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returning endo? IBS? returning endo? IBS?

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  #1  
Unread 01-07-2003, 06:48 PM
returning endo? IBS?

Well well, its been 18 months or so since I was here and I certainly appreciated all the advice and sympathy I got so thanks everyone.

Now I am back begging for any advice or suggestions....

I had LAVH (kept ovaries) for endo, adeno and fibroids in June 01 since then things have been great but.....

I had some symptoms that seemed to be like IBS before Hyst and recently they have really got worse. For instance going to the bathroom 8 to ten times (runny!) before I feel I can leave the house in the morning then by night time I feel I want to go but can't!

Frequent crampy pulling feeling in my lower abdomen and even inside my vagina. Even when I wipe myself after a BM I can feel a sort of sore pulling in my vagina too.

Occasional INTENSE cramp in my rectum that leaves me unable to function and in a sweat (seems like that is cyclical but as I have no periods who knows really!).

So, last week I had a colonoscopy but nothing showed up. I have asked the doc if he would be able to tell if it was endo from this procedure and he said no, and that as I had a hyst it should all be gone (ahem I thought we all knew this wasn't necessarily so??)

When I had laps before the hyst the doc said I did not have much endo and finally decided it was mostly the adeno that caused the pain.

So, can adeno be in other places like endo can??? Are cramps that feel like period cramps a symptom of IBS? Could I have adhesions? They would not show with colonoscopy right? What's wrong with me???? I expect a lot of answers don't I

thanks and love and kisses, Steph

PS I also now have a sore right side of my abdomen 5 days after the colonoscopy - is that normal?
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  #2  
Unread 01-07-2003, 09:19 PM
returning endo? IBS?

{{{{{{{{Steph}}}}}}}I am no expert here but your symptoms sound like IBS to me although endo and adhesions can cause similar such problems. I had the exact same symptoms as you do before my Hyst as well as after. Had colonoscopy twice(just today to be exact) and it showed no diseases like diverticulitis, etc. A colonoscopy can NOT show you have IBS it is just used to rule out other bowel diseases. Since your colonscopy was negative and you had IBS before, I would think this is a flare-up. Also, Adeno cannot come back as it is endo of just the uterine wall and once the uterus is removed, it is gone. Please check out this site and see if it helps. I wish you luck. http://www.besthealth.com/library/ibs.html


Emily s
  #3  
Unread 01-08-2003, 08:52 AM
returning endo? IBS?

Hi Steph,
As Emily indicated there are no tests that will diagnose IBS. Basically the diagnosis comes from a process of elimination. Usually you will have to undergo a colonscopy and perhaps some other tests to rule other diseases out. When those tests come up negative, that is usually when they will give you a diagnosis of IBS.

Perhaps your next step would be to contact your gyn and talk with him to rule out any female problems.

Your symptoms do sound alot like IBS. It is always best to be checked out by your doctor and let him/her make the determination.

Good luck Steph. I hope you feel better soon.
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  #4  
Unread 01-10-2003, 10:44 AM
Sorry to hear

Hi Steph R

Here's a for your troubles.

My doc told me that unfortunately, if you keep even just 1 ovary, the chances of endo returning within 5 years are up to 60%. With no ovaries at all, it's less than 10%. Our natural ovaries just feed it too much estrogen.

I had a laparoscopy 9 months before my hyst. They cleaned eveything out. I had stage 3, but oddly enough my right ovary and fallopian tubes were totally clear of adhesions and endo.

Just 3 months later I felt the endo returning and nine months later, when I had my hyst, I had it even worse...stage 4. In addition to the mess on the left ovary; my right ovary was also covered and the tube was blocked. Both ovaries were fused to the uterus and bowel. It can happen fast.

I sure hope that's not your case...but you sure sound like me a few months ago. Pulling, pain, IBS...yes...I know it well, too.

Definately talk to a GYN physician who specializes in endo.

Peace,

Songsister
  #5  
Unread 01-11-2003, 04:33 PM
returning endo? IBS?

Hi Steph I'm soooo sorry you've been having so much problems

I have IBS, but it's mostly constipation, therefore my symptoms are a bit different than yours. However, I do have the pulling pain and do have the cramping which is like period cramps. Since, like you, I kept my ovaries, it's sometimes hard to know if it's "that time of the month" or if it's the IBS.

One thing I know, my IBS symptoms are worse since my hyst than they were before. I find that the constipation/diarrhea cycle is more marked and I now have a spastic colon to contend with. And the IBS symptoms are cyclic: they tend to increase dramatically when I'm also having PMS symptoms. And stress is one of my main IBS triggers, so reducing stress factors sometimes is enough to reduce most of my symptoms.

I agree with the others that your doctor is the only one who can decide if you are suffering from IBS or if it is from something else, including Endo and/or Adhesions.

Sending lots of healing s your way. Please keep us posted.
  #6  
Unread 01-11-2003, 06:09 PM
thanks ladies

thanks for all the hugs and advice, I really appreciate how caring you all are

I have seen my doc again, this time I wrote up my whole list of symptoms as its so hard to remember to tell him everything!

Tomorrow I am having small bowel series tests and a CT scan to check for Crohn's Disease. I think its good that the doc wants to rule out as many things as possible before making a final diagnosis. He says we'll keep working together till we figure out what is is and get it fixed - nice doc

I am actually having a good few days right now whereas last week was hellish. This convinces me more that is cyclical!

thanks again,
Steph xx
  #7  
Unread 01-12-2003, 10:07 AM
returning endo? IBS?

(((Steph))) sounds like you have a wonderful doctor I agree that it's good to rule everything before making a definitive diagnosis.

Sending lots of s your way. Please let us know how it all goes.

BTW: My GYN got me in the habit of journaling my pain and other symptoms. I even note what I eat and the stress factors I encounter, since it all helps paint a clearer picture.
  #8  
Unread 03-02-2003, 07:34 PM
returning endo? IBS?

this is sort of an update but mostly me needing someone to talk to and clear my confused mind so please forgive me rambling. (My DH is overseas on business so I am feeling a bit alone right now too).

I have now had in the last few weeks....colonoscopy, CT scan, barium meal, ultrasound and a million blood tests none of which have shown anything other than a cyst on my ovary and cysts on liver. Gastroenterologist thought the barium tests were not done well and couldn't see much from them- really helpful! I am scheduled for gastroscopy next week to take biopsies.

In the meantime my pain is getting worse. So today I saw my local doc again (so I could whine at him hahaha)

I told him that while I understand why I am having all the gastro type tests it is inside my vagina, lower abdomen and around my left ovary that hurt most right now.

So finally (yes this was the FIRST internal anyone thought to do since my hyst in 2001 despite me telling them it hurt) he found I was totally swollen up inside my vagina, everything inside my lower abdomen felt swollen to him and when he examined me the shooting pain around my ovary was awful. SO now he thinks endo is back and possible adhesions (I think I could have told him that myself) but he also thinks there is a gastro something going on too.

So now I am home and I am sore as heck from the examination and I can't get an appt with the gyne who did my hyst for four weeks.

So there you have it- I am sore and cranky and waiting waiting waiting.


thanks for listening!
Steph
  #9  
Unread 03-02-2003, 08:31 PM
{{{{{ Steph }}}}}

Sending great big 's to you Steph...

Misery loves company and I'm right there with you!

It's no fun. I'm not having the symptoms you are with the possible IBS, but..I do have severe lower back pain from about the waist to the lower sacrum area, lower pelvic pain and spasms. I also was recently diagnosed with Interstitial Cystitis so there is bladder pain going on too, but it's so well masked by the other pain I don't feel it most of the time!

I hope you find an answer to your pain soon. Pain is very draining and fatigue then sets in. Be sure to get plenty of extra rest and take a nap anytime you can and feel you need one. I've been sleeping so much since this all started with me (late Nov.) my family teases me about going to bed at 7pm!

Sending you lots of

Lori

P.S.
I've been really, really grouchy too. When you don't feel well, and are in constant pain...we tend to get that way.
  #10  
Unread 03-03-2003, 05:55 AM
returning endo? IBS?

((Steph)),
I'm sorry your experiencing more pain The others have given you some wonderful advice I did want to share some info on Endo reoccurance post-hyst~symptoms ect:

recurring Endo-Q&A:
http://www.pelvicpain.com/adca4.html
http://www.endometriosis1.com/indexj.html
http://www.angelfire.com/fl/endohystnhrt/resource.html
https://www.hystersisters.com/vb2/sho...threadid=81855
http://forums.obgyn.net/forums/women...0202/1958.html
http://www.angelfire.com/fl/endohystnhrt/resource.html
https://www.hystersisters.com/vb2/sho...ne+Bend+Oregon
https://www.hystersisters.com/vb2/sho...ne+Bend+Oregon



Surgical Procedures for Endo:
http://www.reproductivecenter.com/radical.html
http://www.universityobgyn.com/laparosc.htm
http://www.umm.edu/surgery-info/methods.htm
http://www.kenes.com/cogibook1999/Me...rine_Bleeding-
_Does_Hysterectomy_Still_Have_a_Place_in_Modern_Management.html
http://www.gyndr.com
http://www.reproductivecenter.com/radical.html
http://www.drdeljuncojr.com/surgicalprocedure.html
http://www.usatoday.com/news/health/...do-study_x.htm
http://www.kumc.edu/instruction/medi...endometr4.html

Endo Specialists & Resources:

http://www.hcgresources.com/resources.htm
http://www.geocities.com/friday_sfws/ind.htm
http://www.endoangels.com/links.html
http://www.lupron.com/
http://www.centerforendo.com/

Endometriosis Despite Hysterectomy:
http://www.stanford.edu/group/whpu/qa/07,09,99.html

Painful Signs of Endometriosis Should Be Taken Seriously:
http://www.nytimes.com/2002/07/09/he...th/09BROD.html

The Presurgical Diagnosis of Diffuse Adenomyosis:
http://www.obgyn.net/eago/art04.htm
http://www.fibroids.net/html/adenomyosis.htm

Adenomyosis - An Internal Uterine Endometriosis: http://www.wdxcyber.com/npain09.htm

http://www.drcook.com/adca14.html

Hysterectomy & Endometriosis Questionnaire:
http://www.angelfire.com/fl/endohystnhrt/quest.html

Good Luck with your tests...hopefully they will provide some insight as to what is causing your pain...Pls let us know how they go...(((hugs)))
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