FMS~List of 63 symptoms & new treatment protocols..... | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > The Road Less Traveled is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

FMS~List of 63 symptoms & new treatment protocols..... FMS~List of 63 symptoms & new treatment protocols.....

Thread Tools
Unread 03-08-2003, 12:18 PM
FMS~List of 63 symptoms & new treatment protocols.....

Fibromyalgia commonly identified illnesses...list of 63:

You don't need ALL of these symptoms to have FMS, but chances are you have a great portion of them. Accompanying symptoms are used to positively diagnose one with FMS if the patient shows signs of FMS but doesn't have the 11 sensitive tender points that are used for diagnosis. Deep muscle acupuncture along the tender points and tender point meridians can also be used to positively diagnose FMS, even though most countries and insurance agencies will not take an acupuncturists diagnosis unless it is backed by a medical doctor.
Please DON'T SELF DIAGNOSE! Use this list to help journal your symptoms and any progression you feel you are experiencing and CONSULT WITH YOUR DOCTOR. If your doctor isn't willing to even consider looking into your problems, then "shop around." But be sure to have appropriate medical consultation on your health. ____ PHYSIOLOGICAL PROBLEMS:
__ recurrent flu-like illness
__ recurrent sore throats, red and injected
__ painful lymph nodes under the arms and neck
__ muscle and joint aches with tender and trigger points - up to 18 of them
__ night sweats and fever
__ severe nasal and other allergies
__ irritable bowel syndrome (IBS)
__ weight change - usually gain
__ heart palpitations
__ mitral valve prolapse
__ severe PMS
__ yeast infections
__ rashes and itching
__ uncomfortable or frequent urination
__ interstitial bladder cystitis
__ chest pains (non-cardiac)
__ temporomandibular joint dysfunction (in the jaw)
__ hair loss
__ carpal tunnel syndrome
__ cold hands and feet
__ dry eyes and mouth
__ severe and debilitating fatigue
__ widespread pain
__ other chronic illness(es) usually present (like diabetes, hypoglycemia, asthma, lupus, ms, etc.)
__ numbness in the limbs, not painful like pins & needles
__ painful swelling in the hands, legs, feet, neck
__ GERDs (gastro-esophageal reflux disorder)
__ “growing pains” start in childhood and teens, continue into adulthood
__ widespread body pain during/after physical exertion Found at COGNITIVE FUNCTION PROBLEMS:
__ attention deficit disorder
__ spatial disorientation
__ calculation difficulties
__ memory disturbance
__ communication difficulties (problems speaking, confusing words) PSYCHOLOGICAL PROBLEMS:
__ depression
__ anxiety and panic attacks
__ personality changes, usually for the worse
__ emotional lability (mood swings) OTHER NERVOUS SYSTEM PROBLEMS:
__ sleep disturbances
__ headaches
__ changes in visual acuity
__ numb or tingling feelings
__ burning sensations
__ light headedness
__ feeling 'spaced out'
__ desequilibrium
__ frequent unusual nightmares and disturbing dreams
__ tinnitus (ringing in the ears)
__ difficulty in moving your tongue to speak
__ severe muscle weakness
__ susceptibility to muscle, tendon, ligament injury
__ intolerance to bright lights
__ intolerance to alcohol
__ intolerance to sound
__ extreme sensitivity to medications and their side-effects
__ alteration of taste, smell, and hearing
__ insomnia
__ inability to achieve stage 4 restorative sleep
__ morning stiffness in the muscles and joints
__ restless leg syndrome
__ muscle spasms
__ muscle quakiness and shivering during/after activity or exercise
__ sleep paralysis (related to stage 4 sleep deprivation)
Fibromyalgia Coping Tips :

Looking Through the Eyes of an FMS Patient:
information on Fibromyalgia and what a patient goes throughIntroduction: this section was created with the intention of giving you information about the illness and, at the same time, take you through what most patients experience when they have Fibromyalgia and Chronic Fatigue Syndrome. This section was written by one of our patients for other patients like you. It retraces his experience with the onset of his symptoms all the way through to his treatment with Dr. Dantini. Read, learn, and enjoy!I. Feeling the symptoms.Your body starts to ache, you have no energy, you feel awful, tired, depressed, and you just want to sleep. The only problem is you cannot sleep, you have night sweats and you move around constantly due to the soreness of lying in one position for too long. You end up tossing and turning, and waking up numerous times during the night only to get a minimal amount of sleep once morning comes around. Sound familiar? You are now experiencing what has been deemed the symptoms of Fibromyalgia. Symptoms include:
Tender and sore areas of the body (shoulders, back of neck, lower back, hips, shins, elbows, and knees.)
Inability to sleep
Chronic aches of the body and face
Inability to accomplish everyday tasks Fibromyalgia is a very debilitating disorder. Such things as over-exertion, changes in climate or weather, stress, anxiety, and mood swings can contribute to your symptoms flaring up at times. II. Your first visit to the doctor.It has been a couple of weeks and you are feeling the same, lousy. The pain relievers and flu medicine at home are just not working so you visit your doctor. To be diagnosed as having Fibromyalgia you must have the symptoms for at least 3 months. Given that it has been only a couple of weeks your doctor probably puts you on some antibiotics figuring you have some virus or a bad touch of the flu. He gives you one refill and tells you to come back if it doesn’t clear up in a couple of weeks. III. Your second visit to the doctor.You are nearing the end of your medication and still feel awful and by now quite worried and depressed. At this stage your doctor will either refer you to someone else or he will start running tests on you. Fibromyalgia is hard to diagnose because there is no blood or x-ray test to detect it. Tests are conducted to rule out other disorders. And to complicate matters even further, many doctors have very limited knowledge about the disorder. In addition, there are many other ailments that are associated with Fibromyalgia and some of them are likely present along with Fibromyalgia. Therefore many doctors may misdiagnose you as having such ailments as:
Rheumatoid Arthritis
Food Allergies
Adrenal Insufficiency
Nasal Congestion & Sinuses
Sleep Disorders
Chronic Fatigue Syndrome
Cervical and Low-back Degenerative Disease
Lyme Disease If you are correctly diagnosed as having Fibromyalgia your doctor probably gave you a definition, some background information, treatment options, and general advice: Fibromyalgia is a rheumatic syndrome characterized by widespread and often debilitating pain in fibrous tissues, muscles, and other connective tissues. It affects 2-4% of the population and is found mostly in women between the ages of 20 to 50. Common treatments include:- Medications to improve sleep & relieve muscle pain
- Achieving normal & an adequate amount of sleep
- Stress maintenance
- Learning about the disorder
- Low impact exercise & stretching
- Vitamins & minerals
- Diet (eating the right foods)
- No caffeine or alcohol
- Drinking lots of water
- Counseling
- Alternative medicine (acupuncture, massage therapy, chiropractic, hypnosis) A downfall of taking certain medications is that it may treat the ailment it is designed for, but at the same time, it may cause another ailment. For example, Prozac, the most commonly used medication for treating depression causes fatigue and insomnia, other common sicknesses associated with Fibromyalgia. IV. You conduct an information search.You conduct your own information search in an attempt to learn more about Fibromyalgia. Your doctor may have recommended a book or a support group for you to look into. You most likely conducted your search in the library, a bookstore, or on the Internet. Some popular books include:
From Fatigued to Fantastic by Jacob Teitelbaum MD
The Fibromyalgia Survivor by Mark Pellegrino MD
The Fibromyalgia Help Book by Jenny Fransen RN and I. Jon Russell MD
Fibromyalgia and Chronic Myofascial Pain Syndrome: A Survival Manual by Devin Starlanyl MD and Mary Ellen Copeland MS, MA Some popular organizations and support groups include:
Fibromyalgia Alliance of America, Inc.
Fibromyalgia Network
The American Fibromyalgia Syndrome Association, Inc. Web-sites with good information:
YAHOO! Health
WebMD Overall, I prefer doing research on Fibromyalgia on the Internet. YAHOO! Health gives an excellent overview because it gets to the point and gives you the crucial facts. The above recommended books really get into the detail of the subject, but many patients, including me, find many chapters hard to understand. There are many support groups, most likely one right in your area. The above recommended support groups are the most popular, but my feeling is people who are able to lead a normal life again don’t need them. V. Realizing that there is no consensus.By now you consider yourself to be an expert on Fibromyalgia. You have been to multiple doctors and maybe a few support groups. Each doctor has given you a different perspective and a different treatment program with different medications. You have been to a long list of chat rooms and message boards just to see what others are trying and doing. You have been all over and you have spent tons of money on crazy treatments. You laugh just thinking about some of the treatments you tried with a blinded false hope. Looking back and thinking to yourself “what was I thinking trying that, I know better”. But yet you still feel the same.

Re-gather your thoughts for a minute. What have you truly come to realize? You have come to realize that the doctors you have seen don’t have the answers. You also now realize that there is a lot of information and treatments out there that is not accurate, because if it were you would be feeling better by now. Thirdly, you now realize that there are a lot of support groups out there for a reason, a lot of people are suffering just like you.
Fibromyalgia: Finding Treatments That Work for You:

Fibromyalgia is a disorder of complexity. According to the diagnostic criteria for Fibromyalgia Syndrome (FMS) published by the 1990 American College of Rheumatology (ACR), fibromyalgia patients must have: 1. Widespread pain in all four quadrants of the body for a minimum of three months.
2. At least 11 of the 18 specific tender points. Although the above criteria, created for research purposes, focuses on tender point count, a recent consensus of 35 FMS experts has determined that a person does not need to have the required 11 tender points to be correctly diagnosed and properly treated for FMS. Many people who have less than 11 of the required tender points may still be diagnosed with FMS as long as they have widespread pain and many of the common symptoms associated with FMS. Commonly associated symptoms include: • Fatigue
• Sleep disorder (or sleep that is unrefreshing)
• Jaw pain (TMJ dysfunction
• Post-exertion malaise and muscle pain
• Numbness and tingling
• Skin sensitivities
• Morning stiffness
• Irritable bowel
• Chronic headaches (tension type or migraines)
• Cognitive or memory impairment
• Menstrual cramping and PMS
• Dizziness or impaired coordination. Sleep - the most important aid in alleviating the symptoms of fibromyalgia. The better you sleep the better you will feel. Natural Sleep – There are many natural ways to help you sleep: Magnesium – aids in smooth muscle relaxation
Valerian Root
Combination formulas – may contain both of the ingredients above plus others.
Homeopathic sleep remedies
5-HTP - This nutritional supplement has been proven to reduce fibromyalgia pain and tender points. It also helps reduce morning stiffness, improve sleep patterns, anxiety and fatigue. Medicated Sleep – For many people, herbal remedies don't help them achieve restorative sleep. It is important to see your physician to find a medication that will aid in a better night's sleep. Try to find a medication that will allow you to sleep, but not feel groggy in the morning. Please be sure to consult your physician before taking any medication. Amitriptyline – This medication works primarily by improving Stage 4 sleep, the sleep disturbance thought to underlay fibromyalgia. This is the drug of choice for many patients with severe sleep disturbance and deprivation issues. Other drugs prescribed include: Xanax or Valium
Paxil - and others. Muscle Pain Natural Pain Relief
Massage and Chiropractic – Studies have shown that fibromyalgia patients prefer massage therapy and chiropractic care to many other forms of treatment. Massage: fibromyalgia can cause muscle spasms and muscle imbalances and range of motion can be restricted. Massage therapy can help reduce trigger point pain. It also can give you a wider range of motion and more energy. Massage therapy is a great tool for healing and recovery. It also helps maintain the alignment adjustments you receive from your chiropractor. Chiropractic Care: [It is the author's opinion that] chiropractic adjustments are valuable to your improvement and recovery. If your skeletal structure isn't properly aligned, this can cause you pain and make you vulnerable to disease. It can also worsen your fibromyalgia symptoms. Maintaining proper alignment can help reduce your pain and speed your recovery. Magnesium - studies have shown patients with FM have low levels of magnesium. Magnesium aids in synthesis of ATP (your body's energy source) and smooth muscle relaxation.
Acid Alkaline Balance – Active Greens – see acid alkaline balance information below.
Yoga – helps to relax the mind and gently stretch the body.
Medicated Pain Relief – for many individuals, chronic pain creates a cycle of muscular spasm and further lack of sleep. There are many safe prescription medications available today to help you cope with the pain. Options include: Over-the-counter medications
--Aleve Prescription medications
--Flexeril – muscle relaxant
--Skelaxin – muscle relaxant
--Neurontin - This anticonvulsant drug has been used successfully to reduce neuropathic pain.
Depression Natural support:
--St. John's Wort [Editor's note: Be sure to consult with your physician before taking St. John's Wort, as it may interact with any prescription medicines you are taking.] Medication – Antidepressants – Please consult your physician:
Stomach pain and irritable bowel syndrome: Natural methods – balance acid/alkaline blood. Use pH test strips to test urine pH. Will also help with muscular pain and sleep pattern alignment. See acid alkaline balance below. Active Greens Powder
Active Greens Capsules
Stress – Emotional, Physical, Chemical stressors Emotional – Modern living is stressful!
Psychotherapy – can help with short and long term emotional stress
Yoga – Helps to quiet the mind and relax the body
Pilates – private training regimen developed for dancers that elongates the muscles and focuses on trunk core strengthening
General Exercise – helps to move the joints, circulate the blood and burn stored stress Physical – avoid physical activity that can aggravate your condition. Use positive forms of exercise to help alleviate symptoms. Remember, a little bit of exercise is good, but too much can aggravate your symptoms.
Massage and Chiropractic
Chemical – toxins in the body can cause a flare up of symptoms
Diet – Eat a low sugar/carbohydrate diet. Numerous studies have shown that high carb diets result in flare-up of FM symptoms. Getting in Balance: Alkalinity and Acidity In its natural, healthy state, our body is slightly alkaline — the opposite of acidic. In fact, our blood and cells depend on remaining in this slightly alkaline state for our very survival. For example, to produce energy from the food we eat, a healthy cell requires abundant oxygen—an alkalinizing element. A healthy cell also contains alkaline minerals like potassium. If we could only maintain this state, then many of the physical and emotional problems that plague us — including fatigue, headaches, chronic illnesses, colds, flu, even an inability to think clearly—might rarely appear. But the reality is that everything we're exposed to, from the foods we eat to the sports we play to the pollutants we encounter, produce acidic chemicals, tipping us out of our ideal acid/alkaline balance and resulting in a long list of physical and emotional ailments. We can handle this fairly well when we're young. In youth, our body is pretty good at buffering the acidic effects of the foods we eat and the life we live because our lungs and kidneys are strong, our bones rich in alkaline minerals, and our blood good at buffering acidity. But as we age and experience increasing amounts of the acid-causing stresses of modern life, it becomes more and more difficult for our bodies to naturally buffer the effects. One reason for the decline is simply the normal aging process. But strenuous athletic activity, years of stress, or even a lifetime of eating the standard, nutritionally bereft Western diet, can hasten this loss of buffering ability. The good news is that by making relatively minor changes in your diet and lifestyle, you can bring your acid/alkalinity into a healthier balance, regardless of your age, and live a healthier life in the process. First though, you need to figure out where you lie on the acid/alkaline spectrum. [Editor's note: LA Health Center, where the author works, is one place where you can have your acidity/alkalinity evaluated.] Buffering Capability Buffering is your body's ability to restore balance between alkaline and acidity. There are numerous ways your body buffers acidity. Your blood contains three buffering systems designed to keep it to its tightly regulated, slightly alkaline pH of 7.35 to 7.45. Your lungs and kidneys help eliminate acid substances when acid levels rise too high, and preserve alkaline substances. The reverse occurs if you become too alkaline. If you become too acidic, your body will leach alkaline minerals from your bones to maintain the slightly acidic pH of the blood. This can increase your risk of osteoporosis. Final Thought When you have been diagnosed with fibromyalgia you will understand that there is not a single medication, a single exercise or a single diet that will offer a “cure.” You must experiment with different medications, different exercises, different diets and different lifestyle approaches until you find out what works for you.

Validating Fibromyalgia Part 1: Behind the Pain:

ANN ARBOR, Mich. (Ivanhoe Newswire) -- According to the Mayo Clinic, 6 million to 8 million Americans have fibromyalgia. It is described as constant pain in every part of the body and fatigue that leaves many unable to get out of bed. There is no proven treatment and with no easy test to diagnose it, many doctors don't even discuss it. Now, ongoing research finally gives answers where there have been none.Often the greatest strength is found in times of frustration.Shari Ferbert says, "I can't just sit there and let this happen to me. It's wrecking my life."It is fibromyalgia."I have burning in various parts of my skin, like Indian burns, and throbbing, and sometimes it's shooting pain," she says.Ferbert says the response she gets from doctors is often worse than the pain. "They just don't understand it. They don't understand the symptoms of it."
Rheumatologist Daniel Clauw, M.D., tells Ivanhoe, "In many cases, people will see an average of six to eight physicians before they are ultimately diagnosed with fibromyalgia."According to Dr. Clauw, of the University of Michigan Health System in Ann Arbor, diagnosis may not be such an ordeal anymore. "This study has helped establish that when people with fibromyalgia say they're experiencing pain, they in fact are experiencing pain," he says.In a study he headed up, Dr. Clauw looked at blood flow in the brains of people with fibromyalgia and a healthy control group. "When we gave the fibromyalgia patients a low pressure stimulus, they had a high rating of pain. But, in the controls, it was barely detectable," he says
When the stimulus doubled in the healthy group, pain showed up the same as it did in the fibromyalgia patients under low stimulus. What does that mean?Dr. Clauw says, "If you will, fibromyalgia patients have the volume control turned up too loud on their pain processing areas of their brain."That may not be the only problem. Nurse researcher Joan Shaver, Ph.D., R.N., of the University of Illinois at Chicago, says fibromyalgia patients may also have low levels of growth hormone. Growth hormone is important to muscle health and not having muscle pain. It is also related to quality sleep -- a major problem for people with fibromyalgia.In healthy people, the hormone peaks with early sleep. In people with fibromyalgia, it stays low, which may be to blame for disruptive sleep. From there, it's a snowball effect."We do know that major sleep disruption leads to fatigue and pain," says Shaver.For Ferbert, this research is a step in the right direction. With her non-profit group Advocates for Fibromyalgia Funding, Treatment, Education and Research and their first $10,000 grant, she intends to keep it moving forward."People can try all the antidotes and all these different trial and error type things they want, but the answer's in the research," she says.At this time, Shaver says growth hormone supplements probably won't help because they are much higher doses than the body produces
Sponsored Links

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
10 Replies, Last Reply 09-23-2008, Started By grumpybum72
1 Reply, Last Reply 06-24-2005, Started By votelady
4 Replies, Last Reply 03-25-2004, Started By hunnybunches
5 Replies, Last Reply 10-24-2002, Started By nurse
1 Reply, Last Reply 11-30-2001, Started By j9501
25 Replies, Last Reply 09-26-2001, Started By LaurLaur
5 Replies, Last Reply 07-05-2001, Started By kayfam
1 Reply, Last Reply 10-06-2000, Started By zul8tr
1 Reply, Last Reply 10-05-2000, Started By zul8tr
11 Replies, Last Reply 08-05-2000, Started By Dot
196 Replies, Preparing for Hysterectomy (pre hysterectomy)
4 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
2 Replies, Separate Surgeries
2 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
1 Reply, Hysterectomy Recovery (post hysterectomy)
16 Replies, Preparing for Hysterectomy (pre hysterectomy)
2 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
3 Replies, No Uterus - No Ovaries - Yes HRT - Surgical Menopause
0 Reply, No Uterus - No Ovaries - No Hormones - Managing Menopause


Hysterectomy News

September 20,2020


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing