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Post-Op, for almost 3 yrs, still having problems Post-Op, for almost 3 yrs, still having problems

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  #1  
Unread 03-09-2003, 08:14 PM
Post-Op, for almost 3 yrs, still having problems



Hello Sisters, I am new to the site, I have been searching for a place like this on the net, to help me cope with my hysterectomy and all the post-op problems I've had since.

I had a myomectomy first, then a hysterectomy. My ovaries were left, but I keep suffering from very painful cysts,depression and fms. I am changing my obg/gyn doctor, because he said it was impossible for me to feel that my ovaries are hurting, when I know they are and he also said that the ca-125 test wasn't necesarry, although I have requested it twice!

I really don't want to have my ovaries removed, but the pain is sometimes unbearable and I am afraid of menopause. I am 42 years old. I think I am already going through perimenopause, have many of the symptoms already. Another thing that is really troubling me is my sexual life. It has just not been the same ever since my surgery. I feel that my sexuality was taken away from me. I feel mutilated. I also feel that physically, I am no longer the same. It just doesnt feel the same. I was thinking of having surgery to make my vagina tighter and was wondering if anyone else has felt the same.
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  #2  
Unread 03-10-2003, 03:04 AM
Post-Op, for almost 3 yrs, still having problems

(((AquaNan))),
Welcome to Hystersisters, I'm soo glad you found us
There are many ((Ladies)) here suffering various pain & complications many weeks, months & years Post-Op I am 3 yrs post as well & suffer from Chronic Pelvic & abdominal pain, some of which is in the area where my right Ovary was. My Gyn did a 2nd surgery 12 weeks after my Hyst b/c of my worsening right-sided pain, he thot removing that Ovary would end it, unfortunately it didnt. I was DX'd with FMS a few months after that....my Rheumy thinks mine was bought on by the trauma of 3 surgeries in 4 months...
Pls research all you can on Ovarian removal & the effects it can sometimes cause. Some have had success w/ relieving the pain by having them removed, others havent. Here is some good info on Hysterectomy complications, Ovarian removal, FMS & Sexual Dysfunction ( this has been a big problem for me too) :

http://abcnews.go.com/sections/livin...ibromyalgia980
408.html
http://fibrohugs.com/forum/new_fibro_info.html
http://www.co-cure.org/index.htm
http://hometown.aol.com/flyerandflyer/wtvault/FIB.htm
http://www.mylifepath.com/topic/fibromyalgia/
http://www.fmaware.org./
http://www.shaysnet.com/~wmson/index.htm
http://www.vrainn.com/Stuff/Fibro/fmasses.txt
http://www.geocities.com/Wellesley/3466/Fibro.htm
http://www.americanwholehealth.com/l...myalgia/fms.ht
m
http://www.myalgia.com/
http://aolsvc.health.webmd.aol.com/c...W=fibromyalgia
http://www.nlm.nih.gov/medlineplus/e...pedia_A-Ag.htm
http://www.muhealth.org/~fibro/
www.fibromyalgia.com
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html
http://www.tidalweb.com/fms/
http://www.muhealth.org/~fibro/fm-pt.html
http://familydoctor.org/handouts/070.html
http://www.ukfibromyalgia.com/
http://chronicfatigue.about.com/cs/fibromyalgia/
http://www.rheumatology.org/patients.../fibromya.html

Hysterectomy~risks, complications:

http://www.obgyn.net/women/articles/...anter_0512.htm
http://www.wdxcyber.com/nbleed13.htm
http://www.gynalternatives.com/hysterec.htm
http://www.findings.net/positive-exp.html
http://www.gyndr.com/hysterectomy.htm
http://www.oxford.net/~tishy/hystasm.html
http://www.abcnews.go.com/sections/2..._mailform.html
http://www.nlm.nih.gov/medlineplus/n...ory_10679.html
Understanding Hysterectomy-Dr. Susan Tannenbaum:
http://www.uhmc.com/tgynst02.htm
Outcomes Similar After Total, Partial Hysterectomy: http://www.nlm.nih.gov/medlineplus/n...ory_10040.html
http://hcd2.bupa.co.uk/fact_sheets/m...terectomy.html
http://www.vagisil.com/frame_general_surgical.html
http://www.estronaut.com/a/hysterect...ternatives.htm
Reducing Complications At Laparoscopic Hysterectomy:
http://www.reproductivecenter.com/reducing.html
http://www.lucanus.co.nz/Ops.htm#Laparoscopic Hysterectomy
http://www.gynsecondopinion.com/surgery.htm
http://health.discovery.com/converge...y/surgery.html
When deciding if or not to retain Ovaries, some things to consider~
Surgical Menopause:
http://www.hormonejungle.com/privacy.htm
http://www.hormonejungle.com/
http://womenshealth.about.com/cs/surgicalmenopause/
http://www.surgimenopause.com/
http://www.helioshealth.com/menopause/surgical.html
http://www.menopausehysterectomy.com/Menopause.htm
http://health.yahoo.com/health/encyc.../000894/0.html
http://www.project-aware.org/Experience/premature.shtml
http://webmd.lycos.com/content/article/1680.50792
http://my.webmd.com/content/dmk/dmk_article_5963052
http://members.tripod.com/fiona_51/faq.html
http://www.surgimenopause.com/NoFrames/surgi_4.html
https://www.hystersisters.com/surg.php

HRT: The Whole Story:
http://health.discovery.com/centers/...hrt_whole.html

The role of ovarian hormones upon brain:
http://www.bbsonline.org/Preprints/O...bbs.fitch.html

Old Ovaries-still of value?
https://www.hystersisters.com/vb2/sho...threadid=10987

Ovaries:
http://s.ivillage.com/health/lnav/ov...416874,00.html


  Quote:
A risk-benefit analysis of elective bilateral oophorectomy: effect of changes in compliance with estrogen therapy on outcome.

Speroff T, Dawson NV, Speroff L, Haber RJ

Department of Epistemology and Biostatistics, Case Western Reserve University, MetroHealth Medical Center, Cleveland, Ohio.

A bilateral oophorectomy at the time of elective hysterectomy is often performed to prevent ovarian cancer. The assumption that endogenous estrogen can be easily replaced with supplemental medication fosters the decision for routine oophorectomy. Published reports on the use of postmenopausal estrogen indicate that compliance is less than perfect. This fact could affect the overall outcome. Decision analysis techniques with Markov cohort modeling were used to evaluate the policy of elective bilateral oophorectomy. Results from studies judged methodologically sound were combined to determine values representing the influence of estrogen on coronary heart disease, breast cancer, and osteoporosis fracture. The decision tree also explicitly incorporated patient compliance. When compliance with estrogen therapy is assumed to be perfect, oophorectomy yields longer life expectancy than retaining the ovaries. When actual drug-taking behavior is considered, retaining the ovaries results in longer survival. This analysis highlights the importance of including the effects of patient compliance with treatment recommendations when the impact of a health policy decision such as prophylactic surgery is assessed.

Am J Surg 1997 Jun;173(6):495-498

Is incidental prophylactic oophorectomy an acceptable means to reduce the incidence of ovarian cancer?

Rozario D, Brown I, Fung MF, Temple L

Department of Surgery, Ottawa General Hospital, University of Ottawa, Ontario, Canada.

BACKGROUND: According to previous reports, the lifetime risk of developing ovarian carcinoma is 1.4%. This figure varies with age from 6.6 per 100,000 among women aged 35 to 39 years up to 55.1 per 100,000 among women aged 75 to 79 years. Prophylactic oophorectomy remains a modality to decrease the incidence of ovarian cancer. What proportion of women diagnosed with an ovarian malignancy had a preceding laparotomy at which time a prophylactic oophorectomy could have been performed?

METHODS: We reviewed the new ovarian cancer diagnoses seen in patients between August 1988 and August 1993 at the Ottawa Regional Cancer Foundation. Four hundred and four patients were identified. These patients were analyzed for preceding abdominal surgery, age, time to disease progression, time to death, time to death from other causes, and average follow-up. The previous abdominal surgeries were divided into: (1) major gynecological surgery; and (2) general surgery procedures, which were further divided into laparotomy and pelvic surgery (group A surgeries) and general surgery that included other abdominal surgeries (ie, appendectomy, cholecystectomy) where access to the pelvis could be more difficult (group B surgeries).

RESULTS: A total of 270 abdominal surgeries was performed, prior to the diagnosis of ovarian cancer. The group was stratified according to the timing of the surgery ( greater or =40 years, 41 to 45 years, 46 to 50 years, >50 years). Based on these data, and on the grouping of general gynecologic surgeries plus the general surgical procedures of group A, 10.9% of ovarian cancers would have been prevented if prophylactic oophorectomy had been performed in patients who had surgery over 40 years of age; over 45 years this was 6.7%, over 50 years it was 4%. If one adds all major surgeries, including general surgery groups A and B, the results were 26.9% over 40 years of age, 20% over 45, and 16.6% over 50.

CONCLUSION: We found that, depending on the age of the patient, prophylactic oophorectomy results in a 4% to 10.9% reduction in the incidence of ovarian carcinoma. This increases to 16.6% to 26.9% if one considers general surgery procedures in which access could be more difficult. Although we are not advocating the frequent use of this procedure, we recommend that surgeons routinely discuss this option before surgery with their postmenopausal female patients over 49 years of age. Given that the decision for prophylactic oophorectomy is multifaceted, we feel that a risk scoring for ovarian cancer and a discussion of the risk and benefit ratio should be undertaken. The ultimate goal is to heighten patient awareness of the risk factors to ensure that an informed decision is made concerning this consistently lethal disease.
Menopause, Estrogen Loss, and Their Treatments:
http://www.umm.edu/patiented/doc40.html

Problems with Sex and Desire:
http://www.wdxcyber.com/msex.htm

Testosterone for Women:
http://health.discovery.com/centers/...tosterone.html

Reclaiming Your Lost Libido:
http://health.discovery.com/centers/...ealthysex.html

Sexual Dysfunction in Women: What Can I Do If Sex Isn't Working for Me?
http://www.familydoctor.org/handouts/612.html

http://www.urologychannel.com/fsd/index.shtml
http://www.nlm.nih.gov/medlineplus/e...cle/001951.htm
http://www.womenssexualhealth.com/

The Effects of Hysterectomy on the Subjective & Physiological Sexual Function:
http://homepage.psy.utexas.edu/homep...terectomy.html

Female Sexual Dysfunction: Evaluation and Treatment:
http://www.aafp.org/afp/20000701/127.html

Women report chronic pelvic pain not taken seriously, survey shows:
http://www.obgyn.net/newsheadlines/w...0021114-22.asp

What You Don’t Know Can Hurt You: Knowledge Is Power In A Doctor/Patient Relationship:
http://www.obgyn.net/displayarticle....ort/comfort006

Female Sexual Dysfunction-FAQ:
http://www.msnbc.com/news/229163.asp

Natural Progesterone-What Role In Women's Healthcare?
http://www.project-aware.org/Managin...e_Murray.shtml

Fibromyalgia Pain Is Real:
http://my.webmd.com/content/article/48/39261.htm

The Impact of Hysterectomy on Sexual Life of Women:
http://www.athenainstitute.com/sciencelinks/acog01.html

Is Orgasm Gone After Hysterectomy?
http://www.wdxcyber.com/m2hyst.htm#m09

There is some wonderful info on dealing & treating Sexual dysfunction here:
www.newshe.com

Have you ever considered Pain Mgmt? It has been a life saver for me. I have been seeing a Pain Dr since July 2000..they use several different methods to help releive pain & continue to try & get to the source of itHere is some info that provides some better insight:

http://www.pain.com/painclinics
http://www.pain.com/drfiles/cfdradv...Article_id=7007
http://www.widomaker.com/~skipb/panic.html
http://www.theacpa.org/
http://www.hypermobility.org/links.shtml#cat6
http://www.obgyn.net/english/pubs/f...20Pelvic%20Pain
http://www.pelvicpain.org/pdf/diagnosis_management.pdf
http://www.pelvicpain.org/communication.ppt
http://www.pelvicpain.org/multi_approach.asp
http://my.webmd.com/condition_center/pnm
http://www.greatlakespaincenter.com
http://www.geocities.com/Wellesley/3466/paindiary.htm
http://www.reddinganesthesia.com/pain.htm
http://www.pain.com/resources/attachb2.ht

  Quote:
Some Tips to Help in Managing Chronic Pain:

Write yourself a contract: Pledge to yourself that you are committed to managing your pain.
Keep your home environment healthful: Remove all items from your home that might lure you into unhealthy habits. Your home should reflect your positive active attitude.
Set goals for pain management: Set specific goals to address your greatest pain problems.
Monitor your progress: Prepare some type visual aid or chart to display your progress.
Accept support: Support of family, friends and physician will help you keep going on track on difficult days.
Team up with your doctor: Your doctor can work with you to overcome obstacles, keep him/her posted on your progress.
Plan each day: Schedule your exercise, relaxation, rest, work. Make a list of things to do in order to accomplish your goals.
Stay positive: Think that you will control the pain. Keep your spirits up, this will help to maintain your ability to overcome and manage pain.
Reward yourself: If you treat yourself to something enjoyable, when you reach a goal, it will reinforce a positive attitude.

http://doctorsforpain.com/patient/chronic.html
Pain Terminology:
http://doctorsforpain.com/patient/terminology.html

WHAT YOU CAN DO TO HELP YOURSELF
http://doctorsforpain.com/patient/treatments.html

Managing Chronic Pain:
http://www.hypermobility.org/managingpain.shtml

Additional Resources for Patients and Patient Advocates:
http://www.centerwatch.com/patient/patresrc.html

Battling Back: Overcoming the Undertreatment of Chronic Pain:
http://my.webmd.com/content/article/1/1700_50872.htm

Questions You Should Ask About Pain & Pain Treatment:
http://www.ortho-mcneil.com/painb/index.html

Pain Management:
http://www.newmilfordhospital.org/se...management.htm

Pain Clinics - a personal view:
http://www.hypermobility.org/painclinic.shtml

Women and Pain:
http://health.discovery.com/centers/...pain/pain.html

Fibromyalgia and Chronic Fatigue Syndrome Clinic:
http://www.doctordantini.com/Fibromyalgia.htm

Living with FMS:
http://www.tidalweb.com/fms/headache.shtml

Treatment of Fibromyalgia in Detail:
http://www.fibromyalgiasupport.com/l...le.cfm/ID/3594

Prescribed Medications for Fibromyalgia:
http://www.fibromyalgiasupport.com/l...le.cfm/ID/3308

Muscle Pain Presenting as Pelvic Pain:
http://www.wdxcyber.com/npain05.htm

Surgical Meno resources:
http://www.hormonejungle.com/

Pain with sexual intercourse deep in pelvis: http://www.wdxcyber.com/ppain.htm#ppainsex

Pain assessment:
http://www.medbroadcast.com/health_t...assessment.asp

Pelvic Pain Assessment Form:
http://www.pelvicpain.org/pdf/FRM_Pa...stionnaire.pdf

International Pelvic Pain Society:
http://www.pelvicpain.org/acute_chronic_visc.asp

Fibromyalgia: Finding Treatments That Work for You:
http://www.immunesupport.com/library...le.cfm/id/4372

Talking To Your Doctor About HRT:
http://www.aeron.com/new_page_21.htm

Should I Keep My Ovaries?
http://drn4u.com/keepovaries.htm

Gynecologic Causes of Pain - Internal: In Pelvis or Abdomen:
http://www.obgyn.net/displayarticle....indman_gynpain

Good Luck ((AquaNan)) with finding some answers & relief to your pain I hope you will continue to post here. It has been a huge help to me just being able to share my pain & feelings with the ((Sisters)) here who understand the frustration & heartache living with all this can bring about....(((hugs)))
  #3  
Unread 03-11-2003, 01:48 PM
Post-Op, for almost 3 yrs, still having problems

Welcome to Hyster Sister, (((AquaNan)))... I'm so sorry that you found us because you are having all of these problems so far down the road

((((Sheri))))) has provided lots of valuable resources and they should help you and might even answer some of your questions.

I'm 46, had my surgery 2 years ago and kept my ovaries. I'm starting to show signs of peri-menopause and really do not want to head that way, for a number of reasons, so I really can relate to you wanting to keep your ovaries.

Changing doctors might be the best thing you're doing for yourself, even if it is only to have him/her confirm what your previous ob/gyn said.

Sending lots of healing s your way. Please keep us posted.
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  #4  
Unread 03-14-2003, 12:40 PM
Post-Op, for almost 3 yrs, still having problems

Have you considered consulting with a physical therapist? I don't know the cause of your pain, but I can tell you the area that is near your ovary is a trigger point for muscle spasms. The spasms can then cause pain elsewhere in your abdominal area. I had this pain on my right side pre-hyst & told the surgeon he could take the ovary if he saw something wrong with it. He scoped it during surgery (it was done laparascopically) and said it was fine. The surgeon's nurse referred me to a doctor who specializes in pelvic pain. Voila! Finally an answer! We also discovered that I have levator ani syndrome--spasms of the pelvic floor muscles. My physical therapist gave me some exercises to do at home & it's made a big difference in other areas of my life, if you get my drift.

Since you have FMS I assume that you are familiar with trigger points, but here is a link anyway:

http://www.neurologychannel.com/tpi/[/url]

Some ladies find that taking an antidepressant can help with the way your body perceives pain. You don't say if you are taking anything, but from the reading I've done on FMS & Myofascial Pain, depression seems to go hand-in-hand with FMS & MP. If you are perimeno, those fluctuating hormones could be partially responsible for how you feel, too.

Hang in there!
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