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Still On The Road Still On The Road

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  #1  
Unread 01-22-2003, 05:59 PM
Still On The Road

You may have read some of my previous posts about a burning sensation I keep having in my upper abdomen near the xyphoid process....it's still there.

It feels almost like a sunburn and the feeling radiates through to my back. The skin temperature actually raises at times on my trunk area. One day my back's surface temperature measured 102 degrees ferenheit and I didn't have a fever.

I've done the whole gastro tests, endoscopy of stomach, sigmoid scope and colonoscopy. They only found one tiny polyp that they removed. Stomach is normal. Colon is normal.

I've had chest x-rays to see why my xyphoid pops in an out. x-ray showed nothing abnormal.

I think I may have nerve damage in that area from positioning during the hyst. I've had no accidents or injuries before or since the hyst.

I'm to see a neurologist next month to test for possible nerve involvement.

I've taken several types of medication, including anti-depressants and now I'm trying an anti-convulsant to relieve the pain.

The only time I don't seem to hurt is when I first get up after a good night's sleep. It comes back as soon as I am up and moving. Sitting is very irritating to that area because it puts pressure on that area.

Has anyone else had anything even remotely like this? It' very frustrating. I think my PCP has just given up trying to figure it out.

Thanks for letting me vent.

Susan Ivey: Our computer crashed, so I have lost your e-mail address. Feel free to e-mail me.
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  #2  
Unread 01-22-2003, 06:22 PM
Still On The Road

I am so sorry you are having such problems without real answers. It is no fun feeling like there is no real answers but sometimes its just the process of elimination and I really believe medicine is that way. Maybe there is a sister out there that can relate to your exact situation. I have been there in a different realm and just want you to know I feel for you.

Good luck w/ the neurologist and maybe checking into a Pain Mgt. Physician is a consideration too, especially if it is decreasing your quality of life.

In my thoughts and prayers,
DLK
  #3  
Unread 01-22-2003, 08:41 PM
Still On The Road

thanks for the support, DLK.

I've been reading everything for the last 7 months to find answers to what may be going on.

I realize that there is a chain of command even in the health industry. You can't jump from a GP to pain management until they exhaust all possible solutions.

It's just so bizzare to be very healthy for 49 years and then have something like this that is a total mystery. I was so healthy that I did not have a PCP. I just saw my OB/GYN, dentist & eye doctor once a year. If I had sniffles or a sore throat that needed to be looked at, I just went to a walk-in clinic.

Atleast I'm having all the tests that people usually have by the time they reach my age and they have all proven that I had excellent health. All the parts seem to be working well. Just can't pinpoint the culprit for this pain.

I'm determined to get my health back. I don't give up easily.

If they ever do find out what is wrong, I am definitely going to watch for anyone who has similar symptoms and try to help them down the road to recovery.
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  #4  
Unread 01-23-2003, 12:00 AM
Beadweaver,

Sorry that you are having this "phantom" pain. I know the feeling.

I was having the same type of feeling....the burning sensation, seemed to me like a tearing, pulling, seering type of feeling. Mine wasn't located in the same area as you are talking about, but the way you explain it sounds similiar, although I don't recall an external feeling of warmth, mine was only an internal sensation. I went through all the same types of test though....the Gi...he did the colonoscopy and endoscopy and the small bowel series and all came back normal...aside from a hiatal hernia, which Gi said is not unusual....If nothing else..at least you know that you are good to go in those areas.

I hate to even mention this because it seems as if it has come up so often with sisters here on the board lately, but maybe it wouldn't be a bad idea to be checked out for a hernia....at least mention it to your Dr as a possibility....maybe all is well but it would give you one more thing that you could strike off your list. The pain just sounds familiar. You asked for info on anything remotly related so I thought that I would share. Mine also was better in the mornings but seemed to worsen throughout the day depending on my level of activity.

I hope all turns out well. Let us know what you find out.

Lot's of warm 's

Dawn
  #5  
Unread 01-23-2003, 11:12 AM
Still On The Road

Thanks, Dawn.

I forgot to mention I also had a CT Scan and Upper GI x-ray with barium. I would think that would show a hernia....I think.

I'm comming to the conclusion it may be involving my ribs and cartiladge.

Hope the neurologist finds something that can be treated. I'm just miserable.
  #6  
Unread 01-23-2003, 12:09 PM
Still On The Road

Kris,

Have you had a chest x-ray? Maybe check for pluersy or an inflammation of the connective tissue that hold the ribs to the sternum? Just a thought. My 17 year old son has had this twice in the last few years. He was having chest pain. Doc said it was because his chest is growing so quickly.
  #7  
Unread 01-23-2003, 01:01 PM
Still On The Road

Thanks for the suggestion, vbjacks5.

I had a chest x-ray in December. Everything looks normal.

My doctor even commented that there were no suspicious masses & everything looked great.

What did your son do to heal and/or releive the pain?
  #8  
Unread 01-23-2003, 01:11 PM
Still On The Road

Glad your chest x-ray was normal!

My son took Vioxx for the pain and also had a steroid shot for inflammation. His main problem is he is over 6 ft tall and is skinny as a rail! Said his chest was trying to expand quicker than it his body (connective tissue) could accomadate.

Hope you find the cause of your discomfort soon!
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