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cancer/estrogen therapy cancer/estrogen therapy

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  #21  
Unread 10-28-2002, 09:59 PM
cancer/estrogen therapy

Geez, Ginny and Chris, I'm so jealous!

Maybe our different experience is partly based on how things were BEFORE - for me, things were just great - couldn't be better.

Anyway... it's inspirational... maybe I'm just going through a phase...

Lily
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  #22  
Unread 10-29-2002, 06:40 AM
cancer/estrogen therapy

you're right - before for me was such hell that i would avoid sexual intercourse at all costs - so compared to that, i guess anything would be better. i had read that after a hyster you'd have no feeling, etc. well... i guess i'm one of the lucky ones because everything is perfect.

by the way, i just ordered myself rose and geranium essential oils not only because of the aphrodisiac effect, but they are supposed to be good for general menopausal symptoms as well...

ginny
  #23  
Unread 10-29-2002, 01:01 PM
cancer/estrogen therapy

Ginny,

Thanks for the info on rose and geranium oils.... I'll give them a try. I have a feeling, though, that for me it's going to take "bgger guns"....

BTW, I went back to another thread where you list your supplements, and I notice you're taking Ginko - this actually IS something that's supposed to help with libido. I just started it last week - so maybe it will help...

Lily
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  #24  
Unread 11-09-2002, 09:50 AM
Karenanne!!!!!!!!!!!! :hug:

I am so incredibly deliriously insanely happy to read your post. I am 38 and facing surgery in 10 short days, imagine no hormone replacement for me. I read words like "vaginal atrophy" and begin to panic. I have a wonderful sex life with a wonderful man and am terrified of losing that. Yours is the first inspirational note I've seen! OMG, I think I love you!
  #25  
Unread 11-09-2002, 01:59 PM
cancer/estrogen therapy

I had an appt with my dr this week and she said I could use the Estring for vaginal dryness and atrophy. I have just started to notice that I needed help in this area. She said the estrogen from the Estring ring was an estrodial and would only impact the vaginally area and only trace/minimal amounts could possibly cross. She is very conservative and has said no to hrt for two years but said this would benefit and not cause risk. I am still contemplating it. I figure it must be ok after she was so adamant about me not using hrt ...on the other hand my onc/gyn surgeon was adamant that I should use oral estrogen.....so I may go half way and try to vaginal ring.
  #26  
Unread 11-09-2002, 02:58 PM
cancer/estrogen therapy

hi chris! this is exactly what my onc/gyn said regarding the estrodial - he wants me to call him the minute i think i need it, which so far, so good, but it's only been 8 wks since hyster. i'm going to go on hormone jungle and see if others have needed this or if there are people out there that haven't. ginny
  #27  
Unread 11-09-2002, 08:26 PM
cancer/estrogen therapy

ginny
Are you talking about oral estrogen or an estrogen cream? I am wondering about this ring of estrogen. My gyn assures me it won't fall out.....I didn't start to notice any meno symptoms until I was about 12 weeks post op....It came on very slowly. I guess I was expecting abrupt symptoms. Overall it hasn't been as bad as I had imagined.
  #28  
Unread 11-09-2002, 08:36 PM
cancer/estrogen therapy

i was under the impression it was a cream... maybe it is a ring of some sort - i just basically got the impression you put it in the vagina and maybe i assumed it was a cream. i wish i didn't even have to think about this and that my vit e and evn primrose and flax seeds will suffice. i hate that onc. said v.atrophy will DEFINITELY happen and that i will have to have the estrogen. he also is very, very conservative, but did say i would eventually need this (cream or ring? now i don't even know) ginny
  #29  
Unread 11-09-2002, 10:06 PM
cancer/estrogen therapy

Hi, I just wanted to chime in with two things (well, ok, three).

First, vitex isn't called chasteberry for no reason. While it help brings hormonal balance for women with ovaries, it's not probably a wise choice if the reason for taking it is to get more libido.

Second are the vaginal options. Vagifem (basically a pill that gets inserted) and Estring (est-ring) are designed to release very low doses directly to the vagina and that can affect the urinary tract (which contains many estrogen and progesterone receptors). Estring is perhaps the most controlled dose--it releases 2 mg of estradiol (what some take as a 1 day dose) over 90 days. So, some people who have very low levels report at first some systemic effects, but that levels off in a few days as the local tissues recover. In other words it's a very good bet if vaginal atrophy develops. Creams are messy and the levels can be harder to control.

And ok the third thing. I can't resist! I didn't earn my badge for nothing.

I'm on a low dose of estrace (estradiol in a pill)--and now and then a dab of over the counter progesterone.

When I went on it, I had been on nothing but black cohosh post-op for 6 months. I thought I didn't have symptoms (I didn't realize all the possibilities at the time). I went on it because at the time everyone thought it helped with heart disease and no one in my family has had cancer but me and everyone has heart disease. To my surprise, even the low dose radically improved my life. The urge incontinence left (my life had narrowed to the distance from bathroom to bathroom), my arthritis disappeared (I was having trouble climbing stairs), and the brain fog that was seriously affecting my job lifted.

When I have periodically quit--because I'd rather not have the worry after all--all three come back and my life is worse. So, with my rare slow-moving probably not estrogen related cancer, and a family riddled with osteoporosis (my mother has lost 5 inches in height) and other problems that may be connected to low estrogen, I am sticking with my low dose for now. It's as educated a decision as I can make it and it applies only to me and the risk factors in my family. I would never say it's the right decision for someone else because what I've learned after hanging around here for three and a half years is that every journey is individual. It's confusing :run3: because there aren't easy answers.

Oh, and do remember that the women that post on either the Jungle or the Desert Oasis are the women with problems. The women who are fine don't post. So neither board is a good clue about your individual experience, just great places to get support.
  #30  
Unread 11-10-2002, 12:23 AM
Inspiration

I spoke with a 50ish woman tonight who had her hyst. 12+ years ago, has never taken HRT, and is happy and healthy. Said her sex life only improved!
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