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Upcoming hysterectomy: Keeping ovary vs not? Upcoming hysterectomy: Keeping ovary vs not?

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  #1  
Unread 03-19-2019, 07:34 PM
Upcoming hysterectomy: Keeping ovary vs not?

Can someone tell me why you decided to have a total hyterectomy or if you decided to keep your ovarys for hormonal reasons? Can you explain why you did either way? Any insight is greatly appreciated.


I have added my back story incase you wanted more info...I however can get wordy. I had a double salpingectomy(sp) and my right ovary removed in 2015 due to a cyst that wrapped itself around both tubes and started to grow in into my uterus. I kept my left ovary and uterus to hopefully do IVF in the future. Well... I went to obgyn in February & she decided to do a ultrasound that showed my lining at 22mm then did a endometrial biopsy. She told me at that appointment that I would need to proceed with a Da Vinci (sp) hysterectomy (which I guess I have come to terms with.) I got a call from the OB office today stating that my results had abnormal cells but not cancer and that I needed to come in she set an appointment up in April (so I am assuming no big deal??)
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  #2  
Unread 03-21-2019, 08:27 PM
Re: Upcoming hysterectomy: Keeping ovary vs not?

Hi Imp83 to HysterSIsters!

I am so glad you found this site.

First off, some term corrections because it can get very confusing. A total hysterectomy refers to the removal of both uterus and cervix, which is simply the neck of the uterus. If you leave the cervix and remove the uterus, it is called a partial, or supracervical, hysterectomy. Removal of an ovary is call oophorectomy, with both being removed called a bilateral oophorectomy . You are correct that the removal of the tubes is called a bilateral salpingectomy. Here are the hysterectomy definitions.

If your ovary is healthy, you should try to keep it. It will continue to produce hormones for you. Here are articles that may provide information:
Should I Keep My Healthy Ovary?
What Ovarian Hormones Do for You
25 Health Risks Related to Oophorectomy and Surgical Menopause


I was rudely dumped into surgical menopause when I had my TAH BSO at age 46 - no choice for me. For me it was MISERABLE. My GP put me on HRT and it gave me my life back. But, it is not the same as my own hormones. If I could have, I would have kept one or both ovaries.

I have no direct experience with abnormal endo biopsy. As with any abnormal growth, it sounds as if your doctor just wants to address this sooner rather than later.






If you lose your last remaining ovary, you will be dumped into surg
  #3  
Unread 03-21-2019, 08:38 PM
Re: Upcoming hysterectomy: Keeping ovary vs not?

Definitely see what the "abnormal cells" results are about, but if your ovary isn't involved, try to keep it. I had the DaVinci surgery a week ago, and kept both ovaries. I did not want to be forced into immediate menopause, for a variety of reasons. Estrogen has many benefits, keeps your tissues from drying out, etc.,

However, when I signed the consent forms (which you will do as well) I made it clear to my doctor if there was even a hint of anything potentially cancerous, she could take "anything that isn't necessary to preserve my life" -- ovaries, gallbladder, appendix, whatever she feels like taking out.

It didn't come to that, I still have both ovaries. The recovery is not the "easy breezy" laproscopic procedure I expected but I am on the mend, and this forum has been very helpful (especially the "recovery" thread which is populated with people that have surgery the same week you do).

Good luck!
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  #4  
Unread 03-21-2019, 10:47 PM
Re: Upcoming hysterectomy: Keeping ovary vs not?

  Quote:
Originally Posted by Imp83 View Post
I got a call from the OB office today stating that my results had abnormal cells but not cancer and that I needed to come in she set an appointment up in April (so I am assuming no big deal??)
It sounds like your results might have shown some type of endometrial hyperplasia which can be designated as either simple or complex and with or without atypia. The most concerning of these would be complex hyperplasia with atypia (CAH). It's always a good idea to get copies of your path results, so you'll have them for your own reference. Depending on your specific diagnosis and history, there could be options available short of a hysterectomy. Here's a good page with info on hyperplasia and its treatment: https://www.acog.org/Patients/FAQs/E...al-Hyperplasia

You'll have more information once the doctor reviews things at your next appointment and will be in a better position decision wise. In cases where gyn cancer has been diagnosed or is suspected, we do recommend consulting a gynecological oncologist, if possible. They are the experts in this area and are also very skilled surgeons who'd be able to handle anything that might present itself.

Also, we do have a Cancer Concerns forum you're welcome to check out, if you'd like. We cover everything there from abnormal paps through dysplasia to actual cancer and beyond, and there's lots of good information and ladies who've been there/done that to share their experiences.

The "good" news here is it sounds like you're catching things when they are most treatable. Sending hugs and every good thought your way.
  #5  
Unread 03-22-2019, 11:42 AM
Upcoming hysterectomy: Keeping ovary vs not?

If it won't cause you further emotional or physical torment , I would recommend keeping the ovaries. This comes solely from knowing some key roles that the ovaries perform for the body (estrogen, without it, you are "higher risk" of developing osteoporosis and coronary heart disease), not to mention the decisions that need to me made about HRT and menopause.

Some keep theirs and life keeps going with no funny surprises. Others have their ovary become a big issue later and in hindsight would have preferred to remove them earlier.

Life is the wildcard and unfortunately we don't get the rewind button to change our minds later. Whatever you choose, this community will be here to cheer, support you.

My total hysterectomy wasn't really a choice, more a doctor's orders. My endometrial biopsy showed precancerous cells, then my hysteroscopy confirmed adenocarcinoma. Next thing I knew, I was on the operating table and then I no longer had my reproductive organs and was in menopause.

It's a lot to deal with. Physically and emotionally.
  #6  
Unread 03-22-2019, 06:01 PM
Upcoming hysterectomy: Keeping ovary vs not?

  Quote:
Originally Posted by LNJ77 View Post
Definitely see what the "abnormal cells" results are about, but if your ovary isn't involved, try to keep it. I had the DaVinci surgery a week ago, and kept both ovaries. I did not want to be forced into immediate menopause, for a variety of reasons. Estrogen has many benefits, keeps your tissues from drying out, etc.,

However, when I signed the consent forms (which you will do as well) I made it clear to my doctor if there was even a hint of anything potentially cancerous, she could take "anything that isn't necessary to preserve my life" -- ovaries, gallbladder, appendix, whatever she feels like taking out.

It didn't come to that, I still have both ovaries. The recovery is not the "easy breezy" laproscopic procedure I expected but I am on the mend, and this forum has been very helpful (especially the "recovery" thread which is populated with people that have surgery the same week you do).

Good luck!
Thank you for all of the good information! I hope you are doing/ feeling better each day. I like the idea of the consent to specify that if anything is questionable to take it out.
  #7  
Unread 03-22-2019, 06:06 PM
Upcoming hysterectomy: Keeping ovary vs not?

  Quote:
Originally Posted by MyUterus82 View Post
If it won't cause you further emotional or physical torment , I would recommend keeping the ovaries. This comes solely from knowing some key roles that the ovaries perform for the body (estrogen, without it, you are "higher risk" of developing osteoporosis and coronary heart disease), not to mention the decisions that need to me made about HRT and menopause.

Some keep theirs and life keeps going with no funny surprises. Others have their ovary become a big issue later and in hindsight would have preferred to remove them earlier.

Life is the wildcard and unfortunately we don't get the rewind button to change our minds later. Whatever you choose, this community will be here to cheer, support you.

My total hysterectomy wasn't really a choice, more a doctor's orders. My endometrial biopsy showed precancerous cells, then my hysteroscopy confirmed adenocarcinoma. Next thing I knew, I was on the operating table and then I no longer had my reproductive organs and was in menopause.

It's a lot to deal with. Physically and emotionally.
I am so sorry to hear that they ended up finding adenocarcinoma during with your path results. Did your hysterectomy take care of the cancer or are you going through any further treatments? Thank you for your insight.
  #8  
Unread 03-22-2019, 06:11 PM
Upcoming hysterectomy: Keeping ovary vs not?

  Quote:
Originally Posted by monami View Post
It sounds like your results might have shown some type of endometrial hyperplasia which can be designated as either simple or complex and with or without atypia. The most concerning of these would be complex hyperplasia with atypia (CAH). It's always a good idea to get copies of your path results, so you'll have them for your own reference. Depending on your specific diagnosis and history, there could be options available short of a hysterectomy. Here's a good page

You'll have more information once the doctor reviews things at your next appointment and will be in a better position decision wise. In cases where gyn cancer has been diagnosed or is suspected, we do recommend consulting a gynecological oncologist, if possible. They are the experts in this area and are also very skilled surgeons who'd be able to handle anything that might present itself.

Also, we do have a Cancer Concerns forum you're welcome to check out, if you'd like. We cover everything there from abnormal paps through dysplasia to actual cancer and beyond, and there's lots of good information and ladies who've been there/done that to share their experiences.

The "good" news here is it sounds like you're catching things when they are most treatable. Sending hugs and every good thought your way.
Thank you for all of the good information & pointers to searches. I am waiting on them to post my path report to my chart. I do better when I have something to research/focus on and go in with questions, but my doctor has not released it yet. Which is frustrating.
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