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Adenomyosis?? Adenomyosis??

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Unread 01-18-2003, 01:53 PM

On my other post someone mentioned adenomyosis which I understand can only be diagnosed after a hyst. One of my ultrasounds mentioned the possibility that that might be an issue. Interestingly, I had mentioned it to dr. and when they repeated the us a different radiologist read report, which was quick and to the point, almost made me feel like he did not even look at it or compare to last one; has this ever happened to anyone? I actually brought it up during a visit, but was pooh poohed about it. The first us was so detailed like he really spent a long time on it, and the next one was like "ok, it is almost lunchtime, let's just take a quick peak and be done" ... anyway i had a d&c after that and then my periods got twice as bad... I did speak with dr. on fri. about my state of mind and provera etc., but i guess I am just overwhelmed with what decision is best for me... Sorry so long, but geesh this stuff just overtakes your life doesn't it?

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Unread 01-18-2003, 03:22 PM

Hi Faith

Yep, it does take over your life! But these are HUGE decisions and you need to get all the information you can.

Hasn't there been some difficulty in diagnosing what's causing your bleeding? Maybe you should get a second opinion, particularly if you don't feel you're being listened to.

Unread 01-18-2003, 05:41 PM

They have no diagnosis, just menorraghia. I have had 2 u.s., 2 pap smears, a d& c and hysteroscopy and nothing...... No fibroids or polyps or anything suspicious, but I do feel like something is just not right. I am on levoxyl for thyroid, but recent bloodwork came back normal except for anemia, hgb is 10.3 which is not great, but not awful. I have been as low as 6 about 30 years ago.... I think my dr. thinks it is hormonal; estrogen dominant kind of thing, but I am not so sure.... I guess I will see how things go over next month or two. This period has picked up again, normally it would be over for the month, but it does seem to want to hang on.

Thanks for any input

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Unread 01-18-2003, 10:37 PM

I was diagnosed with adeno via ultrasound recently. I had known for over two years that this is what I most likely had going on in there, but as you said, my dr told me the only way to diagnose it for sure was after a hyster. Well, the specialist I saw was doing a vaginal ultrasound during a pregnancy (which I lost) and offhandedly said he sees adeno pockets and if he can see it, it must be pretty bad.

My obgyn's tech told me that I had fibroids.. this specialist said there were no fibroids, but there are pockets of thickness, called adenomyomas, that are so dense they might be taken for fibroids by someone who didn't know what they were looking at.

Every time I have a D&C, my pain is worse for at least 6 months afterwards. I had one in December and I am living on Vicoden and wishing for an early death (just kidding, sorta! I'm just tired of the pain). My periods get heavier and clottier during the 6 months as well, which the specialist said is most likely from the adeno. Looking for a new gyn who will listen and *hear* my situation the way I see it.

Good luck to you.
Unread 01-19-2003, 08:22 AM

I had adenomyosis with somewhat heavy bleeding and clotting, and a whole lot of pain. Other than that, my uterus appeared normal on ultrasound and during pelvic exam--none of the classic enlarged and "boggy" uterus. But I got great relief from my hyst. Not saying this is THE answer for you, but adenomyosis is a very sneaky condition and hard to diagnose.
Unread 01-19-2003, 12:38 PM
adeno questions

I too have been diagnosed with "probable adeno" or "possible fibroids". A laparoscopy in October of last year determined this. My gyn put me on bc to control the bleeding, which helped in November, (I believe I didn't feel any pain then because I was still on pain meds from lap), and continued to control the heavy bleeding through December. I did, however, notice the pain returning in December. This month, beginning about a week before my period, I had pain like I had never had before, and it only increased after I started. I couldn't wait to be off my period so the pain would go away, (that's what I was used to in the six or so months before I had the lap). Anyway, I have not bled since this past Wednesday, but the abdominal pain seems to be increasing daily, I've had a heavy orangish discharge and I am having a horrible time just going to the bathroom! I have an apt. with my this coming Thursday to talk about having a hyst, and what my best options are, (I'm tired of trying so many different meds that may help in some ways, but the side effects are worse than the original problem). Anyway, one of my main questions is going to be about the differences in a vaginal and an abdominal hyst; besides the obvious, which one would be best in my case. Until now I had not heard of a laproscopic hyst. Can anyone explain the difference between that and an abdominal hyst?

I understand what you mean about all this stuff taking over your life, Faith. It seems this is all I've been thinking about since the new year began. Maybe we need to just get out and go for a bit and get our minds off of it for a short while. Yea, we do need to make a decision, but we shouldn't let that interfere with what's going on right here and right now I guess. Good luck to you.
Unread 01-19-2003, 04:06 PM

Hi Marie

You asked about the differences between hyst surgical approaches. Here is a link to frequently used abbreviations from our home page. This explains the abbreviations, along with information about the approaches. I hope this helps. If you still have questions, ask away!

Unread 01-19-2003, 05:10 PM
Thank you

Thanks, Beth

I had seen the link to abbreviations, but didn't think to go there for an explanation of the differences in types of hysts. It's very helpful, and I'll be more informed when I ask the doc questions.

Thank you so much!

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