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Has Anyone Had This/heard Of This? Has Anyone Had This/heard Of This?

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  #1  
Unread 03-13-2003, 11:09 AM
Has Anyone Had This/heard Of This?

Sisters,

Sorry I haven't been posting much lately...dh has been off this week and we've been busy with dr's appointments etc.

At my appointment on Monday my doc said that my vagina has what he called a "fork in the road" kind of thing going on. Some of you may remember that they suspected a fistula, and they don't think I do have one (if I do he said it is mighty small). He and my Uro-Gyn said that I may be looking at reconstructive surgery (is that even a word?!) down the road. He said that I was probably not put together properly after the hysterectomy.

I am really mad and upset about this. Why didn't my other Gyn pick this up - the one that didn't do the surgery? My new docs say it is very obvious, and it's no wonder that dh and I are having problems being intimate...

I'll write more later....s to all of you.
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  #2  
Unread 03-13-2003, 11:19 AM
Has Anyone Had This/heard Of This?

WELL, I have not ever heard of that, what exactly did he mean? I know my Gyn told me mine was what he termed as OLD and FLASID. Meaning it is sagging in there.

I am having mine fixed when they do my cystocele and rectocele repairs. I dont think that is the same thing you have since he told you that it would need reconstructive surgery to fix it though..

Where they get these terms from lord only knows..

I hope it is not causing you any pain.. I will keep you in my prayers...



Pam
  #3  
Unread 03-13-2003, 11:26 AM
many hugs

Hi,
Wow! No wonder you are upset. I've heard of reconstructive surgery, but not the term "fork in the road, " that's probably his own expression maybe? Does this have something to do with the vaginal cuff? You don't have a cervix right? I would ask exactly what he plans to do to fix you up properly. You pooe dear. How awful to be suffering for so long. I'm sending many hugs and prayers to you. I sure hope these new docs can help you once and for all! (I'm still suffering here with this awful pain and catheter) We have to be strong for each other!
Love, Light, Blessings
Druid
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  #4  
Unread 03-13-2003, 11:27 AM
Has Anyone Had This/heard Of This?

{{{Judy}}}
Oh wow, I'm so sorry sweetie. I've not heard of that, but hopefully someone here has. I don't blame you being upset, I would be too. With all the doc appts you've had you would think that someone would've picked up on that. I'm sending big for you my friend.
  #5  
Unread 03-13-2003, 12:10 PM
Has Anyone Had This/heard Of This?

Hi (((((Jude)))) Sweetie, I'm sorry you're so and right now, and I don't blame you a bit for feeling that way!

Maybe I can help, I'm not sure.... but I had a little "fork in the road" myself, right after my hyst. I had a TVH with A&P repairs. Afterwards, as things healed in there, about 1/2 way up my vagina, a thick bridge of scar tissue formed between the front and back walls, effectively cutting the vagina in half there. My DR called it a vaginal adhesion.

Anything that went in there would hit that adhesion and either slip to one side and get stuck, or just not go any further, and either way, pushing on the adhesion to try to get past it hurt, not just in the area of the adhesion but all through my pelvis! Any attempts at romance left me squirming uncomfortably and very disappointed.

The solution was another surgery to get rid of the adhesion. It was done as an outpatient in the surgery center adjacent to the castle, and I was in and out in a few hours and required very little pain meds afterwards. In fact, the A-man was able to just use boatloads of versed, and that was enough to get me through the surgery (which was very quick) without other anesthesia, so I was awake pretty fast afterwards with no aftereffects. I was home a couple of days and then back to my usual routine within a week!

I had to use vaginal Premarin cream 3x a day for 3 weeks to help the area heal, which it did very nicely, no further troubles. I just went for my annual with my gyn last week and she said everything looked perfect in there now!

So... I hope that is what your DR meant by the "fork in the road". Don't fear another vaginal surgery, hon... chances are it will not be nearly the ordeal that your hyst was, and it will make things so much better for you in the romance department afterwards!

I'm keeping my fingers crossed for you... do let us know when you find out more about what's going on, OK?
s,
-Linda
  #6  
Unread 03-13-2003, 12:38 PM
Has Anyone Had This/heard Of This?

((Judy)),
I'm so sorry to hear this Mad too at your Gyn for not recognizing something these Drs stated
was "obvious" I did find a little info on vaginal damage & reconstructive surgery, also an article on trauma resulting in painful intercourse. I experience that too ((Judy)). Here are the links:

Center for Pelvic Reconstructive Surgery and Urogynecology :
http://www.prsucenter.com/dircor.html

Dr. Matlock, Laser Vaginal Rejuvenation Institute of Los Angeles:
http://www.drmatlock.com/drEdwards.htm

Urogynecology, Reconstructive Pelvic & Vaginal surgery: Shttp://www.mdnetlink.com/sjmmcobgynres/..%5Csjmmcobgynres/veronikis.htm

  Quote:
Major pelvic trauma may potentially result from:

Hysterectomy: This is the removal of the uterus along with the cervix. This is the second most common pelvic operation for women after Caesarean sections. While most gynecologists and sexologists say that a hysterectomy should not negatively affect a woman's sexual response, the research shows conflicting and contrary data. Some studies report positive and some report negative sexual outcomes after hysterectomy, but no study has shown 100 percent results either positively or negatively. We believe that injury to the uterovaginal and cervical plexus during hysterectomy may affect blood flow and lubrication thus affecting sexual and orgasmic response. Removal of the uterus can diminish or eliminate pelvic floor orgasms and scarring in the vaginal cuff can make intercourse painful.

http://www.newshe.com/factsheets/Pel...r_Trauma.shtml
http://www.drbruce.com.au/vrs.htm

http://forums.obgyn.net/forums/women...9809/0638.html

http://www.clevelandclinicmeded.com/...pelvic2003.htm

http://homepage.psy.utexas.edu/homep...terectomy.html

http://www.newshe.com/articles/Poten...erectomy.shtml


If you find out what it is called, I'll do some more searching for you Pls keep us posted & know your ((Sisters)) are here for you anytime

(((((hugs))))))
  #7  
Unread 03-13-2003, 12:38 PM
Has Anyone Had This/heard Of This?

Hi Jude

You poor thing- was thinking of you today and wondering how you were!! I know things will get better- it is just the "getting there" part that seems endless!!

Sending you a warm and hope to hear from you soon.

  #8  
Unread 03-13-2003, 08:59 PM
Has Anyone Had This/heard Of This?

Hi Judester

I'm so sorry you are having these problems, I think you have every right to mad at your other DR esp X-GYN for not dxing this?? Hello isn't that a GYN speciality. How could they miss something this new DR says is obvious ?? I am just glad you have found a new DR who knows what's up and can hopefully find a resolution for you, sounds like ((Linda)) has had the exact same dx and is doing fine- that has always been a real positive boast for me when someone else can testify to the fact there is remedy down the road!

Sending big s your way!
DLK
  #9  
Unread 03-14-2003, 08:36 AM
Has Anyone Had This/heard Of This?

You know...I was just so :burning: because I have had so many dr's give me internal examinations so many times since my hyst., that I cannot understand why this was never addressed before.

If my memory serves me correctly LOL, this is how the whole fistula thing started. The first doc that examined me at this clinic said he felt something, and that he had to stop the examination because he didn't want to pierce (sp?) anything...so this kind of got the ball rolling. I had numerous tests examinations etc.

What really irks me is that before I went to this clinic, I had two other gyn specialists examine me many times, and they never made any comment. One did say that he felt that perhaps I was having pain because of the way I was sewn up after the hysterectomy. He was a pompous dr and would not answer anymore of my questions. My bulldog dh was with me at this appointment, and all of his questions were also ignored. I dunno...something doesn't add up here, and it makes me think of some old boys club - these docs looking out for each other kind of thing.

Several weeks ago my Uro-Gyn mentioned reconstructive surgery but then dismissed it because he felt I didn't want to go through another surgery. He did say it was something to look at possibly down the road...I will ask him to elaborate, and in fact I know that my Nuero doc will insist that he does so as I heard him dictating his notes to this doc - Sorry about my run on sentences here LOL!

I think the "Fork in the Road" was his way of explaining it to me. He even drew me a diagram. I will save this for future reference. He explained (after yet another internal) that on one side of my vagina there is a wall..bascially that it is closed (I think it is the left side). On the other side it is wide open, and he is concerned about both.

((Linda)) I was thinking the same thing as you...in regards to an adhesion. DH and I had a long discussion about it afterwards and we both came up with that scenario. I hope and pray that this is what's going on. My Uro-Gyn made it sound like a big deal - he was very vague though, so I guess I'll have to wait until my appointment next month to find out what is going on :hair: ((Linda)) thanks for your input. I am starting to see that you have been through most scenarios since your hyst. And that you continue to be such a bright light around here for all of us. Thanks ((((Hun)))) for being so strong for all of us. Do you think that perhaps this 'adhesion thing' (if that is what it is) could have been growing since my hyst., and that is why my other doc missed it? She really was a good dr. so I'm shocked that she did.

((Sheri)) my friend thanks for all of those links. I've had a quick look at them but will look closer later, when I'm feeling a bit more alert. DH and I stayed up late last night to watch the Leafs hockey game...then a movie. It was his last night of vacation so I pushed the limits, and am paying for it today. I will certainly let you know the actual name of this....and will be very grateful for your help - as always. You are so good to all of us my dear and I love you...

((Pam, Kim & DLK)) Thanks for your input, comfort and ((Hugs)) - they mean the world to me. I will let you all know what I find out...

((Karen)) I think dh accidentally deleted your last e-mail He said he was sorry LOL!...But I didn't have a chance to read it. I hope you are well, and I will write you a note very soon. Sorry for the delays....we've been so busy this week, but I have the weekend to myself as dh's vacation is over and he is back to work tonight. If you are up to it, could you forward your last message back to me? I wish I had the chance to read it...

((((Druid)))) I am so sorry you are still suffering. Is there not anything the docs can give you to ease your pain and discomfort? I wish there was something I could do for you...You are right, we need to be strong for each other. I'm not really sure if this has to do with the vaginal cuff...he made it sound as if it was low in the vagina and that I should do a little exploring. I must admit, that I do not feel like doing that. It may upset me more. Perhaps down the road. And no, I do not have a cervix...I will keep you in my prayers...

I hope I haven't missed anyone...all of your posts mean the world to me....as you each have different experiences and insights to share. I thank God for this place. Without being able to share here...I can't even imagine what my state of mind would be. Problems just keep popping up! Oh yeah...the doc also said I have Restless Leg Syndrome. I don't think, and I hope that isn't anything to worry about!

Sorry about the length of this....didn't mean to write a novelette - which probably has a million spelling mistakes LOL! Thanks for listening...understanding...sharing....and mostly for supporting. You gals are the BEST!

I think I have a smilie left, so here are some really big S for each of you....And Lots of Love....
  #10  
Unread 03-14-2003, 12:13 PM
Has Anyone Had This/heard Of This?

(((Jude))) YES, a vaginal adhesion can grow over time. It's just scar tissue, and if it isn't broken right away it starts to thicken. My gyn noticed mine during a post op exam at about four weeks but it was pretty small... plus she was in there trying to diagnose my abdominal pain that turned out to be diverticulitis, so she didn't want to mess with it at that time.

At my six week checkup she cleared me for everything and said that it didn't look too bad, and that perhaps DBF and I could get it to break ourselves... she told me there might be a little pain and some bleeding (just what you want to hear when you're scared to have sex anyway). DBF tried once and was too scared to hurt me, so I tried reaching in and pushing on it myself but there was no way I could break it. At that point it was about the thickness of my pinkie finger. My DR told me I needed to have it removed or it would grow even more.

By the time I had it removed at around 3 months post op, it was pretty thick, maybe as thick as my thumb. So.... if an adhesion is what's happening with you, I think it's entirely possible that your former DR could have missed it a while back and it could have grown since then. My DR had never seen a vaginal adhesion in all her years of practice... her partner, who has had a large practice for about 30 years, had seen 2 of them (so he assisted when she removed it). I'm told it happens in maybe one in 1,000 TVH's, so I guess we are the lucky ones! And that also means it's not something your DR would have been looking for.

Hey, I figure, it could have been a lot worse... this is something that can be dealt with fairly quickly and easily once it's diagnosed. I would definitely pursue it with your DR, or even a new DR if you don't feel your current one is responsive enough. Your gyn could do the surgery if you felt more comfortable with her.

About the restless leg... there have been a few sisters in the who've had this... sometimes it's caused by iron deficiency, and it can also be a side effect of some meds (like certain antidepressants). Here's a link to a site with some info on causes and treatments:

http://www.wemove.org/rls_cor.html

Some sisters have found that supplementing with magnesium can provide relief from RLS.

Ya know, you're right, I guess I've been around the block a few times lately... I prefer to consider it 'gathering experience' so I can share with my sisters! Like you, I don't know what I would do without this wonderful community of support.

I'll be keeping my fingers crossed for you!
-Linda
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