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I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!! I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!!

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  #1  
Unread 02-14-2003, 09:58 PM
I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!!

I posted about my bowel problems a few times now. I also posted about my Stress incontinence and Sheri, you gave me some great sites.. Thanks!!! Now I am looking for sites concerning bowel problems. I have found very few and none of the information pertains to me. I have horrible hemmeroids and alot of bowel problems I really need help with. I have to lean back and move back and forth to have a bowel movement. It is like nothing is lined up anymore. I have to lean forward and strain to urinate and had urodynamic testing done and am still waiting for my follow up appt with my urologist. I know I have severe stress incontinence and a few times, bed wetting. I just can not seem to have a normal bowel movement. I feel like I am giving birth. My stools are not hard at all, but not diarreah (sp?) either. Their somewhere in between so I dont feel constipated at all. I go every morning like clock work but it does not seem to want to come out. Sorry to be soo graphic. I am just soo confused about this one. My Doctors have not really paid much attention to my bowel problems and assumed they went along with my back problems. I have DDD and 2 herniated discs in my lower back. BUT the neurosurgeon said that my back and bowel are not related. SO NOW WHAT?? Could it be internal hemmeroids causing this? I am also having alot of lower pelvic pain, almost like period cramps, BUT I had a hysterectomy a year and a half ago so what is causing the pain?? I am in the process of being diagnosed, but the wait is killing me since I am seeing my regular PCM and a Gyn and a Urologist and a Neurosurgeon. Do I need ANOTHER specialist??? Please HELP!!!

HUGS TO YOU ALL!!! Pam
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  #2  
Unread 02-15-2003, 10:01 AM
I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!!

((((Pam)))),
I'm soo glad the sites helped you RE: Bowel troubles, I'm experiencing similiar problems..Chronic constipation, severe pain w/BM's, unable to have BM's w/o some help, also I'm having some tissue protrustion when straining!! I've also had period-like cramps since my Hyst 3 years ago, they are thot to be from settled intestines(IBS), recurring endo, Adhesions, Ovaries...
I also have DDD and 2 herniated discs in my lower back along with Scoliosis, Arthritis & FMS that causes me great pain in my spine..my Dr says mine arent related either?!? Having a Hysterectomy can cause loss of Pelvic support & cause issues such as prolapse of our rectum, vaginal vault, bladder ect...
Here are some links that might be of some help in finding the source of your Bowel troubles:

Rectocele & Cystocele: http://www.intelihealth.com/IH/ihtI...9339/24445.html
http://www.emedicine.com/med/topic3325.htm
http://www.nwcrc.com/Rectocele.htm
http://www.fascrs.org/brochures/rectocele.html

Surgical repair info on Rectoceles:

http://health_info.nmh.org/Library/...asp?hwid=tv1532

http://www.gyndr.com/genital_prolapse_surgery.htm

Rectal Prolapse:

http://www.fascrs.org/brochures/rectal-prolapse.html

Cystocoele, rectocoele and pelvic support surgery:
http://www.sgsonline.org/edpro002.html

Repair of the rectum (rectocele) and small bowel:
http://health_info.nmh.org/Library/...asp?hwid=tv1532

http://www.healthcentral.com/librar...tent.cfm?id=266

http://www.orgyn.com/news/2002/week_..._infrequen.asp
  Quote:
What symptoms are caused by a rectocoele?:

In a study by Kenton K et al, of 46 women undergoing rectocoele repair, preoperative symptoms that were felt to be due to the herniation of rectal tissue included protrusion of rectal tissue from the vagina, difficult defecation (bowel movement), constipation, dyspareunia (pain with sexual relations), and manual evacuation or the need to put fingers in the vagina and push down on the rectal protrusion in order to have a bowel movement.

Rectocoele symptom Incidence (%)
Protrusion 85%
Difficult defecation 52%
Constipation 46%
Dyspareunia 26%
Manual evacuation 24%

How well does rectocoele support surgery decrease symptoms.
In the same study from Kenton K et al, they looked at how well the initial presenting symptoms improved when remeasured at one year after the surgery. Basically, protrusion and painful sexual relations resolved by 90%, but difficult defecation, constipation and the need for manual evacuation only improved by 35-55%.

Rectocoele symptom Preoperative(%) Postoperative (%)
Protrusion 85% 9%
Difficult defecation 52% 22%
Constipation 46% 26%
Dyspareunia 26% 2%
Manual evacuation 24% 15%
http://www.wdxcyber.com/nurine05.htm

  Quote:
Bladder dysfunction can occur after radical hysterectomy, and incomplete voiding should be evaluated by your doctor, since there can be treatments that help. As far as bladder prolapse, it can happen irrespective of whether one has had a hysterectomy or not (most often, it relates to previous vaginal deliveries and a weakening of the pelvic support structures
http://www.obgyn.net/ah/ah.asp?page=/ah/ATE_1102



  Quote:
Enterocele:
Enterocele occur primarily in patients who have had their uterus removed (hysterectomy). The anterior vaginal wall (pubocervical) fascia and posterior vaginal wall (rectovaginal) fascia separate and intestines can push directly against the vaginal skin. The herniation at the apex of the vagina is known as an enterocele

Patients with a large enterocele, vaginal vault prolapse and uterine/vaginal prolapse may experience:
Pelvic or vaginal pressure
Difficulty evacuating rectum
Difficulty emptying bladder
Dyspareunia (painful intercourse)
Lower back pain/discomfort
Increasing pain/discomfort with prolonged standing
Decreased pain/discomfort upon lying down
Pain increases as day progresses
http://www.urogynecologychannel.com/prolapse6.shtml

Hysterectomy increases risk of urge incontinence:
http://www.orgyn.com/news/2002/week_...my_increas.asp

What's a herniated disc, pinched nerve, bulging disc…?
http://www.spine-health.com/topics/c...ce/diff01.html

Is surgery always necessary to treat a prolapse?
http://www.womenshealthmatters.ca/ce...l#hysterectomy

Pelvic Prolapse:
http://www.womenshealthmatters.ca/ce...pse/index.html
http://info.med.yale.edu/obgyn/uro/prolapse.html
http://www.womenshealthmatters.ca/ce...sary/index.cfm
http://www.orgyn.com/resources/magowan/hc005270.asp

A Patient's Guide to Degenerative Disc Disease:
http://www.allaboutbackpain.com/html/spinesub.asp?id=36
http://chorus.rad.mcw.edu/doc/00873.html
http://www.emedicine.com/pmr/topic67.htm
http://www.spine-health.com/topics/c...w_degen01.html
http://www.allaboutbackpain.com/html...Disc%20Disease
www.spine-universe.com
http://www.spineuniverse.com/surgery...t_herndis.html
http://my.webmd.com/encyclopedia/article/1661.53653
http://www.medicalmultimediagroup.co...back/back.html

Rectal Prolapse:
http://www.clevelandclinic.org/misc/...tal/rectal.htm
http://www.surgical-tutor.org.uk/sys...l_prolapse.htm

http://www.umm.edu/digest/ibs.htm

http://www.acg.gi.org/acghome.html
http://www.surgical-tutor.org.uk/sys...flam_bowel.htm

vaginal wall prolapse treatment:
http://www.dukeuroandgyncare.com/trea_vag.html

http://health.discovery.com/centers...st_options.html
http://www.wdxcyber.com/nbleed13.htm

Pelvic organ prolapse common during menopause:
http://www.orgyn.com/news/2002/week_...an_prolaps.asp


I posted every link I had that contained info on prolapse & bowel problems Good Luck ((Pam)) I dont know if you need another Specialist?!? Maybe wait & see what your Dr recommends? Have you ever seen a UroGyn? or a Colo-rectal Surgeon??
Please keep us posted & let us know how your diagnosis is coming along....(((((hugs)))))
  #3  
Unread 02-15-2003, 12:16 PM
I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!!

(((((Pam)))))) I'm so sorry you're having so many problems

Your symptoms do sound extremely familiar, much like the ones I had before my hyst. In my case, I was also dealing with IBS (still a problem) and rectal prolapse. Of course, the extremely enlarged uterus also caused some problems.

Like you, I had to lean forward and back in order to be able to urinate or have a bm. And, like you, I always felt like neither my bladder or my bowels would fully empty. And, like you, I sufferred from stress incontinence.

I would also find that I had a lot of back pains from poor posture while walking and always had that feeling of pressure in the pelvic area.

My ob/gyn was the one who diagnosed the rectocele.

BTW, I'm now sufferring from chronic hemmorrhoids (sp?) and they do tend to cause some of the same problems, though not as bad.

I hope you find a doctor who takes your problems seriously real soon
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  #4  
Unread 02-15-2003, 02:05 PM
I Have Had Enough!!! I Dont Know Where To Turn!! Please Help!!!!!!

(((Pam)))

Diane just posted in this forum a couple of days ago with some wonderful links about the intestinal "remodeling" that goes on following a hysterectomy. I know that's what I've always suspected was behind much of my intestinal "distress", especially following the hyst -- and my intestines were shoved over on one side for probably years with the problems I'd had, so I wasn't particularly surprised to have trouble afterwards too. This is the link: Severe constipation .

Certainly the cramping sensation you experience is probably due to this "remodeling" -- where the colon moves into the space vacated by the uterus. I notice it, especially if I'm not really regular. And I have some IBS, but I'm finding that two Metamucil wafers a day is really improving that enormously for me (without medication, thank goodness!).

I realize that, between Diane's links and Sheri's links there's a lot of reading to be done, but my suspicion is that you're dealing with sort of an internal "prolapse" -- as you put it, "it's like nothing is lined up any more". And the positioning of most American toilets doesn't really help, either.

Do be careful about straining to move things, though -- it's not good for those herniated discs . This unfortunately is the sort of thing that will require a colonoscopy or barium enema to truly pin down.

Good luck...I know, first hand, how miserable this can be...



Audrey
  #5  
Unread 02-15-2003, 09:12 PM
Thank you all sooo much!!!!

I am so grateful that you all are here!! I dont know what I would do without you all!!! I am having a REALLY, REALLY bad day. I could not have a BM and I was cramping really bed today. I am on Tylox for my back so I did get a little pain relief. Should I take a fiber suppliment even though my stools are soft? Is what I am having constipation? I am just really frusterated today. I am having alot of pain in my lower left part of my abdomen. I just wish I could get somewhere fast with a diagnosis. I am sick of finding things out in stages. I just need it all to be diagnosed and fixed. I have endless doctor appts but they are all with different doctors. I dont know if I need to take this up with my GYN or my Urologist. I am going to talk to them both and see if I need to be referred out AGAIN. I just wish I could find 1 doctor that can take care of it all.. I have alot of reading to do so I will be better prepared when I do go and I will have a list of questions. Thank you all again, your all angels!!!!!!

BIG HUG, Pam
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