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Soon off to Gyn Number 8? 9? Soon off to Gyn Number 8? 9?

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  #11  
Unread 01-28-2003, 02:01 PM
Soon off to Gyn Number 8? 9?

(((((Jude))))))) So sorry your appointment with the new GYN didn't turn out as you hope I know how it feels: Been that route before.

Will be waiting anxiously for your update, sweetie .... hang in there: we've got a pretty big collective shoulder you can :cry: on.

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  #12  
Unread 01-28-2003, 02:12 PM
Soon off to Gyn Number 8? 9?

Oh Jude, been there done that and can only imagine how you're feeling right now......just remember we're here when you're ready to talk about it and don't give up sweetie, it's not over until we stop trying!!! Big huge 's!!!!
  #13  
Unread 01-28-2003, 03:20 PM
I FEEL your pain...

Surgeon #3 was a dud....or was it 4? Grrrrrrrrrrrrrr
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  #14  
Unread 01-28-2003, 03:47 PM
Soon off to Gyn Number 8? 9?

We have ... and ... when you're ready
s,
-Linda
  #15  
Unread 01-28-2003, 05:01 PM
Thanks ((((((Sisters)))))) Just needed a little 'chill' time....

Well here goes...I arrive at the appointment with my 5 page info sheet that I like to supply all of my docs with (dx's/operations/history etc). She didn't even want to look at it <----First thing that ticked me off.

She stated that I am menopausal! Hello? Umm....I think that's a given. The blood work indicates that I couldn't possibly have an ovarian remnant. Okay, so why do I have ovulation cramps at roughly the same time of the month? (Give or take a few days). End of conversation...she says it's impossible, so I guess it is. I do plan on discussing the results with my Uro-Gyn though.

She doesn't want to do another surgery. I agree with her on this because of the nerve damage. I asked her if I could still have Endo, and she said no because I am off HRT. I know my body, and she was quite short with me on how it would be impossible for me to still have it. Okay...we all know it isn't impossible. I am, and several others here are living proof. I said that the pain is getting worse, and that it is the Endo pain that I've known for too many years. She said that it's probably IBS - What?!?! I know what that feels like...and it is very different from the Endo pain.

Gosh...there is so much more but I just don't have the energy to type it out. The 1 1/2 hour transit ride each way has taken it's toll on this tired old body. If I had known...I can tell you all that I wouldn't have bothered. I guess I was bound to have a bad experience at this pain clinic sooner or later. Thankfully I really like the Uro-Gyn...I'll just stick with him. This may not seem like much to some of you...but I waited months for this *#$*+*

And she didn't know anything about the fistula...didn't run any tests etc. She couldn't get me out the door fast enough, and I honestly think that I ticked her off because I know a lot about Endo. I think I bruised her ego. Oh well....another day on the road...

Thanks for listening, and for always being here dear friends....
  #16  
Unread 01-28-2003, 05:43 PM
Soon off to Gyn Number 8? 9?

I feel for you. Nothing like getting your hopes up for a productive appointment and then bombing out. There has to be the right doctor out there for you and hopefully you'll find him/her soon. I'm sorry you've been through so much already.
  #17  
Unread 01-28-2003, 06:28 PM
Soon off to Gyn Number 8? 9?

{{{{Judy}}}}
I'm so sorry sweetie. I do know how you feel though. Been there, done that. But you know, you would never have known unless you went. So that's another gyn that you can cross off your list of doctors! You just never know when you'll hit upon the one. Just like the pain clinic my dear, you waited a long time for that appointment and that one was well worth the wait. We have to keep trying. For every bad appointment there may be a good one right around the corner.

Get some Judy. Tomorrow is another day.
  #18  
Unread 01-28-2003, 07:10 PM
Soon off to Gyn Number 8? 9?

huge for you Judy....

I am so sorry that this doc was so insensitive and closed minded instead of listening to what you had to say. I'd come her in a heartbeat for you if I thought I could.

I did want to point out one thing tho...with an ovarian remnant it doesn't always show up in the bloodwork. Mine never did. We didn't know it was there until a trans-vaginal US was done and it showed up on the screen. So it is possible to have one causing pain but not have enough showing in the blood.

And I know I have brain fog here but why doesn't anyone do a CT scan to find the fistula? I can't believe noone can give you a definate answer on that either.

I wish I could do more then send hugs sweetie...sometimes it just seems so inadaquete....



Dawn
  #19  
Unread 01-29-2003, 09:02 AM
toolgrl's right...

In some cases you have to be off hrt for six weeks and then take comparative studies - one test won't do the trick.

Yup, must've scared the pants off her. Somehow...my medical history alone seems to do that.

I wish I remembered the days of "ignorance is bliss" LOL



We need an icon of a "bomb" like :explode: for these appointments that bomb or a doc with a big ole X on him/her!
  #20  
Unread 01-29-2003, 09:23 AM
I think it was a combination...

Of my history....that's enough to scare anyone LOL! And my assertiveness. She asked me the most basic questions....almost as if I was seeing a Gyn for the first time in my life. She has all of the post-op reports, and a bunch of new test results. It was all so basic...

I could tell that she wondered what the heck I was doing there...when I left, I wondered the same thing. Oh well...live and learn eh?! <-----See what a long winter's nap will do for this girl's state of mind!!

((((Kim)))) You are so right when you say "Just like the pain clinic my dear, you waited a long time for that appointment and that one was well worth the wait." Talk about perspective. You always help me to see clearly! Thanks dear friend xoxo.

((((Dawn)))) Your words helped me to feel so much better. I know my body...and I know that I have ovulation cramps. That is something that I've been afraid to admit here until recently. I've even had the discharge (sorry to be gross) that used to occur during ovulation. I know something is going on in there...and I know that there is a doc who will be able to help me. I think I'm going to mention to my Uro-Gyn that 'if' we ever do another surgery it must be with an oncologist doc as well as himself. I have had a couple of trans-vag u/s. One showed something near/on my bladder...the other one was inconclusive. It showed something...but nothing for them to worry about. It's probably time to have another one soon. The neuro doc did do an MRI. I think he was just doing it to see if there was anything really strange going on. Again there was something questionable going on on/near the bladder. He said that Endo probably wouldn't show up. Would a small fistula? I had so many u/s previously to the hyst,. and they never showed anything...it wasn't until the docs did laps, that they came up with a dx. So who knows. I will keep plugging away...thanks Hun xoxo.

((((Anj)))) I am so worried about you sweetie. I hope you are at home, and at least resting. I hope you are able to get some answers ASAP...or that you agree to go to the ER with ((((Sheri))))

Thanks for listening sisters. Yesterday, I felt like a sniveling idiot! I feel better emotionally today...thanks to all of you, dh and a good nights sleep.
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