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Genetic breast and ovarian cancer Genetic breast and ovarian cancer

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  #11  
Unread 01-25-2003, 10:53 AM
Genetic breast and ovarian cancer

Barbara..

I can relate to your story also. Part of mine was posted a few above yours. I noticed that you are from NY and I am also. In fact i live on Long Island. Would love to know what part you are from and what doctors you are using. I had my hysterectomy and chemo treatments all done at North Shore University Hospital in Manhasset.
Hope to hear from you soon.
Rosalie
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  #12  
Unread 01-25-2003, 11:10 AM
Genetic Breast & Ovarian Cancer

Hi Janet

I have been identified as having the BRCA2 gene mutation.

I have had breast cancer three times,my elder siser died of it within 2 years but I have survived so far for 20 years. Dates of episodes were 1983, 1993 and 2000. A maternal aunt had it in the 1940`s but after a mastectomy never had any more trouble and died of natural causes in her 80`s.

Two weeks ago I was given the unbelievable news that I now have cancer of the lining of the womb.
I was told this on January 8th, just having come out of hospital two days before after the urgent removal of a subaceous cyst on my tummy which decided to erupt after just being a tiny pimple of my tummy for 20 years - this was while I was on holiday in Venice over Christmas.

Anyway, I was not feeling 100% on January 8th, still recovering from the operation, general anasthetic etc and a large wound on my tummy. I was told with no holds barred and given it straight on the chin that I was in serious trouble as I had "mixed" cancers working away in my womb lining that were highly unusual and dangerous. I would have to have everything more or less removed from my abdominal area followed by chemotherapy and radiotherpy. I am now told two weeks later by the Oncology Nurse that my cervix,vagina ca125 blood test AND THE CT SCAN
HAVE ALL COME UP NEGATIVE. They still have the pathology result from the sample of my womb which they took and I am still bleeding so I know I have got cancer but was it really necessary
to be so pessimistic and frighten me so much and cause me so much distress out of the blue when I was not well to start with.
I am highly suspicision of their ultimate goal and that is to get hold of my tisue for research. Addenbrooks hospital in Cambridge is one of Europe`s top teaching hospital and I know for a fact that they are doing loads of research work on BRCA2 at the present time.

What sort of operation are you having - I am sorry I do not understand the abbreviation.

Hope to hear from you


Brenda
Peterborough UK
  #13  
Unread 01-25-2003, 04:21 PM
Genetic breast and ovarian cancer

wow Brenda..

You really were given a lot on your plate at one time and like you said, some of it is difficult to understand the reason and whys to. I certainly hope all works out well. Please keep in touch.
Regards,
Rosalie
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