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Uterine Cancer Uterine Cancer

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Unread 03-03-2003, 05:35 PM
Uterine Cancer

Hi Ladies,

I had a TAH 2 years ago, but my question tonight is about my sister.

She found out last week that she has fibroids, polyps, and a thick endometrium. The latter is due to not ovulating and making too much estrogen and no progesterone. The doctor said that her ovaries are bumpy like raspberries (I don't remember the medical term), because her ovaries do not release the eggs completely. She will have an endometrium biopsy tomorrow, because the doctor wants to check for pre-cancerous cells. She is 40, with 3 kids and has never had female problems. But, for the last 2 years, she has had extremely heavy periods and lots of cramping/back pain.

Does anyone know what this could mean? Her doctor is not very informative and we don't know if he is not sharing all info, or if it is really not such a big risk. Any ideas?? I am terrified.
Thanks for any input!

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Unread 03-03-2003, 09:22 PM
Uterine Cancer

Hi, the heavy bleeding your sister is having could be due to any number of things, including the presence of fibroids, endometrial hyperplasia or cancer.

If your sister is diagnosed with endometrial cancer and it is caught early, the only treatment she may need is a hysterectomy and removal of her ovaries. If her cancer is more advanced, as mine was, she may require radiation therapy. In any event, the 5 year survival rate for this type of cancer is greater than 90 %.

Please feel free to email me if you have any other questions.

Unread 03-03-2003, 10:00 PM
Uterine Cancer


I'm so sorry your sister is having this scare but I'm glad she's getting things checked out.

She might want to check into getting a second opinion or a consult with a Gyn Oncologist. Gyn cancers are their specialty so if anything along that line is suspected, I would most certainly recommend getting one involved.

I hope she'll be able to get more information and hopefully this will turn out to be nothing to worry about.


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Unread 03-06-2003, 02:32 AM
Uterine Cancer

My endometrial biopsy showed endometrial hyperplasia (early precancerous cells) and possible focal cells (cancerous cells). If hers shows up anything like that make sure you have a consult with a gyn oncologist. My frozen section at the time of the hyst showed stage 1 endometrial adenocarcinoma, the final report upped it to stage 1 grade 2 and I had to go back for a secound surgery to have the gyn onco do a lymph node dissection. The could have done this at the time of the hyst but the finall report was what tipped them off to the need for that. My surgeon had talked to the gun onc preop and he felt he wan't needed, so it was a surprise to us all about the grade 2. I also had multiple fibroids.

The raspberry lumped ovaries are probably polycystic, full of small cysts. On ultrasound they can look like a chain of pearls around the outside or dotted with what look like choc chips. I too had infrequent periods. There is a syndrome called polycystic ovarian syndrome (PCOS) that sounds like she might fit into. One of the things that can occur if untreated (treatment just found in the last 5-6 years but most doctors unaware of the diagnosis even) can lead to endometiral cancer...and that is directly related to the building up of the enodmetrium from not having periods. You can go to www.pcosupport.org to find more information about this.

Saying all this, caught early not much needs to be done if the lymph nodes are clear. So early detection like this is the important thing. But I also know a lot of PCOS patients that so far have not had any cancer related to this. Remembber each one of us is unique and different. The important thing is for your sister to get this all checked out, just as she is doing. And if you have to get a gyn cancer, this is supposedly the one to get. If your sister want to email me privately with any questions about the PCOS, I would be delighted to help her out and get her some resources.

Linda Case
StampinCat >^..^<

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