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You All Sound So Brave! You All Sound So Brave!

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  #1  
Unread 03-02-2003, 03:28 PM
You All Sound So Brave!

Hi, I'me jennimarie,
I have been reading a few stories here but have many more to get through. Just the few I have read have been an inspiration to me and my family.
Will try to cut a long story short. I have gone through the menopause.......last period was March 200. Last July I had what I can only desribe as contraction like pains. My doctor sent me for a ultrasound scan that showed a small fibroid but the pain was caused by a larger one that had degenerated by the time I had the scan. I was reffered to a gyn with an appointment for end of September 2002. I didn't attend as my hubby was already in hospital having had a bowel resection for early bowel cancer.
He was doing fine for 14 days after but then had peritinitus. He was critically ill for the next week so had to cancel my second appointment. He is recovering well and should have had his stoma reversed today but alas there were no beds available.

Last Wednesday I was given a C.T. scan which revealed I have cancer in the muscles of the uterus which has spread to both lungs. I have been given a 30/50% chance of responding to chemotherapy. If I respond well then I have a choice of whether to have a hyst at a much later date......when I recover from the chemo. I am 54, have been married to a wonderful man for 36 years and have one lovely 25 year old daughter. For the past 5 days they have been my rock.
I have no intentions of giving up. I know in my heart, regardless of what the cancer specialist says, that I can beat this.

I am taking 2 different medications to stop the heavy bleeding (which by the way, had me in hospital a couple of weeks ago for 5 days).
I am seeing a chemo lady doctor on Wedneday who will be explaing stuff to me and measuring me for a WIG!!!!!!
Thanks for listening, and if I can be shoulder for some of you to cry on, just let me know.
Looking forward to hearing from you.
jennimarie.
P.S. Feel free to e-mail me. Whichever you prefer.
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  #2  
Unread 03-02-2003, 04:11 PM
You All Sound So Brave!

Hi Jen,

Just wondering if you got my e-mail? I didn't receive any kind of confirmation from HysterSisters so can't tell.

Connie
  #3  
Unread 03-02-2003, 05:23 PM
You All Sound So Brave!

God bless your heart...You are in my prayers and keep us posted on how your doing...Your outlook is positive and that can make a huge difference...I'm living proof of that



SARA
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  #4  
Unread 03-02-2003, 05:32 PM
Wishing You Well

That's a big diagnosis to think about. One thing to remember--statistics are numbers; you are a PERSON. Give it your best shot--and insist on the best from your doctors. I'll say a er for you. Ellen
  #5  
Unread 03-02-2003, 07:55 PM
You All Sound So Brave!

s Jennimarie

Welcome to Cancer Concerns. I am so glad you decided to visit this forum.
Like I said earlier, their are quite a few of us posting here, that are surviving and thriving inspite of the statistics against us.
Statistics are only numbers. And if your number falls on the good side, that is 100%.
Please stop back after your visit with the oncologist and let us know your plan of attack.
Many of us have been through chemo and love to share all of our tips with newcomers.
I hope your husband is doing well.
Keep in touch.

karenann
  #6  
Unread 03-02-2003, 08:29 PM
You All Sound So Brave!

((Jennimarie)) ...... welcome! You certainly have a lot on your plate. Sending good thoughts and my best wishes for you and your DH.

  #7  
Unread 03-02-2003, 08:51 PM
You All Sound So Brave!

Jennimarie,

WOW! When it rains it pours. :Hug:
You have been through alot, and I am glad that you found us.
Two things popped in my mind when I read your post. You had a fibroid, with bleeding/pain and you have a cancer in the muscle of the uterus. I have what is called Endometrial Stromal (muscle) Sarcoma. Did they give your cancer a name ? It sounds like what I have, unless there is more than one kind of muscle, and I don't believe there is. This tumor (usually in a fibroid) is Estrogen fed. If you DO have ESS, you should have Surgery to remove your Ovaries, and not take hormone replacement. Usually, it spreads to the lungs and responds to Megace. Can you tell me more? I see you live in England, so you must be on the National Health plan. You and your family are going through so much now. Feel free to write to me anytime. You are in my prayers.
Lori
  #8  
Unread 03-02-2003, 11:30 PM
You All Sound So Brave!

Jennmarie,

You sound very brave too. Don't worry too much about those statistics. I am doing much better than my doctor expecred according to statistics and I pray that you will too.
  #9  
Unread 03-03-2003, 03:40 AM
You All Sound So Brave!

Hi Jennimarie,

I, like yourself and a lot of other ladies on this site are new here. I have to agree with Lori - she and I have been having discussions about Endometrial Stromal Sarcoma (there are lots of different variations) and it does sound like this may be what you have?? - If you are able to get a "name" for the tumour/s you will able to be so much more informed and if it is ESS then there is a great online support group which Lori and I both belong to. Feel free to email me if you like.

Most of all keep positive. Keep informed and don't let yourself get dragged along. You'll find this site a great source of information and support and loads of s when you most need them. You sure are going through a lot at the moment.

Big from the other side of the world

:

Lena
  #10  
Unread 03-03-2003, 10:37 AM
I Have A Name!

Thank all soooooo! much.
Connie......Didn't receive any e-mail but thanks for trying. Please try again.

What a weekend........my husbands stoma reversal op got cancelled yesterday due to a bed shortage!!!!! His bag was packed and in the car by the time they let us know.

Lena and Lori.....The name of the tumuor is...PLEOMORPHIC SARCOMA......mixed malignent mullerian tumuor(sp). It's rare apparently. This has scared me even more and I certainly did not want the gyn/oncologist to give me a PROGNOSIS! I feel it would take every bit of fight out of me so he said not to ask any questions if I didn't want the answers. Not exactly inspiring words were they?????
Do any of you ladies feel I should ask for a second opinion. I have been assured by the hospital that he is the best around for miles...bearing in mind I am in England.
Sorry for being all doom and gloom, and thanks for listening.
jennimarie.x
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