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update on me....... update on me.......

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  #1  
Unread 11-12-2002, 09:28 AM
update on me.......

Hi girls.....well I thought I would bring you all up to date on what's been going on here with me since the surgery.(yeah I'm gonna brave it and hope the god's of pain are just not listening )

While most of the really severe pain that made it like i couldn't walk by the end of the day seems to have gone I am still having some problems and figured where better to ask if anyone has the same one's or and ideas what to do about them!

My bladder is still freaking out like crazy and am still on the ditropin XL if I try to stop it the symptoms get way worse......bladder spasms and severe burning.....we've tested me repeatedly and there doesn't seem to be any infection left so I guess it's my IC, but I am not going to the uro because I know he'll want to do a hydrodistension and I am NOT going back into the OR.....(he told me two years ago I would be back within a year for another one because the pain would be so bad)

My bowels are acting funny again.....when I get up in the .am I get intense cramping and have to go......and then about 45mins later it all happens again....and it's fairly painful????

and while my shingles have cleared up for the most part with the antiviral I"m now suffering from really severe joint pain in my hips, wrists,knees and ankels.......all bilaterly (both sides).

sorry to whine I just wondered if anyone knew what the heck is going on with me??

thanks girls!
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  #2  
Unread 11-12-2002, 09:45 AM
update on me.......

{{{Gidge}}}
Does your gp have an explanation for the continuing bladder problems? How long does your bout with IC usually last? I'm sorry I don't know too much about IC.

My bowels are in an uproar since my last surgery also. I think surgery puts alot of stress on my insides and it takes awhile for everything to settle down.

I wonder if the achey joints could be hormone related???

I am glad that you don't have the can't walk, drop down pain. I hope that all your other problems will clear up for you soon so that you can be totally painfree!!!!!

  #3  
Unread 11-12-2002, 09:57 AM
update on me.......

And I'm very grateful for the pain that's gone.....don't get me wrong.....I just don't get all these new symptoms.

The longest I"ve had an IC "flare" last is two weeks, we're now into week 7 and the ditropin makes me feel like my head is full of stuffin'......I don't want to take it anymore and I just wonder if it has anything to do with the biopsies they took of my bladder???

My GP thinks (as of two weeks ago anyways) that it's fall out from the surgery, mind you I haven't mentioned the bowel symptoms for fear of them staying

the joint pain is pretty intense especially in my hips and ankles and wrists......deep deep ache......?????

thanks for the 's sweetie!!
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  #4  
Unread 11-13-2002, 09:23 AM
update on me.......

Gidge,
I still wonder if the achey joints are hormonal. I've seen alot of posts in The Jungle from women complaining about aching joints. I've been lucky in that that's the one problem I haven't experienced.

Or aching joints are a symptom of Fibromaglia (sp?) I think??? Might be something for you to read up on.

My bowels have always been whacky, more so in the last 6 months and no one seems to have an explanation. Doc Cutie did speak with my GI doc and he wants to see me. So here I go again

  #5  
Unread 11-13-2002, 09:32 AM
update on me.......

I hear ya Kim (we're doing the izzy dance!!)

It very well could be hormonal but it is very extreme especially in my hips it's such a deep ache......but I'm also up by about 4:30am every morning, so I know my hormones are going nutso.

the bowel thing.....well I'm trying to ignore it but I don't know how long I can......the rest of the day seems pretty good it's just first thing in the .am???

thanks for the reply!!
  #6  
Unread 11-13-2002, 09:37 AM
update on me.......

Gidge...

I have to agree with Kim here.....on the achey joints. I to have seen lots of posts about such a problem about 6-8 weeks post from surgery and noticed that it does seem to lesson when the hormones get back to a little more what we are used to.

On the bowel situation....I know for me at each surgery the last two times I had a hard time in the begining of recovery then they seemed to settle down and again at about 6 weeks started to go a little off again. After that it took about 3 weeks for me to start noticing a Normal routine again. So far with this surgery my bowels have been acting wonderfully....no pain nor constipation or anything...strange for me..

Your bladder In my opinion..( for whats' it's worth) sounds like it's still protesting. You had a lot of work done in that area and as the swelling inside lessons and the bladder has less cush and has to settle more where it is going to be I would think the more you would feel it. Is there more pain when full? Any dribble's? that would tell you more to about which way this is leaning...

These are just my thoughts Sweetie...and I could be way off..but thought I'd pop in and let ya know I was thinking of ya!!!

tons of

Dawn
  #7  
Unread 11-13-2002, 09:57 AM
update on me.......

thanks for your reply Dawn

Good to know that the bowel thing happens to you too.....I so want to think everything will eventually resolve itself!

The bladder thing is weird, I have spasms, and burning but for the first time in awhile very little dribbles???? So I will keep taking the ditropin but I don't like it.......makes me soooo drowsy!!

and the aches......well I hope it's hormones and sorts it self out cause I feel like I'm about 80 right now!!

thanks again for taking time from your recovery to think of me....there are some definite improvements with me, I just want the rest of these funny symptoms to go away!!!
  #8  
Unread 11-13-2002, 10:06 AM
update on me.......

(((Gidge))),
I would think the bladder and bowel problems are after effects from your surgery as well. Like the others said, you had some extensive repair done and it can take a loonngg time to fully recover The Anesthesia alone takes months to get fully out of your system and that can cause sluggish bowels and such. Any pelvic surgery irritates our bladder, it's a very sensitive organ! All this could've also caused your Hormones to get out of balance, thus the achy joints.
Surgery or Trauma can bring on Fibromyalgia, it's worst symptom seems to be stiff, achy joints If it continues to worsen I would definately look into this possibility. Here's some good links on it, I dont remember if I've posted them for you before but just in case:

http://abcnews.go.com/sections/livin...ibromyalgia980
408.html
http://fibrohugs.com/forum/new_fibro_info.html
http://www.co-cure.org/index.htm
http://hometown.aol.com/flyerandflyer/wtvault/FIB.htm
http://www.mylifepath.com/topic/fibromyalgia/
http://www.fmaware.org./
http://www.shaysnet.com/~wmson/index.htm
http://www.vrainn.com/Stuff/Fibro/fmasses.txt
http://www.geocities.com/Wellesley/3466/Fibro.htm
http://www.americanwholehealth.com/l...myalgia/fms.ht
m
http://www.myalgia.com/
http://aolsvc.health.webmd.aol.com/c...W=fibromyalgia
http://www.nlm.nih.gov/medlineplus/e...pedia_A-Ag.htm
http://www.muhealth.org/~fibro/
www.fibromyalgia.com
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html
http://www.tidalweb.com/fms/
http://www.muhealth.org/~fibro/fm-pt.html
http://familydoctor.org/handouts/070.html
http://www.ukfibromyalgia.com/
http://chronicfatigue.about.com/cs/fibromyalgia/
http://www.rheumatology.org/patients.../fibromya.html

Good Luck Gidge, I hope you find improvement with these symptoms each day....please keep us posted...(((hugs)))
  #9  
Unread 11-13-2002, 10:22 AM
update on me.......

thanks Sheri

it's not like Fibro hasn't crossed my mind......my Mum has MS and two of my aunts have RA and another has Lupus......

oh and the one really weird place I've been aching (this was before the surgery too) is my collarbone.....what's with that??

so yeah if it persists I"m going to ask to see a rheumy, we've tested me twice for Lupus and RA but he has never mentioned Fibro I wonder why?

I really hope this is just my body still adjusting to recovery....when you think about it I was still at home at this point after the hyst.....so being back to work for 3wks has to have some impact?

thanks for the input and the links I'm going to check them out now!! 's!!
  #10  
Unread 11-13-2002, 10:35 AM
update on me.......

Sheri, ok so I have now checked out some of those links and am not jumping to any conclusions......but wow......that's me in a nutshell right now, even the collarbone pain......what do they treat Fibro with????? Thanks for the info!!
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