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This is too much to take and so much more ahead This is too much to take and so much more ahead

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  #1  
Unread 10-01-2021, 12:45 PM
This is too much to take and so much more ahead

I finally had an appointment to see the oncology gynecologist after learning my biopsy came back as endometrial adenomacarcenoma. I’d been counting the days down to my appointment on the 9th. They called me today telling me there was a schedule change & they can’t see me til the 12th. I pleaded with her & she told me she’d see what she could do and would call me back. Nobody called so I called there fearing like many Fl. doctors, they’d close early on Fridays. It rang and had me waiting at least 10 min. and an automated response said they’d call back in the order calls were received. The finally called back an hour later & told me the only person who can schedule appointments was gone & they close at 1:00. I had here look for where I’m scheduled, & I’m now not on the schedule at all. I’ve been struggling waiting for this appointment & now it’s not going to happen on the 9th & who knows if the 12th hasn’t been filled. I know he’s only on the office Tuesdays & Fridays. Now I have to wait all weekend in limbo as to when I’ll be seen. Friends have suggested going to a different dr., but my gynecologist highly recommends his skill and bedside manner. I just want to get this total hysterectomy done! I’ve alreDy had a transvaginal ultrasound. Did anyone have to have any other testing done prior to surgery? My mother is on hospice care & this is all just too much. I’m in tears over this setback
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  #2  
Unread 10-01-2021, 07:07 PM
Re: This is too much to take and so much more ahead




That's so horrible. I hope it gets straightened out first thing Monday. Here, medical appointments of all kinds are getting canceled, rescheduled, put off, etc. because of staffing shortages and people getting covid or quarantined

If you don't get a call first thing Monday (or Tuesday if Monday's a holiday), I think I'd call late morning.

If still no firm appointment date and time, if the doctor's office is in a hospital, there should be a social worker and/or Patient Representative/Advocate that can help.

I had the "usual" pre-op stuff like an EKG, chest x-ray, bloodwork, vitals, and medical questionnaire, and a lengthy pre-op appointment with the gyn onc.


May God bless you with healing and His perfect peace.
  #3  
Unread 10-01-2021, 08:15 PM
Re: This is too much to take and so much more ahead

Thanks for your response & suggestions. He's not in a hospital, but if I don't get anywhere scheduling on Monday, I plan to try to get to the office manager.
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  #4  
Unread 10-04-2021, 11:08 AM
Re: This is too much to take and so much more ahead

So here's an update. I called this morning and low and behold, they had a cancellation for tomorrow. As much as I didn't want to wait, now that the appointment is tomorrow, my anxiety has greatly increased. I'm guessing he really won't be able to tell me anything until the surgery is done and pathology report is in, but I'm still nervous about what he may say lies ahead.
  #5  
Unread 10-04-2021, 07:49 PM
Re: This is too much to take and so much more ahead




How wonderful that you got someone's cancellation.

Make sure you write down your questions and concerns tonight and take the list with you tomorrow so you don't forget anything. No question is stupid, so list and ask everything. This will help reduce your stress/anxiety about tomorrow and your future treatment. Far less cancerhead, too.

May God bless you with a great appointment, reassurance, and His perfect peace.
  #6  
Unread 10-05-2021, 08:53 PM
This is too much to take and so much more ahead

  Quote:
Originally Posted by Graymare2 View Post
I finally had an appointment to see the oncology gynecologist after learning my biopsy came back as endometrial adenomacarcenoma. I’d been counting the days down to my appointment on the 9th. They called me today telling me there was a schedule change & they can’t see me til the 12th. I pleaded with her & she told me she’d see what she could do and would call me back. Nobody called so I called there fearing like many Fl. doctors, they’d close early on Fridays. It rang and had me waiting at least 10 min. and an automated response said they’d call back in the order calls were received. The finally called back an hour later & told me the only person who can schedule appointments was gone & they close at 1:00. I had here look for where I’m scheduled, & I’m now not on the schedule at all. I’ve been struggling waiting for this appointment & now it’s not going to happen on the 9th & who knows if the 12th hasn’t been filled. I know he’s only on the office Tuesdays & Fridays. Now I have to wait all weekend in limbo as to when I’ll be seen. Friends have suggested going to a different dr., but my gynecologist highly recommends his skill and bedside manner. I just want to get this total hysterectomy done! I’ve alreDy had a transvaginal ultrasound. Did anyone have to have any other testing done prior to surgery? My mother is on hospice care & this is all just too much. I’m in tears over this setback
I had the same thing. Feb. will be three years. I had the biopsy, ultrasound and prior to surgery a CT scan. I had to wait about a week. I can tell you that at the time I was terrified but I kept telling myself that the days before I had confirmation I was happy and the cancer was there I just didn't know it. That helped me keep sane. I can also tell you that for me, looking back I didn't think I would be where I am now. Healthy, going to the gym etc. You will get through this and be stronger! Prayers for you. Hang in there. There is a light and blessings ahead.
  #7  
Unread 10-06-2021, 02:16 PM
Re: This is too much to take and so much more ahead

Setbacks in this process can be so frustrating. I got the runaround and was misdiagnosed for almost a month before I sought out a new provider and wow, it has happened fast after that!!! Preoperatively, I had multiple CT scans, blood tests, two rounds of chemo and then a massive surgery that I am only 3 weeks recovered from and now time for more chemo! So, once you get going, sometimes you really get going fast!

Best of hope to you!
  #8  
Unread 10-06-2021, 06:50 PM
Re: This is too much to take and so much more ahead

I was Diagnosed with Endometrial adenocarcinoma grade 2 in mid March 2021. It knocked the wind out of me! I definitely know how difficult the wait was. My regular gynecologist ordered blood work (ca125) and a ct scan before I even had an appointment scheduled with the gynecological oncologist. I had a transvaginal ultrasound and a biopsy prior to/that led to the diagnosis. But it took 2.5 weeks to get in to the oncologist and then my surgery was scheduled for 3 weeks after that! The wait was terrible! But in the midst of all the stress I got sick with Covid! So in a way it worked out as I was recovered before I had the consult with the gyno oncologist. (Any sooner and I would have had to reschedule) After that initial visit the only other pre op visit was for surgery clearance and that did include more blood work and an ekg. Oh and a covid test 3 days before surgery but since I had recently been sick with it they didn’t have me do that step. The ct scan was to look for evidence of spread to other organs and the initial blood work measured the ca125 level. After surgery they indicated about a week for pathology to come back. Again more waiting. But by then I had made up my mind to focus on recovery from surgery and not to think too far ahead. Thankfully it came back as good as possible with no chemo or radiation ordered. I Have to go for checkups/monitoring every 3-6 months for 5 years. I can say now that even though there will always be a slight worry of the cancer coming back...it has only been 5.5 months and I am back to normal physically. Recovery was not always easy but not as bad as I expected since I always manage to think the worst. So sorry you are going thru this, Praying all goes well, you will get thru this!
  #9  
Unread 10-10-2021, 10:19 AM
Re: This is too much to take and so much more ahead

(((Graymare2))) I know this all seems overwhelming, but you CAN do this! And, you've found a great bunch of ladies here.


  #10  
Unread 10-10-2021, 10:26 AM
Re: This is too much to take and so much more ahead

Thank you all. I am anxious and feel like I'm falling into a depression. Has anyone else experienced feeling sorry for yourself? I feel like I shouldn't feel sorry for myself & should be gearing up to fight this. I initially think I was in shock that it was happening, but now only occasionally feel that way. My support system is limited and I will be recovering from my hysterectomy living alone.
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