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Phantom Cramps? Phantom Cramps?

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  #1  
Unread 02-16-2003, 09:01 PM
Phantom Cramps?

Hey girls!

It's been a while since I've had time to get on here, and this question has probably been asked before, but have any of you had "phantom cramps"? I could be wrong, but I assumed that once the uterus was gone, it could not produce cramps anymore at PMS time. I can figure out the ovarian-related junk like chocolate cravings, zits, mood changes, etc. - but I still get a killer case of cramps every month. What's up with that?!

I miss you all! It's so hard to make time to get over here now that I'm back to work. Hope all is well with my sisters!

Tons of love,
Mis
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  #2  
Unread 02-17-2003, 07:03 AM
me too

Hi Missy
I can relate to what you're saying. I was 3 yrs. post menopausal and I still have had phantom cramping since my surgery. I was beginning to think I was nutty. I had it some before the surgery, but with the organs you assume there is a reason. Do you have to take anything for yours?
Best wishes
Nola
  #3  
Unread 02-17-2003, 10:30 AM
Phantom Cramps?

Missy,

Hey.. I remember you from the pre-op side! I have had some twinges as well. I would not exactly call mine cramps. It's more of a shooting type of pain on either side and I think it might be endo on my ligaments. I pray continually that it will not get any worse.

It was really just a discomfort this past month. The month before it was bad pain, but my bladder was also spasming and that probably aggravated things. The bladder is now under control so I am feeling much better.

I can live with discomfort for a couple of days out of the month ... compared to horrible pain almost daily before the hyst.

Hope your pain is managable as well!

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  #4  
Unread 02-17-2003, 12:16 PM
Phantom Cramps?

Hi Missy,
I experience these cramps every month, just like when I used to get my monthly menstral cycle. I first felt the cramps at 4 weeks post-op along with some spotting! I practically ran to the DR's office and was told that, since only my uterus was removed, some of the tissue that connects to the cervix has some leftover layers that may shed monthly, just like a menstal period but milder. My cramps were associated with my cervix that would dialate during this time. I don't know if your situation is anything close to mines but these were the answers my DR gave me.
Hope this Helps,
Evette40
  #5  
Unread 02-17-2003, 02:07 PM
Phantom Cramps?

I experienced these cramps, that would send me back to the couch with my tummy pillow, for about 6 months once my ovaries went back to work, after my surgery.

It was so bad that I ended up back at the doctor's at 5 months Post-Op. My doctor was surprised that I was having so much pain, especially since I never really had PMS symptoms before my hyst. He did say that he was almost positive that, as my ovaries recovered from the shock of surgery and from the absence of the uterus, that things would improve. And in my case they did.

I would suggest you consult your doctor, since it could be caused by hormonal unbalance. My own doctor tested my hormones and my thyroid levels. Sometimes we may not think about it, but there might be some relief available, providing you ask for.

BTW, I never really found out just what was causing all of this cramping, with the uterus gone.
  #6  
Unread 02-17-2003, 04:34 PM
Phantom Cramps?

Thanks for all the replies and support. I have had some slight spotting at times too, but my cervix was removed with my uterus. I do think it's hormonal - I had really bad insomnia last night, and ended up coming home sick from work today at noon because I was still cramping really bad, had hot flashes, and felt like I had a bad case of morning sickness that wouldn't go away. It wasn't like a "flu-ey" feeling, no intestinal problems or sore throat, I just felt really cruddy, like I was hit by a hormonal hurricane. I haven't called the doc yet, since she's only in the office near me on Weds., but I did see her about the spotting when I was having internal physical therapy for the MPS. She said everything looked fine. I don't get it. I have asked her before to do bloodwork to check hormonal levels but she doesn't seem to think it's necessary. Maybe I'll ask my GP instead, since I had that spell of near-fainting a few weeks back. Something just isn't right. I hope it passes, cuz I refuse to have another abdominal surgery, no matter what. I'd rather live on pain killers and heating pads than go through this again! Anyway, enough crabbing. Hope all is well with you girls. I'm also hoping to get back here more frequently. I have been so busy, I didn't realize how much I missed it here and still need the support. Thanks for being here. Love you all!
  #7  
Unread 02-17-2003, 06:47 PM
Phantom Cramps?

Missy, your symptoms sound very familliar. When my hormones were all out of whack, that first year post-op, I would be having PMS symptoms AND peri-menopausal symptoms all at once

I was lucky that my ob/gyn agreed to have my hormones tested, because I've seen many doctors who simply won't test, because they figure that with keeping our ovaries our hormone levels should be right. When that happens, I just say: humor me and please run the tests, so I'm satisfied. Usually works.

Hopefully, you'll have better luck with your GP.
  #8  
Unread 02-18-2003, 08:09 AM
Phantom Cramps?

Missy,

My doctor might feel like rolling his eyes at me if I asked for my hormone levels to be tested - but he'd do it. I am sure of that, or he would not be my doctor. It's such a simple request. [I had read somewherere that they can check with your saliva for hormone levels so it might not even require the drawing of blood.]

I get so bent out of shape at the thought of doctors not listening to patients. I have had several doctors who have told me that since I live in my body [and they are only seeing me for a few minutes] that I probably have a better feel about what is going on.

So, you are taking this better than I would. I think sometimes God is whispering in our ear and its up to us to follow through.

I'll be ing that you will feel better soon!
  #9  
Unread 02-19-2003, 10:08 PM
missasister!

Oh, my God, we've both been so busy feeling the exact same way we haven't talked for a while! I have missed *at least* one day of work every week for the last 6, because of the exhaustion, hormonal, morning-sickness, back cramps -- like the PMS truck broadsided me... I am back to sobbing and screaming and breaking things. I spend more time apologizing than anything else. Dr. wouldn't test my levels again because we're dealing with a large cyst right now, but I finally saw another one who *did* draw blood.... while I don't think I'll stay with this guy, still interested to know just how off they are -- because I am just nuts, physically and mentally at this point. Hot flashes and dry hair are both back, too. No advice to offer -- but God, I feel your pain!
For more on my most-recent nightmare, check my post, "My ovary is screaming to get out!" (or something close to that)
Take care of yourself! Thinking about you while wallowing in my own misery!
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