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I had a fistula too I had a fistula too

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  #1  
Unread 03-13-2003, 01:50 PM
I had a vaginal fistula too

I am so happy to have found this web site. The support is wonderful. I just wish I found it during my nightmare. I had a botched hysterectomy in Nov and 10 days post op I started peeing without any control. I finally got to see my GYN after days of putting me off saying, "it's normal" "do Kegal exercises". I was very frustrated. Finally I saw my GYN and she catherterized me immediately and got me an appt. with a urologist. I had an IVP (the prep is not fun) but the x-ray doesn't hurt. I also had a cystoscopy (sp?) which confirmed a vaginal fistula. I had to wait 3 months being catheterized the entire time for the repair. Had to heal from the abdominal hysterectomy first. The repair was on Feb. 4th. I was catheterized for 4 weeks in 2 places...transvaginal and suprapubic. The suprapubic cath was very uncomfortable because it tugs no matter how careful you are. I finally got both cath's out last week and am peeing like a woman again. I have no energy still and have a lower back ache all the time. I am starting work on Wednesday. I know my employers will be willing to let me work short hours if need be. To those who have had this nightmare I want to say it WILL get better. I am 5 weeks post op from the second surgery and other than fatigue I'm doing better. Having some night sweats though and I still have one ovary.
My thoughts are with those who are going through what I went through but remember there will be a light at the end of the tunnel.
Best Wishes.
Renee
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  #2  
Unread 03-13-2003, 02:51 PM
I had a fistula too

Hello Everyone!

Welcome, Renee! Yes this is a wonderful group of ladies who have supported each other through alot. I'm sorry you didn't find us earlier, but it sounds like you are on your way to a good recovery! My repair was about two weeks before yours, I went back to work on March 3rd. I still have occasional backaches if I'm on my feet too much. Mostly the only problem I have is my bladder gets sore if I don't drink enough water (which I often forget!)
Take care, you will be in my thoughts and prayers.
Lots of hugs to you!

Louise
  #3  
Unread 03-13-2003, 02:59 PM
I had a fistula too

Thanks Louise for your response. I was wondering if this lower back ache was normal. I just got back from a short walk because it started to rain and my back was hurting and I don't want to over do it. Thanks also for reminding me to drink water!!!
Did you have a vaginal repair or abdominal. I was afraid to go vaginal because the urologist said he may not be able to reach the hole so I went with abdominal surgery again. I am not recovering as quickly as I did from my abdominal hysterectomy. I'm still so swollen and tired. Guess I'm old!
Thanks for all the support.
Renee
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  #4  
Unread 03-13-2003, 04:06 PM
I had a fistula too

Hi Renee

So glad you got moved over here by our friend Linda. So sorry you had the fistula too. we are some weary group and this does seem to keep happening??!!

I am going in next week for my repair and am praying for good results as you have had! I just need to be even more careful this time. I am not looking forward to another 4+ weeks of the cath's but at least Spring should be here by then.

Sending warm s and come and join in- I am always around and so are our other fistula sisters!!

Be well
  #5  
Unread 03-13-2003, 04:15 PM
I had a fistula too

Renee,

I had an abdominal repair-they tried to do it vag but the fistula was too high up. I had alot harder recovery, too after the fistula surgery. The first couple of the weeks were the worst!

Seems like I do ok while I'm at work 'cause I push myself, but on my days off, I'm so ehausted I just do nothing! My family is getting the worst of me and I need to find a better balance somehow.

Drinking water is so important, I feel sooo much better when I drink at least 6 glasses a day.

Take care,

Louise
  #6  
Unread 03-13-2003, 04:36 PM
I had a fistula too

Hi Renee . Welcome to hyster sisters. I currently have a fistula, vesico vaginal. I had my tah/bso vertivcal insision. I also had endo, ovarian cysts and my rt ovary was fused to the pelvic wall, and adeno, on Jan 21, I started leaking on feb1st. After the second week I got my catheter, just a regular one. I also had the ivp and cat scan, and had the cystoscopy done last friday. I am still waiting for a surgery date, I have an appt with the gyn specialist tomorrow, and hopefully I can get it soon, This week has been more leakage than before the cath, even with it in I have floods. My regular gyn that did the hist is going to assist the specialst,. So far was told that they are going to try and fix it vaginally. I have been having horrible bladder spasms, The Detrol la didn't work, so now I am on the b/o suppositries(belladonna and opium.) some days even that doesn't help.
I had a ruptured appendix in 1981, which lead to alot of adhesions, then had 2 laparoscpies for endo and ovarian cysts since then then the hyster was difficult.

Hope you are well.

s and :comfort to all my lovely sisters




Jan
  #7  
Unread 03-13-2003, 04:52 PM
I had a fistula too

Renee Welcome!

I too had a TAH in Nov and 3 weeks post developed a fistula. I had it repaired abdominally and vaginally on Feb 3. I had the supra pubic in for about 16 days, preferred it to the foley. From Nov to Feb I was in diapers, didn't have a catheter.

Feeling great now, just tired when I over due it. Also I find that coffee or tea without or without caffiene doesn't agree with me, goes right through me and makes me run to pee (not sure I will make it). No problem living without coffee or tea, water is good along with my cranberry juice.

I too found this sight after my hysterectomy, at least I had the sisters' support for my fistula surgery and recovery.

Isn't this the best site you have ever come across?

Hugs

Sherry xo
  #8  
Unread 03-13-2003, 05:13 PM
I had a fistula too

I can't believe how often this happens. Is anyone trying to arbritrate/sue the doctor. I've been told this is a "complication" and not mal practice. I've been keeping track of all out of pocket expenses/doctor cost/RX costs/ and lost wages but I feel I should be reimbursed for pain and suffering. Anyone get money from this "complication" ???
Thanks in advance.
Good luck to all,
Renee
  #9  
Unread 03-13-2003, 05:17 PM
I had a fistula too

No law suits here. I had endrometriosis and fibroids. Apparently, vesicovaginal fistulas can happen after difficult hysterectomys.

Sherry xo
  #10  
Unread 03-14-2003, 09:04 AM
I had a fistula too

Good Morning Ladies,

I feel as if I know you already. Thanks again for all the answers and support.

I awoke in a sweat again. Had to remove all the bedding for washing. Even though I have one ovary I assume I'm doing the menopause thing. I will be 50 years old this year.

I was told that I still may not have a "good repair" and won't really know until I've been uncatherterized for 6 more weeks. Have another appointment with Urologist in mid April. He said if I haven't sprung a leak by then I'm out of the woods. Has anyone been given the same story?

I am still really swollen and am starting work next week. I don't know what clothes I'm going to wear as my clothes are too tight around my belly. I also fear I am going to leak. I assume these are "normal" fears after going through all this.

To all the woman who are going through this you will be in my thoughts for a successful and speedy recovery.

Thanks again for all the support. I'm so glad I found you all.

Hope your day is a good one. Hubby and I are going out tonight....I'm going to try and dance a bit.

Renee
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