me, buttocks and back of legs tingle and get numb.

I have been told I have a cystocele and slight rectocele and possible hernias that may be causing my legs and buttocks to feel this way.

I have also been told that I have excessive scar tissue on the vagina cuff.

Has anyone had any of these similar symptons? If so, what was causing them.

The doctor is recommending surgery, however, I have a fear I will end of worse than I am now. I am so sorry I had the hysterrectomy because I have been in pain ever since. However, I have reached my limit with dealing with the pain and discomfort I have now. I have tried a chiropractor, and physical therapy by a pelvic pain specialist and have received five or six trigger injections. Nothing has helped so far.

Thanks for responding.

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Unread 11-05-2002, 11:58 AM
Cystocele and Rectocele Symptons

I'm sorry to hear you are experiencing these symptoms I have not been dx with either of these but am feeling I have the begginings of a Rectocele Here are some links with some good info on this:

Surgical repair info on Rectoceles:

Hope this helps, I know how frustrating it can be to have this surgery only to have to face further problems and complications exp those that need surgical repair Please know we are here for you anytime....keep us posted...((hugs))
Unread 11-05-2002, 12:48 PM
Cystocele and Rectocele Symptons

((((Debbie)))))) I'm so sorry you've been having all of these problems since your surgery

I had my TVH for fibroids and to repair a stage 3 rectocele. In my case, the main symptoms were a bulge at the entrance of the vagina, back aches and poor posture, as well as problems with stress incontinence and diarrhea/constipation cycles.

In my case, having the repairs, as well as the hyst, has meant an end to most of my discomforts.

Sending lots of healing s your way. Please keep us posted.
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Unread 11-05-2002, 10:02 PM
Cystocele and Rectocele Symptoms

Dear Shari and Dany,

Thank you for all the information and support. I'll keep you posted on what I find out and decide to do.

Unread 11-06-2002, 06:16 PM
Cystocele and Rectocele Symptons

HI Debbie,

I have jus been diagnosed with a cystocele, and yes, sitting for long periods has been excruciating. I had TVH and rectocele repair in 2000 and feel a "bulge" and pressure from the cystocele pushing downward and putting pressure on the pubic area.

I am trying vagifem to help strengthen the tissues and also Kegals, but will need surgery. I didn't even think about the bladder as being the culprit, as the pain is so low, but once the Gyn explained, it made sense that this is pushing downward and can cause back aches as well.

I hope this info helps and good luck.

Unread 11-07-2002, 06:41 PM


Thank you for sharing. I'm sorry to hear you now have a cystocele too. When do you think you will have your surgery? What other symptons do you have?

I lower back hurts too. Especially by the end of the day.

How was the recovery from the rectocele. I hear it can be painful and take 6 to 8 weeks to recovery from that.

I am look at having the rectocele and cystocele repaired at the same time. In addition, I am going to have the scar tissue removed from the vagina cuff.

Thank again, and my thoughts are with you too.

Unread 11-09-2002, 12:10 PM
Cystocele and Rectocele Symptons

Hi Debbie,

Sorry I didn't get back to you sooner, I have been working around the clock, hubby out of work 1+ year and I am carrying the load right now, so surgery is out of the question. Today I am so tired working 7 days a week..sometime 12+ hours a day I feel terrible!

I am seeing the Dr. in March and I think at that time, I will set a surgery date, as the cystocele is really bothering me to the point where I can't even exercise any more, I just feel too much pressure and pain and I really need to lose weight, so right now I am on a strict diet trying to lose 1 to 2 lbs a week. I would rather not have too much extra weight on me going into surgery.

The rectocele repair was done with the THV in 2000, so It is hard to say how it affected my recovery, as I was recovering from the TVH at the same time, I can say though that I had to sit on a pillow and soft chair for at least 2 weeks after surgery at home and when I went back to work, because I sit for hours, I took a cushion with me. But, my gyn. now thinks that he probably should have done the bladder repair back then, becuase it is pushing on the rectocele repair and making things worse. He said that my bladder looked "high" when he did they surgery and he was afraid that if he did the lift at that time, It would end up too high and I would not be able to urinate. That is something I have heard other women complain about here on this site, and I wonder if that is a side-effect of the cystocele repair? That makes me nervous about having the surgery, but what can we do?

Good luck Debbie. how you are feeling better soon.

Unread 11-11-2002, 08:46 AM
Cystocele and Rectocele Symptons

Hi Nel,

Thanks for the information. I am sorry you are not feeling well either. I know how hard it is to work alot of hours and feeling terrible. It seems like I never feel well anymore. I am leaning towards waiting for surgery until after the holidays. I don't want to have it now and risk doing things that might ruin the surgery.

I haven't heard the piece about having trouble going to the bathroom because the bladder may be up to high. I'll do a search and look at my posts.

I hope you hang in there and find relief soon. I agree with you, I need to try to lose some wait too before the surgery. I need to lose alot but 10-20 pounds for me will surely help. I have gained weight since my TVH and from not being active from being in pain all the time.

Thank you again for sharing. I hope you find relief soon. Keep in touch.

Unread 11-19-2002, 04:53 AM
Repairs not always the sure "cure"

Wanted to inject food for thought here. Had hyster and some bladder repair and rectocycle all at once and appendix. removed. I had a few other "minor' problems like varicose veins in uterius, and adhesions on appendix (not endo ONLY affecting appendix) and prolapse to the back end. Ok thought the mid line lower (l) from belly button to pubic bone area, pelvic pain was being caused by these things BEFORE the surgery and that the pain would go away AFTER surgery. NOT. Eights months post opt (surgery in April) and still have the SAME "inner" "outter" pain and troubles in pelvic region with exact same PRIOR pain. Ok so the total hyster and bladder and bowel "repairs" didn't help this at all and so I now feel MUCH worse than before. ( prior to hyster I had no incontenince, or difficulty going no 1, no leakage or urgency just lower tummy pain centered in the middle, and MUCH tenderness in the "up inside the vaginal wall near the belly button close to the G spot area above the public bone inside and out" causing pressure, pain on touching inside and out during exams but not enough to forgo sex entirely, swelling, bloating and all the works if standing or sitting too long etc., (some chills and feelings of low grade fever also) and some pretty intense pain radiating outward from lower tummy above pubic area to lymp nodes in groin area) It is as if I had the surgery for nothing, the surgery gave me no relief from THIS pain at all, and in reality is getting much WORSE with each passing month. I am just as house chair bound as I was before the surgery and finding it very had to care for self or family, constantly tired, and HURTING. Here is the deal to consider, as I had this "pain" for almost three years prior and eight months AFTER surgery. This "pain" may be totally seperate from the stuff that a hyster can help. I have been referred to a urologist FINALLY after trying to get to the bottom of this for YEARS, doctor looking to rule out Interstitial cyst (sp?). I do not regret the hyster as I obviously had "other problems" too, am 48 have four children, need a BC method at this point in my life as not yet truly naturally menopausal at that time, was having some pretty heavy and house bounding periods, but still livable, AND wanted to avoid all the negs with cancer risks etc. so EVERYTHING was taken that they can. That being said I do REGRET that the surgery did not take care of THIS pain, and had anyone listened to me before now I might have "waited" for my hyster surgery and seen if THOSE problems were in fact not the MAIN source of my pain or were minor compared to the pain I STILL have after the surgery. I would suggest strongly that BEFORE you opt for these other two repairs they now say would stop the pain (and I am doubtful they are correct based on MY experience) , I would INSIST to your doctor that you be referred to a urologist to rule out this Interstitial Cyst... thingy and or treat the pain working with a urologist, and THEN see if the bladder and rectocyle seem necessary. My current doctor assures me that if I have this Interstitial cyct thing it WOULD explain or cause the pain I STILL have. It would affect the bladder, bowel workings, back and basically a majority of the pain from the waist down. In fact he did agree that the "tense" neck and headaches ALL could come in part from my body fighting or attempting to deal with this pain. He wants to "rule this out" as a cause, while we both know I have "other" things like bad back, shingles and all that questionably cause "pain" this pain as I described it to him is pretty in line with needing to see a urologist to rule this out. (bless him to all the heavens for NOT telling or treating me like it is in my head ALONE) . The trouble with us women is that we are complicated much more than men in the "lower plumbing" and all as we have baby ovens and all, so it is harder to tell exactly WHAT part of us is where the "pain" originates. I wish at least ONE of the numerous doctors I had seen prior to surgery "suggested" this urology investigation FIRST. I complained of pelvic pain over and over and over, and a sure sign is that I kept ASKING for them to check urine for "infections" and there weren't ANY. They actually got angry at me for returning again and again (many did not take a sample urine to just 'be sure" either) leading me to feel like their suggestions of a hysteroctomy was the ONLY choice I had, had they pushed further investigation more I might not be in this situation NOW, and STILL in pain. THIS condition is VERY painful, but hyster is often FALSELY promised as the "cure". This is just NOT so if you have this condition, they just don't want to take the time to thoroughly investigate "other" causes.
Unread 11-19-2002, 05:12 AM
repairs/hyster not always the answer

I wanted to add that EVERY doctor that previously (before and after hyster) that would give me a pelvic, many did not even bother to "look", was aware of the tenderness in "inner g spot" and pelvic region. I say g spot as that is exactly where the tenderness was. They would press on my tummy during and internal pelvic exam and I wanted to hit the ceiling. In retrospect that is a very distinct pain that combined with my always asking for a urine culture should have "tipped them off" to possible bladder problems NOT necessairly related to "uterine" pain. Doctors just irritate the heck out of me to be so "simple stupid" and how they do not listen, look, touch and INVESTIGATE.

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