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  #1  
Unread 02-02-2003, 10:44 AM
NOW what????

I am almost a year post TAH / BSO (2-6-02). For the past 6 months or so, I have pain in my left lower abdomen that has been getting progressively worse. I don't have my uterus, or my ovaries, but my cervix is still there. Is it possible that the pain is associated with adhesions? Besides my hysterectomy, I have a history of a c-section, and 4 laparoscopies (endo, fibroids, cysts, adhesions). I've been doing a lot of reading, and this pain I'm having can be anything from adhesions, to irritable bowel syndrome, bowel obstruction, Chrone's disease, etc. I had an ultrasound last week that basically showed that all of my organs are normal sized, and I have a cat-scan scheduled for 2-11 to rule out adhesions. I'm SOOOOOOO sick of this crap!!!! I spent 7 years of my life in agony, and when I had my hysterectomy I thought that my life would get better!!!! Instead, it's still a continuing nightmare. Oh well, just have to live with it, right? Sorry to vent, I'm depressingly frustrated.
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  #2  
Unread 02-02-2003, 11:27 AM
I'm right there with you Tami...



I'm 13 months post and for the past 2 months have had progressively worsening pain in the left lower pelvic that radiates into the sacrum and even into the tops of my thighs sometimes

I've had MRI, negative, X-rays, negative, DH is a chiropractor and this is not spinal related. It's like the connective tissues inside are not stretching the way they should..adhesions? scar tissue?

Well, scar tissue is tissue that has lost it's normal elasticity and if there are adhesions tugging and pulling different organs, ont scar tissue, etc....well, it would make sense, right?

I haven't had a CT scan done yet...I didn't know one would detect adhesions. I'm pretty much resolved to call my GYN tomorrow and schedule a diagnostic lap. I'm ready to get off this merry-go-round. It's affecting way too much of my life now.

I'm right there with you sister!

Lori
  #3  
Unread 02-02-2003, 12:08 PM
NOW what????

Sorry to hear you're still in pain, Tami. When I had my hysterectomy I was looking forward to clear sailing aftwerwards, too. A hernia that went undiagnosed for about a year has continued to worsen and I'm in a lot of pain waiting to find the right surgeon (hoping that I have found him) and now waiting for a surgery date. I feel like I've lost a couple of years of good time. Dang.

Hopefully both of us will find resolution.

Joselle
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  #4  
Unread 02-02-2003, 02:14 PM
NOW what????

Thanks for responding ladies. At least I'm not alone. I'm so sick of this rollercoaster, it's depressing. It does affect my life more than I tend to admit. I have a lot of medical issues going on right now, and I feel like a lab rat at times. Since my hyst, it seems as if my body is falling apart. Maybe my body is getting revenge for getting rid of my uterus and ovaries. Who knows, I certainly don't. And I've completely lost faith in doctors. I've had 2 different doctors overdose me in the past year on meds (I had migraine issues). I feel like I can obtain my medical degree just by researching the internet, and diagnose myself half the time. I just have to keep my head up and learn to live with what God has dealt to me.
  #5  
Unread 02-02-2003, 02:14 PM
NOW what????

Does a CT scan show adhesions? Just curious because I am 3 1/2 months post op and have pain still. Gyn says maybe adhesions, scar tissue, return of endo...and that only a lap would tell for sure.

I was diagnosed with MPS prior to the hyst and wonder if what I'm feeling is simply related to that. (((Lori))) if you read up on MPS you will find that it sounds a lot like the pain you are describing.

Good luck to everyone looking for that elusive off ramp.
  #6  
Unread 02-02-2003, 02:54 PM
NOW what????

I'm not a doctor, but I was told by the radiologist that did my ultrasound that a cat-scan will possibly show adhesions. Like I said before, who knows..........I don't trust many doctors anymore. What is MPS??
  #7  
Unread 02-02-2003, 04:10 PM
From the adhesion queen....

No, a CT scan can't detect adhesions UNLESS they have tied organs/intestines, etc. into a mass that would show up. I know as I have been through so much of this..nothing shows, they get in there and I'm glued like a mess!!!!!!! Hang in there...and make sure you get lots of opinions...I have decided to go the pain management route unless I have a bowel obstruction....it has given me my life back (to the best degree possible!). and I never thought I could do it....hang in there you can do anything! Love, Cathy
  #8  
Unread 02-02-2003, 04:12 PM
NOW what????

It has been my understanding that the only way to find adhesions is thru a laproscope. If the adhesions are very very dense a CT scan *may* show them, but it is very unlikely. I still think that having the tests is a good idea to rule everything else out.

  #9  
Unread 02-02-2003, 04:13 PM
NOW what????

Tami,
MPS is Myofascial Pain Syndrome. It means that the pain is actually coming from the fascia (sort of a connective tissue thing) rather than an organ, bone, or joint. It is often times associated with Fibromyalgia. No "cure" for it, just ways to keep symptoms at bay.... or strategies to learn to "live with it." There is some wonderful information about it on the web, but I'm don't have the sites bookmarked. Maybe someone will be along shortly that can tell you exactly where to look if you'd like more info...SHERI???
  #10  
Unread 02-02-2003, 06:40 PM
NOW what????

Thanks so much ladies, you as always have been wonderful. Do you think that I should actually have the cat scan then? If it doesn't detect adhesions, and the ultrasound last week showed that all my organs are of normal size and basically in the right place, why bother wasting my time? I take so much time off of work now because of this and other medical problems, I'm lucky that I have a flexible position in my company. Guess I'll just have to learn to live with it
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