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I'm not sure what to think I'm not sure what to think

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Unread 11-05-2002, 08:22 PM
I'm not sure what to think

Hello All,
I just had my hysterectomy 3 weeks ago, I am 26 years old.
The original reaason for my surgery was because I had horrible endometriosis that was eating me alive. After I went back to see my doctor he had a nice suprise for me, my pathology report!! As it turned out, I also have Leiomyosarcoma. Now, my doctor explained to me that he had gotten it all out, but I am still a bit afraid. I mean, if he went in there with intentions on doing a hysterectomy for endometriosis, how can I be sure that he actually got all the cancer??? I am really unsure what the "warning signs" for this cancer are, so if it recurs, I don't know how I will know. Any help? anyone?

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Unread 11-06-2002, 07:03 AM
I'm not sure what to think

It's very scary! And I'm sorry you have to go through it. Is your DR a gynecological oncologist? If not, a second opinion from one would not hurt. The GYN/ONC specialize in the female cancers. If I can be of any help, please let me know.
Unread 11-06-2002, 07:30 AM
Agree with Cindy

If your doctor was not a GYN/ONC I'd ask for a consult with one. Take your pathology report, surgical notes, and whatever else the doctor requests with you. I'm not sure about leiomyosarcoma so I'd recommend a consult.
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Unread 11-06-2002, 08:15 AM
I'm not sure what to think

{{ hugs }}

I also don't know anything about your type of cancer, but do agree with the other ladies about the gyn/oncologist. Of course you're afraid and you need to get answers to your questions.
Unread 11-06-2002, 08:36 AM
I'm not sure what to think

s faerydust

Welcome to Cancer Concerns.
My own cancer was ovarian, but like all the previous ladies, I highly recommend a consult with a gyn oncology doctor. They are the experts. Hopefully your cancer is gone and will require no other treatment. But it surely would boost your confidence to hear this from a gyn oncologist
If I recall, there have been two other ladies posting here with a leiomyosarcoma. If you click on the search at the top of this screen and write in leiomyosarcoma, some of their postings should become available to you.
From their posting you could find an email address. I know you would love to get in touch with them.
Best wishes to you. Stay in touch.

Unread 11-06-2002, 10:16 AM
thank all

Thanks everyone,
Its nice to know there is support.
Thanks for the advice, I will talk to the doctor about referring me to a GYN/ONC .
Thanks Karenann, I did a search on Leiomyosarcoma and found a few posts.

Unread 11-06-2002, 02:21 PM
I'm not sure what to think

Hi.. Sometimes we are all repeating the same information but as you can see... we all agree...If your gynocologist was not an oncologist gynocogist, PLEASE get a second opinion with one. MY family doctor told me, before I had my hysterectomy, If you want things done right the first time, go to the right surgeron and an oncologist gynocologist is definately the way to go. Hope all works out well and keep in touch.

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