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  #1  
Unread 02-14-2003, 07:36 PM
I'm Back

Sorry I've been gone so long, but I was trying to be patient and let some time pass in the hopes that I would feel better. Unfortunately that has not happened. Monday will be 8 weeks since my latest surgery and I'm still having pain. I'm very close to making the call to schedule an appointment at the Mayo Clinic.

Does anyone have any advice or ideas? I'm coming up on two years of dealing with pain and I'm still not ready to accept that I just have to live with it.

I've missed my friends here, sorry I've been gone. Look forward to hearing from you!

s
Stacy
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  #2  
Unread 02-15-2003, 09:08 AM
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((Stacy)),
I'm soo sorry the pain levels have not improved I think the Mayo Clinic would be an excellent resource at trying to help, there is definately nothing to lose for trying!?! Have you ever considered Pain Mgmt? I know for many, it is like you are accepting that there is no *cure* for your pain but it's not. They continue to try & get to the source of your pain! Best of all, they provide you w/ some adequate relief from the pain! Here is some info, in case your interested:

http://www.pain.com/painclinics
http://www.pain.com/drfiles/cfdradv...Article_id=7007
http://www.widomaker.com/~skipb/panic.html
http://www.theacpa.org/
http://www.hypermobility.org/links.shtml#cat6
http://www.obgyn.net/english/pubs/f...20Pelvic%20Pain
http://www.pelvicpain.org/pdf/diagnosis_management.pdf
http://www.pelvicpain.org/communication.ppt
http://www.pelvicpain.org/multi_approach.asp
http://my.webmd.com/condition_center/pnm
http://www.greatlakespaincenter.com
http://www.geocities.com/Wellesley/3466/paindiary.htm
http://www.reddinganesthesia.com/pain.htm
http://www.pain.com/resources/attachb2.ht

Good Luck ((Stacey)) please know your ((Sisters)) are here for you, tho we dont always have the answers, the understanding that comes w/ living with severe pain helps
Keep us posted...((((hugs))))
  #3  
Unread 02-15-2003, 06:21 PM
I'm Back

I saw a PM specialist twice, but he wasn't really too willing to do very much for me yet. When I spoke with my GYN yesterday she said she runs into him frequently at the hospital and she was going to discuss my case with him to see if he had any ideas. Yes, I do feel that going to PM is giving up at this point because I wasn't convinced that anyone would keep working towards resolving the pain...just masking it instead. If after I go to the Mayo nothing is resolved, then maybe I will be ready to accept living with the pain and going to PM.

Thanks for your resources, I haven't looked at them yet, but I will be sure to check them out soon.

Take care and thanks for the

Stacy
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  #4  
Unread 02-16-2003, 06:42 AM
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Stacy,

Sorry your PM doc was no help. I too am having problems accepting my pain. My PM doc was super nice but suggested some procedures for masking the pain that I am uncomfortable with. I guess if you knew what and why you were accepting the pain, it would be easier to deal with PM docs. At least, that's the way I feel.

I'd vote for 'go for the mayo'

-Nancy
  #5  
Unread 02-16-2003, 09:24 AM
Thanks Nancy

Thanks for your vote! Of course, last night while lying in bed I actually felt pretty good, almost pain free. You watch, I'll make the appointment and then I'll start feeling better! Hey, if that's all it takes I'll recommend it to everyone! But somehow I don't believe it will last.

I'm closer still to making the call, they are probably closed tomorrow so I'll call on Tuesday. I'm waiting to hear back from Loretta who posted on one of my old threads. She's been to Mayo twice and I've asked her to share with me what they did for her.

Happy Sunday! Here's to wishing you all have a wonderful day!

Stacy
  #6  
Unread 02-19-2003, 01:45 PM
I have an appointment!

At the Mayo clinic on Monday, March 24th. Any suggestions to help me prepare would be appreciated. Anything that anyone could share on what to expect would also be appreciated. Somehow it just seems like a normal doctor's visit and I don't know if I'll be there for a day or what.

Thanks for caring!
Stacy
s
  #7  
Unread 02-19-2003, 06:14 PM
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Stacy,
Good for you for making that call! I sure hope that they can help. I've never been to the Mayo Clinic so I really don't know what you can expect. I've often considered doing the same. Did you just pick up the phone and make an appointment? Do they take insurance?

I'm in pain management and it did take me awhile to take that step. I'm not sorry that I did, it has helped me have some resemblance of a life again. It's not perfect, but it's much better than I had before.

I still will always hold out hope that there are answers somewhere out there for me. But until those answers come I am at least able to function.

Good luck Stacy. I want to hear all about your visit!
  #8  
Unread 02-20-2003, 10:44 AM
Mayo

Yes, I did call and make the appointment myself and they do take insurance. They are an in-network provider for some insurance companies, but for mine they are out-of-network so I'll have to pay 30%. At this point money is not an issue. I don't care if I go broke if it makes me feel better!

My Dr. is concerned about me going to PM because what the guy told me he could try is not long-term and it bears great risk...I think it was the hyper-plexus block or something like that. It's very risky since they have to insert needles into your spine. My Dr. doesn't want me taking that risk if I don't have to.

Loretta who posted to one of my other threads has been very helpful and wonderful in sharing her Mayo experiences with me. It's helping a lot for me to get an idea of what to expect, but there are still so many unknowns. I'm already figuring I'll need a second trip.

I'll keep you informed. At this point I'm starting the count-down. If they can't do anything for me than I will have no choice but to accept PM and demand an adequate level of relief from the pain. I don't know what else to do.

Take care of yourselves and thanks for checking in on me!
Stacy
s
  #9  
Unread 02-20-2003, 12:36 PM
I'm Back

((Stacy)),
My Dr tried to perform that Plexus block as well They started to do it but I was soo scared & the pain was overwhelming It is risky too My Dr told me that several of his patients who suffered from Chronic Pelvic Pain got releif from it?!? Maybe trying one of the less risky nerve blocks might help? or maybe Trigger Point injections? Here is some info I have on them:

http://www.lowbackpain.com/epidural.htm

Types of Nerve Blocks:
http://doctorsforpain.com/patient/nerveblocks.html

Treatments for Pain:
http://doctorsforpain.com/patient/treatments.html

The first few contain info on the Plexus block..

http://www.bhj.org/journal/2002_4403_jul/review_414.htm

http://www.4um.com/gas/Exams/primsyl.htm

http://www.mayo.edu/proceedings/index-p.html

http://www.stat.washington.edu/TALARIA/LS5.3.1.html

http://www.nda.ox.ac.uk/wfsa/html/u11/u1112_01.htm

http://www.helpforpain.com/arch2000jun.htm

http://www.helpforpain.com/arch2000may.htm

http://www.spineuniverse.com/display...ticle1518.html
Additional Resources for Patients and Patient Advocates:
http://www.centerwatch.com/patient/patresrc.html

Good Luck Stacy I do hope the Mayo Clinic will be able to get to the source of your pain!!
(((hugs)))
  #10  
Unread 02-20-2003, 12:46 PM
I'm Back

Hopefully this thread will be available after my visit to the Mayo. I'm not really researching PM right now, I'm mostly concerned about getting to the Mayo and going from there. Everything is just one day at a time right now. Thanks for the info though, and I will research it if it comes to that (somehow I suspect it just might).

I've learned of a great place that needs to be shared! My step-mother (who referred me to this site) works there and told me about it last night. I might just have myself and my mom a free flight to and from Phoenix through this place. Please spread the word to anyone who could benefit from this...

http://www.airlifeline.org/a1/servlet/visit

They can provide transportation for distant medical services for those with a financial or physical hardship in travelling commercial carriers...pretty neat! Hopefully I'll get my doctor to sign off on it for me and I'll be able to prove financial hardship with all my medical bills...

Anyway, thanks again and keep posting! I will too!
Stacy
s
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