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4 Mo. Post - Swelling From The Waist Down 4 Mo. Post - Swelling From The Waist Down

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Unread 02-04-2003, 08:28 AM
4 Mo. Post - Swelling From The Waist Down

I am 4 1/2 months post-op from my TAH/BSO for cervical cancer. Yesterday I felt like I had been run over by a truck. Then I started swelling from the waist down all the way to my toes. It is painful to squeeze my feet in my shoes. My recovery from the TAH was fairly easy, no complications. My first 3 mo. pap came back normal. When I called my GYN/ONC to find out if this is normal to experience so long after recovery or if I should just go to my family dr, she started asking questions about my lymph nodes. I don't notice any swelling in them. I have heard of people having swelling problems when their lymph nodes have been removed, but I still have mine. She insisted that I see her tomorrow (it's a two hour drive). Has anyone experienced anything like this or know what this could be from?
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Unread 02-04-2003, 12:37 PM
4 Mo. Post - Swelling From The Waist Down

Hi Cindy,

I'm sorry that I can't respond to your questions regarding the swelling. I'm glad you're going to see your dr and I'm hoping all turns out OK.

Unread 02-04-2003, 12:52 PM
4 Mo. Post - Swelling From The Waist Down


I don't know what the swelling would mean, but I am so glad your is right on top of this. Let us know what happens.

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Unread 02-04-2003, 02:08 PM
Good Idea to See Dr.

If lymphnodes had been removed, one would first think of lymphedema. Let your doctor look at this one.
Unread 02-04-2003, 03:56 PM
4 Mo. Post - Swelling From The Waist Down


Your doctor is doing the right thing by checking you out. She will essentially check you out to be sure that it's not connected to your cancer. Then they can look into other possible reasons for this. There are a lot of possible causes, but it's most important that they be sure there's no connection with your cancer first. Out of curiosity, what stage cancer did you have?

I noticed you are from Southern Indiana--I'm a Hoosier too! Where is it that you are driving to for your appointment? Two hours is a long way, but it sounds like your doc is worth it!

Good luck, Cindy. Please let us know what you find out!

Unread 02-04-2003, 05:35 PM
4 Mo. Post - Swelling From The Waist Down

Thank you all for your posts. I live down by Madison, IN. My dr is Olive Soriero by St. Vincents. Have you heard of her? She's supposed to be one of the best in country. She had told me in the hospital it was at stage 1B, but after she got my path report back, she said it was a little worse than she expected, but she consulted with a radiologist and they decided to wait on any further treatment for now because I was so "young and healthy". It's nice to hear someone say you're young when you feel so old, and you really don't consider yourself so healthy when you have cancer! But the good news is my 3 mo. pap was OK. I would "retain water" before surgery especially around PMS time. I was really swollen right after surgery for a week or so, but no problems with swelling until now. Hopefully, it's something simple. Even though I don't get much time to be on-line now reading posts, you all are in my thoughts daily! Thank you for being here.
Unread 02-04-2003, 06:10 PM
4 Mo. Post - Swelling From The Waist Down

Hi, Cindy!

That's the gyn/onc that my gyn consulted with several times while we were trying to decide how to handle my case. I've heard she is just wonderful and very highly thought of! I'm just positive that you are in great hands. Good luck! I am also hoping that it is something quite simple.

Unread 02-05-2003, 07:51 AM
4 Mo. Post - Swelling From The Waist Down


I hope your appointment today goes well and they'll figure out what the swelling is. I hope it turns out to be nothing to worry about.

Let us know how it goes and how you're doing when you can. We'll be keeping you in our thoughts and prayers.


Unread 02-05-2003, 07:15 PM
4 Mo. Post - Swelling From The Waist Down

Well I'm having a CT Scan tomorrow (Thursday) just to make sure nothing is lurking. She's pretty sure I'm suffering from a case of lymphodema (sp?). She set me up for some physical therapy on Tuesday. She did a full check up and another pap. Thought everything looked fine except for the swelling. Getting ready to go search on the what to expect from physical therapy. How long does it usually take to hear about the results of the CT Scan? She didn't set up an appt. to come back for results.
Unread 02-06-2003, 10:26 AM
4 Mo. Post - Swelling From The Waist Down

CTs can be read within hours after they are done. If the doctor has ordered the test "stat" they can be read within the hour. This is called a "wet read" or a "stat read." Actually, when I had mine done, I went to the reading room to watch - it's pretty cool. The technician will actually review the images as the test is being done to make sure they are clear. Sometimes more contrast is needed (IV or oral) to get the best view of a particular feature, and sometimes they want more pictures of some part or another.

If the test wasn't ordered "stat" my guess is the report would be faxed to your doc within 2 days.

I'd ask the doc to order the results "stat" and ask the technician if you can talk to the radiologist - but I am not a patient person.


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