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Just found out I have a fistula Just found out I have a fistula

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Unread 02-06-2003, 07:10 AM
Just found out I have a fistula

I'm soo sorry you are suffering from this complication as well The ((Sisters)) here who are going thru this/or already had surgery are wonderful I did want to post some links that contain some info on the testing you will be having that will hopefully be of some help:

Basic Tests for Women Who Leak Urine:


Use of a Cadaver Allograft Patch to Repair a Large Vesicovaginal Fistula:

eMedicine - Vesicovaginal and Ureterovaginal Fistula:


Diagnostic Tests — Cystoscopy:

Cystoscopy and Ureteroscopy:

Cystometry -- Test Overview:


procedure using a flexible scope inserted into the urethra and then into the bladder to determine abnormalities in the bladder and lower urinary tract


Will Cystoscopy Hurt?

A cystoscopy is a test to evaluate the bladder. It is most often done by a urologist, but sometimes is done by a gynecologist. A small telescope-like instrument is inserted through the urethra into the bladder. It is an uncomfortable procedure, much like being catheterized. If it is being done strictly for diagnostic purposes, and if a small-diameter cystoscope is used, it may be done in the office without anesthesia. If a larger instrument is needed, or if significant manipulation is anticipated, it is usually done in a hospital under general anesthesia. Your doctor will be able to tell you better what to expect in your particular case.
Good Luck Karen...please let us know how your tests & appt goes..(((hugs)))
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Unread 02-06-2003, 08:38 AM
Just found out I have a fistula

Karen - Louise hits it all on the head.

The leaking can get worse, but when the foley catheter is inserted, that will drain most of the urine off your bladder. I had about 25% going through the vaginal canal at the time of my repair surgery, with 75% going into the bag. I had minimal leakage at night with the foley, probably because I was on my back.

It is hard to sleep with the leaking and I often slept sitting up on the couch...that seemed to be better.

Regarding walking, I did not do it because it was uncomfortable, but the doctor recommended it. I seemed to keep a yeast infection and was on Cipro (then Diflucan) the entire time. I have just begun to do my walks again, 2 1/2 mths post op.

I'm sorry that you are crying. I know how that feels and it's O.K. to cry.

Anyway, hang in there, these things will pass and before that you will become somewhat accustomed to them. I could change out my night bags to my day bags in a flash!

Love, Joce
Unread 02-06-2003, 09:40 AM
Just found out I have a fistula


Karen, as Joce said, the leaking does get worse some times. After my first pelvic, 3 weeks after my hyster, it got really bad and that is how they determined I had a fistula. My fistula was really small, and I went days with little or no leaking, then it came back. After I got the foley, the leking was greatly reduced and sleeping wqs easier-thank goodness! make sure you drink tons of water, you want to keep your kidneys and bladder flushed!

As far as walking goes, once I got the foley-I couldn't deal with the spasms-so I became a couch potato and gained weight which I do not reccomend 'cause it made recovery from the fistula repair harder! If you can manage it, WALK.

Just to put things into perspective, there are alot worse things we could be facing-there are women on this site who have gone through (and are going through) cancer and other major health problems-soon you will be all healed and able to resume your life, keep that in mind, it helps!

This is a stressful situation, but you will get through it! Post here as often as you need to, I usually check in 3 times a day(I have nothing better to do-3 weeks post repair and taking it easy except for WALKING!!!!!!

Sheri-thanks for all the info, I know Karen will find it helpful.

Hugs to all,

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Unread 02-06-2003, 02:06 PM
Just found out I have a fistula

Hi Ladies,

Went to URO today ... he was terrific and I found him myself(YEAH).. as I have done for other specialists I have needed before- he is at Yale/New Haven Hosp- and deals with this all the time..

Had the cystogram in the office and saw my hole myself- still can't believe it- he spent soooo much time with me- explaining, ??'s everything.. he is as talented as ever and has a great bedside manner too..

I have the cath and I feel much better- it is just going to take some getting used to.. have an IVP in 2 weeks and will see him after to see if maybe it has healed and then we can proceed.. he mostly on does vaginally repair with 1 night in castle(hooray) and then foley for 2-3 weeks.. he says he errs on side of caution and almost always they are fixed the 1st time-- my mind is much at ease today and I feel much better- I am glad I went with my gut and looked farther.. I am always right.. now the road begins and I have to continue to heal and then we can get this over with..

You are all right and I thank you sooo much for all the help- I will post later- I have to empty my bag(1st time) and go to my daughters cheerleading game (I know I should rest) but I promised.. thanks to all and many s

Unread 02-06-2003, 07:59 PM
Just found out I have a fistula

Hey Karen,

It is great how far you've come in such a short time. WooHoo!!! and you are not far post op to begin with. Please get the rest you need.

I guess since the Uro saw the hole that it must be in your bladder, not your ureter. How wonderful that you found a great doctor and already feel comfortable with him. You've got a wealth of experience here to tap into. Most of the ladies here have had bladder holes. (Mine was in the ureter so the treatment was different-still got to wear diapers

Unread 02-07-2003, 11:44 AM
Just found out I have a fistula

(((Karen))), hope you're feeling a little better now? I'm on Cipro too right now (and Flagyl as well)... I don't feel really sick but it sure does make everything taste yucky doesn't it?

Hang in there sweetie!
Unread 02-07-2003, 03:40 PM
Just found out I have a fistula

Hi Ladies,

1st Thanks Linda for moving everything over here for me and saving me alot of time- I am OK today- have my moments. but things are still sinking in.. did sleep well last night 7pm to 7am with a little help from my sleepng pill.. the bag was OK and one good thing was I did not have to get up to pee.. but it still bothers me.. does it get any better that "feeling" or is it always there??

Maybe it is just me!! but I am off to lay down and have some dinner.. I was wondering why the food tasted bad- it is the Cipro?? but nothing has tasted right since before hyster anyway!! it snowed almost all day here and it really is beautiful out- to bad I can't take a nice walk- don't want to slip.. ayway hope all is well with you all and will talk to you all soon!!
Unread 02-07-2003, 04:32 PM
Just found out I have a fistula


Glad you (with some help from our guardian angel, Linda ) got your thread started. I will be glad to help you in any way I can-just let me know.

Are you on any kind of bladder-spasm meds like Detrol? When I first got the cath, it didn't cause me any trouble, but after a couple of weeks my bladder went nuts and I couldn't have made it without the detrol for the spasms! I still take it 'cause my bladder is still sensitive and I'm afraid to go off it! You might want to consider getting a prescription from the doc just in case...

I miss the snow-I am an ex-Hoosier who's lived in Southern Calf for over 20 years, but I still miss it!

Take care of yourself and I'll check back later...

Unread 02-08-2003, 09:08 AM
Just found out I have a fistula

Hi Louise,

Wish I was in some warm weather- I have had it with the winter and it is supposed to go down to about 5-10 degrees later this week..

Still no spasms, but I have ditropan and he told me to use that if they started.. is the detrol better- I will get that if it is.. maybe I will call and have both on hand anyway.. still moving around a little slow, but am OK today.. took a shower and picked up my room(not alot) and now am off to lie down again..

talk to you later...
Unread 02-08-2003, 09:18 AM
Just found out I have a fistula

Morning, Karen!

I don't know if the detrol is better or not. My first uro gave me detrol and I just stuck with it. Hopefully you won't have bad spasms, Joce's weren't bad but most of us had them.

Don't do too much! You need to get lots of rest. Are you drinking lots of water? I made a sort of game out of it to see how pale I could make my urine (Hey, so I was a little bored!)

I got some good walking in yesterday and I feel pretty good-I'll check in with you later-REST!

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