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Update on bladder Update on bladder

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Unread 02-13-2003, 09:05 AM
Update on bladder

Hey all -

I apologize for the length of this post. I guess I had alot to let out .

I just wanted to keep you all updated on "me" and my lovely bladder .

Most of you know that I have been suffering from post-op urinary retention for, well, a lil over a year now. I have spent the whole last year trying every which way to "pee" with no results. I have tried Hytrin, Urecholine and an EMG stimulator, no success. I have been to 3 urologists because I wasn't happy with their diagnoses. My 3rd urologist, whom I am currently seeing, is AWESOME!!! I have total trust in him. We, along with my husband, agreed that we would give this lil problem a year (from my hysterectomy) and then we would try the interstim. Well, it's been a year and I've got the "staged" trial scheduled for the 28th. I did go for yet another opinion, my 4th, with a neuro-urologist in Boston. She said that I shouldn't count on getting my bladder function back. People usually don't after a year. Yeah, that wasn't very good news for me but, besides having a slow bowel too, I'm perfectly healthy in every other way !!! As far as the interstim goes, she said it's not going to hurt me in any way to try it. Worse case scenario, I'm back to where I am now. With a couple more scars on my butt of course .

I have had sooooooo many things to worry about this past year that all of my friends and family can't believe I'm still standing. I have been worrying about peeing, pooping AND recurring cancer. At least now I can stop worrying about peeing. I know now that I will not regain "natural" function of my bladder. If the interstim works the way my doc says it's going to, I will consider it one HUGE miracle. Now, if I could only stop thinking about the "cancer" thing. Will it come back? If not recurring cervical cancer, some other kind? Am I an easy target for other types?

I thank God for the health I have now and do live everyday like it's my last. I do worry about my cancer coming back, but I don't dwell on it everyday. I love my life, my friends and my family and want to spend everyday with them to the fullest.

This whole year has put me in many different situations that I didn't think I was going to be able to handle, but I did. Now, I am ready for anything!!!!!!!!

Thanks for listening -
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Unread 02-13-2003, 03:34 PM
Update on bladder

It sounds like you have a good handle on life dear. Miracles still happen so I will keep you in my thoughts and prayers. You are right though sometimes we don't think we can take one more thing and low and behold it hits us and we make it!! God has always been the extra strength for me.

You should be proud of yourself for taking your health issues into your own hands and determining who and what you would like to try. That is such a major step into your own healthiness.

Good luck with the new meds, whatever the outcome, dear, I can tell you are going to be just fine
Unread 02-13-2003, 04:52 PM

Wow, you have had so much to deal with! I'm sending positive healing thoughts your way and great big too!!


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