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cystocele and rectocele HELP! cystocele and rectocele HELP!

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  #1  
Unread 03-05-2003, 02:59 PM
cystocele and rectocele HELP!

I really need some helpful words about now. I had LAVH on Jan 23, 2003 I had one problem after another after surgery.....Vaginal cuff abscess with excessive drainage (seems to be healing nicely now), couldn't void, terrible pains in my back and rectum. couldn't have a BM with out a lot of pain and manual pushing (fingers). I asked before my surgery what the buldge was down there and was told that it looked normal. then again after the surgery I pointed and said "that don't you see that?" The dr told me it looked normal. So very frustrated and trying to prove that I ws not making it all up I took the digital camera in the bathroom and took a picture. went to the dr and said " that, is that normal!" He did another kind of exam and told me that I have a stage 1 cystocele and a stage 3 rectocele. He told me that I would need another surgery to correct the rectocele as there is a bit of prolapse in the rectum as well as the rectocele. But not to think about it right now. HE also said that his feelings wouldnot be hurt if I decided to go to another dr to do the repair. that raised a few questions in Dh and myself and discovered that the rectocele is addressed in the surgical report "Vaginal walls are very relaxed and there is a fairly large rectocele." Ok Ok after all that here is some of my questions.

1. It hurts I am having a terrible time working what can I do?

2. How long can someone put off surgery?

3. Did my dr discharge me? Why ?

4. Why do you think that he did not do the repair at the time of the hyst? Is it his fault that now I am going to have to go through another surgery and 6 to 8 weeks recovery time?

5. Do I need to find another dr right away?

I know this is long sorry I just do not know what to do next.

thanks
Michele
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  #2  
Unread 03-05-2003, 05:28 PM
cystocele and rectocele HELP!

((Michele)),
Big ((hugs)) Your Surgeon is the only one who will know the true answers to many of these questions If you werent complaining of symptoms caused by these most feel surgery for something that isnt causing problems isnt warranted, unless it's an emergency of course. I'm sorry you will know be facing further surgery Most of this depends on how bad these prolapses are interferring with you daily life as to how long it can be put off?!? Here are some sites w/ some good info on both of these conditions that can provide you with some more insight:


Rectocele & Cystocele:

http://www.intelihealth.com/IH/ihtI...9339/24445.html
http://www.emedicine.com/med/topic3325.htm
http://www.nwcrc.com/Rectocele.htm
http://www.fascrs.org/brochures/rectocele.html


Surgical repair info on Rectoceles:

http://health_info.nmh.org/Library/...asp?hwid=tv1532

Rectal Prolapse :

http://www.clevelandclinic.org/misc/...tal/rectal.htm
http://www.fascrs.org/brochures/rectal-prolapse.html
http://www.surgical-tutor.org.uk/sys...l_prolapse.htm

Cystocoele, rectocoele and pelvic support surgery:
http://www.sgsonline.org/edpro002.html

Repair of the rectum (rectocele) and small bowel:
http://health_info.nmh.org/Library/...asp?hwid=tv1532

http://www.healthcentral.com/librar...tent.cfm?id=266

Treatment options:

http://www.dukeuroandgyncare.com/trea_ui.html

http://www.dukeuroandgyncare.com/trea_bladder.html


Incontinence Surgery:

http://www.gyndr.com/incontinence_surgery.htm


Laparoscopic and Minimally Invasive Procedures:
http://www.urogynecologychannel.com/lap_proc.shtml

http://www.obgyn.net/displayarticle...dures#lap_proc4


Treating women with urinary incontinence and prolapse:

http://www.mybladdermd.com/URPS.htm

http://www.urogynecologychannel.com/laparo.shtml


Dropped Bladder:

http://www.hisandherhealth.com/arti...d_bladder.shtml


Burch procedure:

http://www.obgyn.net/displayarticle...dures#lap_proc3

http://physicaltherapy.about.com/li...s=Urinary+Sling

Hysterectomy associated with urge incontinence:
http://www.womens-health.org.nz/whws...tm#hysterect62

Urinary incontinence higher after hysterectomy: http://www.womens-health.org.nz/whwsep00.htm#urinary

http://www.orgyn.com/news/2002/week_...my_increas.asp

Is surgery always necessary to treat a prolapse?
http://www.womenshealthmatters.ca/ce...l#hysterectomy

http://www.womenshealthmatters.ca/ce...pse/index.html

Menopause, Estrogen Loss, and Their Treatments:
http://www.umm.edu/patiented/doc40.html

Laparoscopic Pelvic Surgery for Prolapse: http://www.reproductivecenter.com/prolapse.html
http://www.reproductivecenter.com/lecture.html

Patient Brochure - Rectocele:
http://www.fascrs.org/brochures/rectocele.html

Pelvic Organ Prolapse, Urogynecology: Ob/Gyn:
http://info.med.yale.edu/obgyn/uro/prolapse.html
http://www.orgyn.com/resources/magowan/hc005270.asp

Good Luck ((Michele)) Pls keep us posted...((hugs))
  #3  
Unread 03-06-2003, 12:00 PM
Support

Hi,
I'm so sorry you are dealing with this. My hyst and first bladder repair was in 2000. Eight months later I developed a rectocele, went through all kinds of GI tests, colonoscopy, and then had the surgery for a posterior repair to fix the rectocele and a lap for adhesions. The surgery did help the rectocele. I was miserable for several months waiting for all the tests ect. before finally having the surgery. I know it's hard to think of another surgery, but in my case I couldn't stand the rectocele, it was painful and caused other bowel troubles, so I wanted it fixed. I'm back on the road now because my first bladder surgery failed (Burch) and I just had a bladder sling surgery last week. I would definitely get another opinion, and make sure you hear all of the surgery options and get it right and fixed so you won't have to have even more trouble. I will keep you in my prayers.
Love, Light, Blessings
Druid
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  #4  
Unread 03-06-2003, 01:51 PM
cystocele and rectocele HELP!

I really appreciate all of you all helping me with this. I really feel let down by my dr I think that this could have all been avoided if he would have examined me before the surgery he really did not see me until I was on the operating table I guess that is some what my fault too but I was just following his prptocal I went for yearly exam and saw the APRN she asked for the Ultra sound, I told her that I was having a colonoscopy the next week because of the terrible bowel problems I was having, and asked her what the buldge was down there. She said that is looked normal to her. I don't know.... I am going to try and put off the surgery until the summer if I can ?? My Dh keeps asking if it hurts well It is very very uncomfortable during the day but I feel like I am going to pass when I have a Bm I am trying to get regulated a bit better maybe a few more weeks
Thanks
Michele
  #5  
Unread 03-06-2003, 03:03 PM
cystocele and rectocele HELP!

Michele,

My personal opinion is that you find another doctor ASAP! You had a "bulge" before the surgery and your doctor didn't take it seriously ??? Did your doctor examine you standing up? My prolapses (note that it's PLURAL) were fine laying down, but when I stood up they were not only very evident but very uncomfortable as well. My surgery was was a TVH, rectocele, cystocele, and Burch ... but within 3 months something else was "bulging". My gyn was not qualified to do further surgery so I researched for a "specialist", a uro-gyn. What a difference a new doctor can make!!! I'm having a second surgery this month to "fix what needs to be fixed" and have mesh sewn in.

This new doctor is not a usual OB/Gyn - rather he specializes in female pelvic reconstruction. Since this is his speciality, he was very frank with his questions and examination ... which made it much less embarrassing for me. He also listened to ALL my concerns.

I share your disappointment at the thought of a failed surgery and the need for a second one. During the interim of deciding what to do, I was fitted for a pessary by my gyn. It wasn't too bad as I am young enough to put it in/take it out so sex is still an option! I think you should find a new doctor and ask about a pessary which will bide you some time while you decide what to do.

I wish you well. Kajsa
  #6  
Unread 03-06-2003, 04:41 PM
cystocele and rectocele HELP!

Thanks
My Dr did suggest a pessary but I said that I was not intrested. Does it help with the uncomtortable feeling of pressure and having a Bm I think that is the worst I can feel it's huge when I put pressure on it to go.

I am glad you brought up sex I have only been married for 6 months and am missing that part of our life. I am 7 weeks post op today and got ok for sex at 8 weeks because cuff infection and hole on Tuesday the Dr said I'll see you back in a year. Knowing I am still having all these things going on I just do not get it.
I was told that sex can be very uncomfortable with the rectocele and maybe worse after it is corrected. any insight would be greatly appreciated



Thanks again
Michele
  #7  
Unread 03-06-2003, 07:44 PM
cystocele and rectocele HELP!

Michele,

After rereading your initial questions #1-5, I think you should skip to #5 and find a new doctor!!! Your initial post just wreaks of too many discrepancies regarding your health vs. your "doctor". He even vaguely admitted that he might not be knowledged enough to continue with your well-being when he said you might like to see another doctor. AND, bottom line, you're miserable and he will see you in a YEAR??? Believe me, all doctors are not like that! Some actually want to help !!!

And you're a newlywed! You certainly don't need all these things wrong with "that part" of your body! My body is much more comfortable with the rectocele repaired - although I never had a problem going to the bathroom. You didn't mention if you were constipated or is the rectum "kinked" which makes it a more physical problem. There's lots of things to help with constipation, but I found a little magnesium supplement (over the counter) helps. I can't believe that sex could be worse after having a rectocele repaired. After all, the surgery supposedly puts the organs back in their normal position - where nature intended them to be - so why should sex be uncomfortable with that? I found it better when everything was "where it's supposed to be"!

Yes, the pessary really does help relieve the pressure. There's no way I can be active throughout the day without it. However, I found it a temporary solution to a permanent problem.

Once again, I was unhappy with my gyn that performed 5 hours of surgery on me and then couldn't help me when something wasn't right. I researched and found a really good, caring doctor. I asked many women. I went on the internet. I posted a request under my home state in this Hystersister website. If you want someone that specializes in this field, look for a Uro-Gyn. They're out there - you just have to look!

Good luck! I'm rooting for you!
Kajsa
  #8  
Unread 03-06-2003, 08:15 PM
{{{{{ Michele }}}}}

Hello Michele

I'm sorry you have to go through all this pain. 's to you and lots of too.

I don't have any input on your physical issues, but I certainly would agree that another doctor would be in order. And, if you don't gel with a new one, try another. I really feel you need to have the utmost confidence in your surgeon and/or physician and it unfortunately seems like yours isn't the right one for you.

Good luck to you sweetie. We are all here for you.

Lori
  #9  
Unread 03-06-2003, 08:30 PM
I understand as well I have that

I am PRE hyst with the cystocle (mine is hanging out) a rectocele and to add to it a prolapsed uterus. They said I could have the repair of cysto/rectocele alone or hyst with repair of all of it. He said sometimes a hyst without the pther repair will make everything else drop. I have rectal leagage during intercourse, which is quite embarrasing. I am also in a lot of abdmonal pain. I truly feel for you. PM me anytume!

Juliecat
  #10  
Unread 03-07-2003, 03:52 AM
cystocele and rectocele HELP!

Oh juliecat

Thank you X 1000
Before hyst I felt like I had to holp my cheeks together during sex so nothing would come out. NOw I feel like that 70 % of the day I can not even think how it wil be during sex. I have mentioned it to my DH he Is being so great he said not to worry about it if and when I am ready we can put plastic sheet on the bed He was just trying to make me feel better and it did make me laugh. any more insight ?
I guess today will be the test I will be in the car riding for 3 1/2 hours and then in a meeting for 5 then inthe car for another 3 1/2.

Does sitting for long period of time aggravate anyone else with rectocele? I am having a problem getting through the day working. (sales rep) lots of driving


thanks sisters

Michele
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