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Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

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Unread 02-19-2003, 10:31 AM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy


Good luck with your test - it'll be over before you know it ! I heard that the cysto isnt too bad - but I'm sure the prep isnt any fun. Make sure they give you the "happy stuff" - or better yet - knock you out !
We will all be thinking of you - let us know how it goes 's

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Unread 02-20-2003, 08:13 AM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

My friend, my sister I am so hoping that this test will help to show your doctors how to heal you. I know you will do just fine sweetie. You are in my thoughts and prayers my dear.
Unread 02-21-2003, 02:23 PM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

Just a quick update

The test went really well! Thanks dear friends for all of your support. There were a couple of weird things going on...for whatever reason my bladder does not want to void completely. The doc (who was so nice) kept finding little pools of urine even after taking it all out - so he thought! He doesn't know why I'm unable to totally void etc.

He has prescribed a bunch of meds...don't really know what they are, but will check in once I get them from the pharmacy. He wants me to double void...I think that's what he said. Once I'm done, I need to partially stand up (think squat) and push...kind of like a kegal idea I think.

He wants to see me once I see the Endocronologist doc that he is refering me too (yet another specialists LOL!) So I guess we'll take it from there.

I'm also still waiting to hear about the bowel day. I wonder why they want me to see an Endocronologist? Is this the kind of doc that looks at the whole picture??

I really loved something he said...he said that he wants to get all of my dr's working together as a team to get me better. He's definitely a keeper sisters.

Thanks for listening to me....not as short as I thought LOL! Sending you all lots of
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Unread 02-21-2003, 03:42 PM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

I'm soo glad all went well my friend Please know my thots were w/ you today! You definately have a keeper there I'm soo glad you have found such a wonderful team of Drs who are investigating *every* possibility! Keep us posted ((Judy)) may some relief be around the bend...((hugs))
Unread 02-21-2003, 05:42 PM
Happy for you

I'm so very happy for you that you have a nice doc and the test went well. It sounds like he is concerned about helping you with your bladder. My urologist said I seem to have a really small bladder capacity after that test, and he was thinking it could be because of all the leaking and stress incontinence I experience it would contribute to not having better capacity. I'm not totally sure about an endocriniologist, I'm thinking that involves growth, hormones and immune function perhaps? I sure hope you are able to resolve these issues, even if it is just one step at a time. I'm getting really nervous here since my surgery is on Wed. I'll keep you in my prayers so you may find the healing you deserve.
Love, Light, Blessings
Unread 02-21-2003, 09:08 PM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

((((Jude))))) I'm so happy that all went well and that you've got such a terrific doctor an to keep, for sure!!!

Hope that this doctor succeeds and finds the team to get you all better
Unread 02-22-2003, 10:12 AM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy

Hi (((Jude))) I'm so glad the test went well! Did you find out yet what meds the DR prescribed?

I just had a strange . I remember when I was pregnant, towards the end of each pregnancy, in order to void completely, I would have to empty my bladder (at least it felt like I was emptying it), then stand up, shift my weight (lifting up my belly helped), maybe walk a few steps, then try to go again and I would always get more urine the second time... I was wondering, is something pushing down on your bladder somehow (bowel perhaps) now that the uterus is out of the way? Have you noticed if there is any more or less effect on your bladder if your bowel is full?

Or could it be hormonal? The hormone levels change throughout pregnancy and especially near the end can really mess with your bladder and bowel function... maybe you are out of balance in a similar way? Just a thought.

Keep us posted on what you find out and how the meds work for you!
Unread 02-22-2003, 11:16 AM
Thanks ((((Sisters))))

((((Druid)))), I know that you are nervous...I wish there was something I could do to ease your worries. I too will keep you in my prayers so you may find the healing you deserve. I know what you mean about taking this one step at a time...they feel like baby steps...but that's okay. I'm here if you need me sweetie.

((((Linda)))) Yes! This sounds exactly like what the dr told me to do. I may try a few steps as you suggested to see if that helps...Thanks!

Interestly...during the cysto, I was able to 'see' my bladder on a TV He did point out a rippling of the bladder, and he said it was caused by my bowel. I don't remember if he said it was resting on the bladder or not. He did say that with my history, surgery would not be a good idea at this point. I'm not very clear on exactly what he meant, and didn't have the chance to ask him, as an emergency was coming in. I wanted to ask him why did he even mention surgery. Would he do one on a person that hasn't had as many as me? And for what?

Another strange know how they fill your bladder with gas (although if feels like water?) Well we went through the 'tell me when you get a slight urge...really have to go etc.' When I said I felt that I really had to go...he said to go. I tried and tried, but I couldn't. This seemed to mystify him and his staff. Any ideas on what that's all about?! Sorry to ask so many questions here....

Another strange thing, is that I've only passed urine once today. Usually when I wake up I have a lot of urgency...this morning, I didn't go for a good half hour, and then I realized that I should try, and sure enough some came out. I haven't gone for 4 hours...and that's a lot for me. Strange eh? My bladder is sore today (I'm guessing it's from the cysto). But I'm a little concerned about not even feeling the 'urge' as I've had some coffee and a few glasses of water....mmmm!

Okay, now for the meds: Phenazopyridine - 200mg - take one tablet 3 times daily for 3 days. Macrobid - 100mg - take one tablet twice daily. Lorazeoam - 1mg - take 1 tablet twice daily.

I'm guessing that the first two meds are the usual follow-up after a cysto to avoid infection? He only prescribed enough for approx 5 days. The last med is supposed to relax my bladder. So we'll see...

Thanks for all of your input and S dear sisters. You all remain in my prayers...
Unread 02-22-2003, 11:37 AM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy


I've been somewhat scarce, but I have been following your story as I can. I'm so glad it all went well, and you have such a "keeper" for your uro!!

I would guess that the "reluctance" today is probably due to some residual swelling from the cysto. I wouldn't be surprised if there was some inflammation from the instruments and inflation, etc. I see you said that you had some coffee along with your water...have they not taken you off caffeine? It truly is a bladder irritant and even decaf coffee can cause problems (something in the coffee itself -- tea doesn't seem to be as much of a problem).

Did they actually find any fistula? Wasn't that supposed to be part of the goal for this particular test? The "folds" or ripples that they found do sound like some impingement of intestine lying across part of the bladder, so it makes perfect sense that shifting your body around some would help with complete voiding. I've been having to do that as well since about two months after the hyst. Walking around is helpful too. I've been lucky in that I've not had the incontinence problems that often go along with this, but I do know all too well that sensation of never being quite "empty". It doesn't seem like the sort of problem for which surgery would be all that useful, unless they would be considering re-suspending your bladder (Druid, isn't that what you're having done?).

Jude, the first two meds are antibiotics...the third one is actually a cousin of Valium (lorazepam, right?) and you may find some sleepiness with its use.

I'm so glad this is over for you and you've finally found someone with a real commitment to helping you find your off-ramp. WTG!!!

Unread 02-22-2003, 12:19 PM
Best wishes to Judester (Judy) - (Feb. 21st) Cystoscopy


Yes, you are right it is lorazepam! I guess it is working, as I feeling sleepy and I'm not spelling very well LOL! Thanks for all of the info on the meds.

The doc didn't seem to be too concerned about the coffee as long as it wasn't in large amounts. I usually have two cups in the morning, and dh and I like our coffee really weak...I mean to the point that family/friends won't drink it (unless I make them a 'real' pot) I suppose I should consider going off of it altogether I love my coffee!!!

No mention of a I'm guessing everything is okay. This would be a good time to do a tampon test, as my urine is very orange from one of those meds. Do you think I should bother? He did say my bladder looked okay...nothing wrong with it, no cancer (I didn't have much of a chance to talk with him at all due to an emergency). Just this 'not being able to void'...and not even feeling the need to go has him concerned. Any ideas on why this could be happening ladies??

Thanks a bunch sisters

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