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  #1  
Unread 02-25-2003, 10:00 AM
Tumour

I posted on the pre-op message board, but everyone in there seems to think you guys could be more help. To make a long story short....I started out having heavy periods, blood clots etc. went for a coouple internal ultra sounds a month apart. Then my dr. sent me to specialist who said the radiologist found a 5cm tumour on my right ovary. The doctor is taking out both ovaries, tubes and uterus next month. I had also been experiencing back pain with pain shooting down my right leg, and wondered if anyone else had these symptoms?
With the symptoms given what do you think the chances of it coming back as cancer are???
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  #2  
Unread 02-25-2003, 10:24 AM
Tumour

Ovarian cysts are very common in women of reproductive age. It is hard to say without knowing what the radiologist saw -

Did you have a CT, ultraound or MRI performed?

Has your doc ordered a CA-125? It is a blood test that is a marker for ovarian cancer. It is not a perfect test by any means (plenty of false positives and negatives) but it is one more thing docs look at sometimes in deciding whether someone is at risk for ovarian cancer.

Have you talked to a gyn-oncologist? If ovarian cancer is being seriously considered, many of us feel pretty strongly that a gyn onc do the surgery.




Dorrie
  #3  
Unread 02-25-2003, 10:59 AM
gyn oncologist

I'm from canada, and not sure if a gyn oncologist is the same thing as a gynaecologist / obstetrician?

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  #4  
Unread 02-25-2003, 11:17 AM
Tumour

Hi.

A gynecologist oncologist specializes in cancers of the reproductive system. It is not the same as an obstetrician.

They found my tumor last week, so you and I are in a similar boat. Do ask your hospital / care providers if they have someone who specializes in gynecological oncology.
  #5  
Unread 02-25-2003, 11:58 AM
Tumour

Hi there,
I have a 5cm septated cyst on my left ovary and 'some' fluid in my abdomen (at time of ultrasound 3 weeks ago- who knows what's going on in there right now)...I have been having the same symptoms...I have the lower back pain that feels like it did when my sciatic nerve was pinched...the pain is mostly in my butt and thighs...I have gaseousness that is making my husband blush...I have a dull achiness in my tummy...I tried doing my crunches (hoping to stay in shape through all of this) and big mistake...boy was I hurting afterward...should have guessed by the word 'crunches' alone that it wouldn't be a great idea...I dont know if those are symptoms of 'cancer', but in my situation, that is what I"m experiencing.
I am scheduled to have the left ovary and tube removed and a D & C done (to biopsy the uterus) on the tenth of March...they are going to do the pathology on those things and then I'll know where I stand...I was first told that because of the nature of the cyst that they are concerned that it could be malignant...but they now are saying it could be endo...my ca 125 was 26 (not over 35)- but I also realize this isn't an accurate indicator...
Anyway, good luck...
Ericka
  #6  
Unread 02-25-2003, 12:29 PM
Tumour

Thank you everyone for replying. I am trying not to get worried about something that may not be..... Thank you also Ericka ....please let us know how you make out, your symptoms are VERY similar to mine. I am very curious!!
  #7  
Unread 02-25-2003, 01:56 PM
Tumour

s justwaiting

Please make sure the specialist you are seeing is a gyn oncology surgeon. They are the experts. If it should turn out to be cancerous, this is who you want and need to perform the surgery.
Canada definitely has this type of doctor. Insist upon it!!!
Best wishes to you.
Stay in touch.

karenann
  #8  
Unread 02-26-2003, 07:41 PM
Tumour

Hi:

I had a large tumor on my left ovary ( it weighed about 20 lbs by the time I had my surgery) a mucinous adenocarcinoma (ovarian 1a grade 2). The CT scan and ultrasound didn't show any ascites and my CA 125 was 17. The doctor also did a cancer tumor blood test which came back negative. They really don't know until the pathology report sometimes. Before I finally found out what was wrong I had a lot of gas, indigestion, bloating which can be early "signs" of cancer. My family doctor in the summer said I had gastritis and gave me medicine for acid reflux disease! My surgery was done by a gyn-oncologist. If you suspect "c" or a borderline tumor they are the best. I have been reading a lot of ladies here that have to go another surgery for staging. Mine did it all at once - the moment the pathology showed at least borderline he did a full TAV BSO and appendectomy and did all the staging. Thank God in my case it was just a small part that was bad inside and it had not spread.

A friend of mine in the medical field once told me that if you are bloated and have indigestion for more than a week go check it out - ovarian cancer first warning signs are those.

Good luck,

chibi
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