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Closed Thread
  #1  
Unread 12-15-2002, 06:01 AM
Fistual

Hi,
I am 3 weeks post op from TAH-BSO, Appendectomy due to adeno, endo, numerous cysts and fibroids. New dr said it was a difficult surgery. Old dr diagnosed me as peri menopausal for the last 2 years. Last week sprung a leak and now having surgery Tuesday for fistual in the bladder the size of a dime. Uro is going in through stomach and will graft from stomach lining fat while gyn is assisting vaginally. Does anyone know how long to expect to be in hospital. Uro said day or 2 longer than hyster stay but they keep down playing this surgery. They say it is a piece of cake compared to hysterctomy. I was only in hopital 3 days then.
Thanks,
Terry
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  #2  
Unread 12-15-2002, 06:29 AM
Fistula

((Terry)),
I'm sorry you will be having more surgery I dont have any personal experience with this but there have been several other Sisters here who have, I'm sure they'll be along shortly to share their experiences. Here are some links on Fistulas & their repair:

http://www.emedicine.com/med/topic3323.htm
http://www.geocities.com/dinimerz/rectovagina
http://www.emedicine.com/med/topic3092.htm
http://www.urologyweb.com/Production...al_Fistula.htm
http://www.sgsonline.org/abs/pa15.htm
http://www.journal-obgyn-india.com/i..._cases_183.htm
http://www.upurology.com/dr_madjar.htm
http://www.mcevoy.demon.co.uk/Medici...ncntUFist.html
http://www.mdbrowse.com/Speciality/Urology/Fistula.htm
http://www.idrc.ca/books/focus/773/bello.html
http://www.medhelp.org/perl6/urology...es/30262a.html
http://www.medhelp.org/forums/urology/archive/2171.html
http://www.sgsonline.org/abs/pp26.htm

Good Luck Terry My thoughts & prayers will be with you on Tues that all goes well along with a speedy recovery Please post when you can and let us know how your doing...((hugs))
  #3  
Unread 12-15-2002, 11:17 AM
Fistula

Hi Terry there is a group of wonderful ladies here who have been supporting each other through this fistula ordeal... you can find them on this thread:

https://www.hystersisters.com/vb2/sho...threadid=83616

This is the third of three threads that chronicle their experiences. If you want to read the first two threads (they are very long, but contain tons of information), here are the links:

https://www.hystersisters.com/vb2/sho...threadid=73266

and

https://www.hystersisters.com/vb2/sho...threadid=80458

I'm sure they will be able to answer your questions about what to expect. Good luck!
s,
-Linda
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  #4  
Unread 12-15-2002, 12:48 PM
Fistula

Terry,


Please check out our thread. There are 7 of us who are in different stages of fistula repair.
I don't know exactly what kind of fistula you have, but having the repair surgery so quick is very unusual, they have waited at least 8 weeks with most of us having a foley catheter during that time. As far as your dr saying the surgery is
"a piece of cake" is a little unsettling, too. Most of us have searched for drs who are willing and experienced enough to perform the surgery.
I don't mean to scare you or upset you (lord knows having the fistula is bad enough!) I just think that being well informed is the best way to go.
You're welcome to join us, and also please read emedicine.com about fistulas.

Louise
  #5  
Unread 12-15-2002, 02:58 PM
So many questions!

Thanks for all the info. I have read all you guys have written and looked at all the website information possible. This is the way I have stayed on top of everything throughout this whole ordeal.
I live in a pretty rural area which is why I had to trust my first dr. My new dr has moved here from New York and he and his wife have set up ob/gyn clinic. He has 3 patients that were mis diagnosed-other 2 have cancer. The uro comes twice a week from the big city. They are both very young doctors but I have no choice but to trust them. They did talk about all the alternatives I have but bottom line is I have suffered for 13 years already. Before I agreed to get this done right away they had already reserved the OR for me on Tuesday. I had rheumatic fever as a child and left with a mitral prolapse valve and lately am feeling the stress this is putting on my heart. I have the vesico vagional fistilua. I do have the foley in now but still leak quite badly and have to wear depends. The one thing I have going for me is that my incision is healed quite nicely and as far as my hyster I feel better then I have in 13 years. Right now my biggest problem is the stress. My dr never mentioned the supra cathater but I suppose I will have one. Can anyone tell me a little about those.
I really appreciate all the support and will be quite relieved when this is all over.
Thanks so much,
Terry
  #6  
Unread 12-15-2002, 03:10 PM
Fistula

Terry,


Post over on our thread (fistula cont 2) so all the others can read your info. I just happened to see your post and I don't know if they will. We TOTALLY understand about the stress, my blood pressure has gone through the roof bevause of this. I will keep you in my prayers.

Louise
  #7  
Unread 12-16-2002, 04:25 AM
Fistula

Hi and aren't the Hyster Sisters great?!

I hope you find the info that you need and please continue to post your *own* threads so many of the women of this website will benefit. To add your story to an already long thead is an okay thing...but to receive your own support, please continue to post about your own concerns on your own thread so that our many members can find you and help you too.

The benefit of a message board is not to put women into categories but to expand the opportunity of support. We are so glad you found us and have benefited from reading about others.

There are so many different post-op concerns...its a very very good thing to get support for all your concerns.

Enjoy the wonderful input from all the Hyster Sisters! Its a gold mine here.
  #8  
Unread 12-16-2002, 05:05 AM
Thanks Kathy!

In the beginning I just read everything on here but didn't feel the need to share my experience. But now that I have began to talk I can't seem to stop. I am freaking out today and am going to try very hard to not feel sorry for myself. I am very glad for my dh because he is very good at screening calls for me when he is home. Most people don't know the right things to say and only make me more depressed. Especially the people that tell about themselves or someone they knew who had the same thing and were up and around the next day or back to work in 2 weeks. It only makes me feel like a wimp or like I am milking this! That is why I love this website so much because it reinforces that no 2 people are alike. My dr didn't want me to drive until I was 4 weeks post op and so many people told me that was ridiculous because they were driving in 3 days, etc. Ridiculous or not I am following everything my dr has told me to do or not to do! I was told by some that the sooner I returned to my normal life the better I would feel but my dr told me not to rush things because I have hundreds of stitches inside me that need to heal and that was before the fistula! Thanks for listening and all the support!
Terry
  #9  
Unread 12-20-2002, 03:04 PM
Back from the Castle

Hello Everybody,
I have just returned from the castle and feel great considering. I do not have a supra pubic cathater just a foley. The first 48 hours were hairy. Very tired and lost a lot of blood but feel good today. Sent home with one stint in right side (not enough room to put one in left) which will be removed New Years Eve but cathater will stay for a while longer. Glad to have had the surgery so soon after hyster because everyone remembered me. I had excellent care and 2 wonderful doctors. Even though these doctors were not very experienced with a vesicovaginal fistula I had constant attention and never felt anxious. Between the 2 of my drs one of them was either at the hospital with me or on the telephone. I still have a little blood in the bag but what pain I have is kept under control with darvocets and sleeping pills. Yesterday I only needed tylenol. Well time to head for the couch. I am told to take it easy as I could damage my repair very easily. I have a new respect for my urinary system and will NEVER take it for granted again. Hurrah for Dr. Mark Lierz(Uro),St. Joesph, MO and Dr. David Ware (OB/GYN), Atchison, KS.
Merry Christmas to All,
Terry
  #10  
Unread 12-20-2002, 05:01 PM
Fistula

Terry,

Glad you're home and feeling better! Take it easy.

Louise
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