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endometrial ablation endometrial ablation

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  #1  
Unread 03-14-2003, 10:34 PM
endometrial ablation

HI: I am in the process of making the major decision of either trying endometrial ablation to stop excessive bleeding caused by fibroids or to have a hysterectomy. While I can understand that the ablation is less invasive and has lots of other advantages, the procedure does nothing to eliminate the fibroids. Am I right about this? They will continue to multiply and grow in the uterus. Has anyone had the ablation procedure and did you find it successful? Thanks---
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  #2  
Unread 03-14-2003, 10:49 PM
endometrial ablation

Hi Danzale19,

I really don't know much about the endometrial ablation; but here is a helpful website that you may be able to answer your questions.


http://home.att.net/~endometrial_ablation/

Wishing you the best in whatever decision you make.


TAH/BSO 2/18/2003 for fibroids, ovarian cysts and adeno. Recovery is going well.
  #3  
Unread 03-14-2003, 11:10 PM
ablation

hi

I don't think I had fibroids but I did have the very heavy bleeding and 2 years ago I was scheduled for a hyst. when at the last minute my insurance co decided to not cover it so they did allow a laproscopy (2nd one) the doctor said my uterus was very boggy and mushy. they still would not budge so instead they agreed to the ablation yes it was relief and a God-send at the time because I was having horrible bleeding so bad while I was working and on my feet all day it would gush out like if your water was breaking so after that ablation i had no more bleeding and was so happy i still every now and then had some pain but not too unberiable

Well last Oct I started spotting again and having the bad pain come back so ignored it up until Dec when I went to the Gyn and that day we scheduled my hystwhich i had last tuesday(TVH) and besides having a litle pain and ready to lose my marbles because I think my overies are asleep I think it was the best decision for me. Oh and this is also after being on the pill for 9 years which was controlling the endo at least to a point until 2 years ago ended up having what they thought to be a mini stroke and a horrible Migrain so went to neurolgist and the mri found spots on my brain which he said were conclusive with someone on the pill and having miagrains so I guess my point is that I did try other methods but in the end still had to have the hyst. It is totally your body and totally your decision this is my experience and my opinion only but do check into it! It will not hurt and I would ask Dr the outcome of other patients having the ablation for some it might be the answer but for me it was not
Good Luck
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  #4  
Unread 03-14-2003, 11:47 PM
endometrial ablation

Hi: Thank you for your responses. This website is so special because it makes us all realize we are not alone. It amazes me in fact, to hear the number of women who have to face surgery and pain and emotional suffering. I had no idea. When I read the stories of other women, mine is so small compared to theirs. I do have the fibroids and frustration of constant bleeding--but I do not have the terrible pain that some women are describing.

I still have not made my decision and probably will take a few days more of researching and listening to other women's accounts of the surgery and alternative treatments. There is no wrong or right--only an individual decision. But I am a person who finds myself always second guessing my decisions. I analyze way too much! I come up with all kinds of possible scenarios that can happen. Yes, one scenario is that i will feel better , be more comfortable and healthier after the surgery. But I seem to think more of the scenarios that include all kinds of complications.

Thank you for the time you spent to respond and for listening while I vented. I will pull all the facts of ablation and hyst together--. I wish one thing--that doctors were more available to us for questions and answers. My doctor was quite patient today in the office but I would love his home phone number so could call him as other questions and fears arise---lol---jk--that isn't likely to happen---lol!! And for good reason. I will write to my Hystersisters instead-they know it and live it--are not just responding from a textbook! DAnzale19
  #5  
Unread 03-15-2003, 12:41 AM
endometrial ablation

Hi!

I will tell you a little about my experience. I have always had heavy and painful periods. I had 2 C-sections (one at age 17 and the other at age 20) I had my tubes tied after the second one. At age 28 I had a D & C because I was having periods that lasted 2 weeks and were extremely heavy. At age 35 I had another D & C for the same reason. My periods continued to be painful and the bleeding was excessive. At age 38 I had the endometrial ablation done because I had some large fibroids. The ablation removed the lining of the uterus and most of the fibroids but the fibroids had already grown deep into the wall of my uterus so I knew there was a good chance I may have to have a hysterectomy someday. After the ablation I had no bleeding for over a year but gradually the bleeding did come back and was heavy and painful again. I had my hyst (LAVH) 1 year ago at age 41 - my uterus and cervix were removed, I kept both ovaries. My surgery went very well and my recovery was normal. Sometimes the ablation alone takes care of things and sometimes a hysterectomy is still done later because problems reoccur. The HysterSister site is an awesome research source. Let us know what you decide to do.

Here is the link to another site you may find helpful:
http://www.fda.gov/fdac/features/2001/601_tech.html

Take care!

s
  #6  
Unread 03-15-2003, 10:38 AM
endometrial ablation

I had this procedure along with tvt bladder surgery ,recovery was very easy not much pain at all,DR says it takes about 3 months to find out what your left with[period wise] it did lighten my period ALOT but it did nothing for my cramping and back pain {i'm guessing because of the adenmyosis?] I had my TAH/BSO at @ the 3 month mark because of pain and my growing uterus {26 week] I also had fibroids but not large DR felt it was worth a try and that it would buy me some time with my ovaries[plan has been to take them at 40 because of family cancer gene I'm 33]My opinion was it was a pretty easy surgery and is proably worth a try. Although I do not regret my hyst .
  #7  
Unread 03-16-2003, 08:28 AM
endometrial ablation

HI: thank you all for your responses. I am so confused on whether to have the ablation done first or just have the hyster. I was encouraged to hear that one of my Hystersisters had success with the ablation. It seems that most times though, if the bleeding is caused by fibroids, the ablation is only a temporary fix. If I was abit closer to menopause I would definitely go with the ablation, but still have 6-9 years before menopause. As much as I know the answer is going to be the hyster., I still try to talk myself out of it. I guess I am just not mentally where I should be for major surgery. There isn't a big rush--but it should be done within next couple of months before the fibroids have a chance to get much larger. They seem to be fast growing. thanks again for the input--Danzale19
  #8  
Unread 03-16-2003, 09:12 AM
endometrial ablation

Hi again!

Even though I did eventually have a hysterectomy I do not regret trying the ablation first. If you are not completely ready to have a hyst, having the ablation could possibly temporarily relieve some of the difficulties you are having. This could give you more time to prepare yourself for a hyst if it is needed later. After I had the ablation I had another 1 1/2 years until I actually had to have the hyst. Because of the fibroids already being deep into the wall of the uterus the ablation could not completely remove them.

As I said in my previous post, I was only 41 when I had my hyst - I also had many years to go until menopause age. However, I was able to keep my ovaries and they have continued to work just fine. If you need to have a hyst, discuss with your doctor the possibility of keeping your ovaries which would postpone menopause a bit longer.

Take care of yourself!

s
  #9  
Unread 03-17-2003, 09:31 AM
endometrial ablation

I have always had bad heavy periods. Every since I was very young. During high school I rarely ever went to school the first 2 days of my cycle because I couldnt sit through a 45 min class with out needing to change my pad and tampon. I missed lots of school for it to. Had my credits taken away as well once. Took me 5 years to graduate high school. I feel a major part of that was due to my heavy periods.
After I had my son, things seemed to calm down a bit. I was on bc as well, but even so I would have heavy flows, and had lots of break through bleeding. After my second child was when things go really bad. No form of hormones was working any longer. No matter what I still had break through bleeding and extremely heavy bleeding. I would be in bed for 2 days at least, in such extreme pain. Some days unable to work and the older I got the more erratic my periods became. After my 3rd child and my tubal things spiraled way out of control. To the point I was afraid to leave my house at any time, even for short times because I never knew when I might start bleeding. The migrains were bad to because of the hormonal imballance. Last summer I finally decided enough was enough. I went to my doc who sent me on to a specialist. He suggested either a hysterectomy or for me to try the ablation. I choose the ablation. Mostly because it is less invasive, short recovery time. I have 2 small children, and a husband who is a work aholic! lol.
Oct 3 of 2002 I had the ablation. I ended up with a horrible infection afterwards and had no bleeding right after the surgery but then on the 4th day of recovery the flood gates opened and I bleed heavily till Halloween. I was sooooo tired, the anemia taking over and not sleeping well. Life sucked. When the bleeding stopped I was hopeful it wouldnt return. But just a few short days later I had a period. Since then I bleed on average 12 days, with about 18 seperating my cycles. From end bleeding to starting again. I will say that the bleeding isnt quite as heavy, I am no longer gushing, but its still far to heavy then it should be. I also notice its not as painful as before. I can usually muster through the day I start now with lots of ibuprofen. I went back to my doc in Feb and he said to me. Bernie, enough is enough. We have tried everything, and for your sake, your health and your childrens sake, lets do the hysterectomy. You could have another 21 years of this ( I am 31). I agreed to the hysterectomy and am now scheduled for April 2.
I dont regret trying the ablation first. Because if it had been successful I wouldnt be faced with the hyst. But it wasnt.
I dont have fibroids, but I probably do have pid, and I have cystic ovaries.
Good luck with what ever you decide!
  #10  
Unread 03-17-2003, 09:50 AM
endometrial ablation

Hi Danzale 19

I had an ablation done in April 2002 for excessive and prolonged bleeding. The procedure itself was a piece of cake. Very mild cramping afterwards for a day or so. It definately decreased the bleeding but unfortunately didn't help for long. I am now scheduled for a TAH on May 8th. I don't regret trying the ablation however and would do the same thing again if I had to do it over again.

Kitty32
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