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please help educate me please help educate me

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  #1  
Unread 11-17-2002, 01:40 PM
please help educate me

I am so new to all this stuff.

I am overwhelmed a bit. I had a pap in August and didnt hear a thing. When my insurance said they were not paying for my yearly pap .. I called the pathologists office to see if they coded it wrong and in a whispery voice the billing clerk told me to call my GYN today. She could have gotten fired for telling me but I am glad she did.

Anyhow.. I found out Oct 14th.. <same day as talking to billing clerk> that I have high grade dysplasia after never having an abnormal pap before. I scheduled a colposcopy for the same week and basically Gyn told me that... it confirmed high grade dysplasia and that it was multi focal <more than one area> on the cervix. That is about all the info that I have. Since I am not having more kids and the GYN recommends and TVH <leaving ovaries> that is what we have scheduled. GYN says that since it can not be tied to a virus or infection and he is uncomfortable that I went so quickly to high grade dysplasia he thinks a TVH is the way to go.

He didnt give me any of those number that you all seem to know....like CIN or anything. I really feel the need to know more before my surgery on Dec. 17th. He just said it was precancerous changes. SO... I am sorry this is long but please give me whatever advice and wisdom you have.

Thanks for reading what turned out to be a book!!!

Darlene
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  #2  
Unread 11-17-2002, 02:15 PM
Darlene

I am so sorry to hear about your problems. My first impression was why wasnt the insurance going to pay for your pap?? Has your GYN reffered you to a GYN Oncologist. If I were you I would ask for a second opionion, with it being a GYN Oncologist. Before you schedule anything. I would feel more comfertable, with a Gyn oncologist doing the surgery. Because they deal more with this on a day to day manner, they know what to look for, various ways of treating it. You may even want a third opinion. Just remember this is your body and you deserve the best. As one of the sisters here has in her signiture "If Gyn cancer is suspected, Please consult with a Gyn Oncologist!!!!"
  #3  
Unread 11-17-2002, 02:27 PM
please help educate me

I wasnt clear was I? Sorry about that. My insurance did not pay for my pap because it wasnt considered a yearly pap once it had to be read by a pathologist. It then turned into a medical diagnosis and the cost of it was applied to my deductible.

For once in my life.. I am glad that my insurance company didnt pay for something.

I question if my Gyn would have called me or if it would have been a whole year until I knew. When I asked him about it.. he assured me that they were going to call me THAT day and I just happened to beat him to making the phone call. I have been through many emotions about this.. and I have decided that I have to let it go and think about everything else. My best friends husband has appointed himself my "angry" person. If I want to be angry that they didnt call me.... I call him and he rants and raves about it and I feel better.


Darlene
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  #4  
Unread 11-17-2002, 02:50 PM
please help educate me

Hi Darlene,

My dr didn't use the CIN terms either. He used mild, moderate and severe which translates into CIN1, CIN2 and CIN3. High grade would be CIN3. If you go to Webmd.com and search for "cervical dysplasia" you will find some easy to understand articles about the condition.

I agree that you should consider a second opinion from a GYN oncologist. The oncologist may agree with your GYN or might give you other options.....and you'll have a chance to ask all the questions that you may want answered.

Sending some 's your way.
  #5  
Unread 11-17-2002, 03:01 PM
please help educate me

s Darlene

Welcome to Hystersisters and Cancer Concerns. Many of the ladies that post here share your diagnosis. I am so glad that you discovered your own PAP results before your next checkup. WOW!!! Did that doc apologize or really expect you to believe he was planning to call that day??!!
Since a trust issue is already at play here, I highly recommend you get a second opinion and possibly treatment from a gyn oncologist. They are the experts.
Best wishes. Keep in touch.

karenann
  #6  
Unread 11-17-2002, 04:16 PM
How Fortunate You Called!

I wonder too if he was going to call you or if it was just so many words. That's three months! I would also recommend a GYN/ONC at least for a second opinion since they're the experts and the ones you want for surgery. Please keep posting questions or updates.
  #7  
Unread 11-17-2002, 06:04 PM
please help educate me

Hi Darlene,
Glad you found out about your condition but sorry it had to be that way..Anyway we all are in agreement on this one. Please see an oncologist gynocologist for a second opinion. They are the specialists in this field.
Hope all works out well and keep us posted.
Rosalie
  #8  
Unread 11-18-2002, 08:33 PM
please help educate me

{{Darlene}}

I can't add anything to what the others have said so I'll just say... What they said!

I can certainly understand how frustrated you must be with the way this has all happened and hope you'll be able to find some information that will help.

Please keep us posted. I'll be keeping you in my thoughts and prayers.

{{Hugs}}

Vicki
  #9  
Unread 11-19-2002, 04:06 AM
please help educate me

Thank you all for your advice and your well wishes. I will keep you updated. I am so thankful that I found this site.



Darlene
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