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cyclical pain AFTER hysterectomy info???? cyclical pain AFTER hysterectomy info????

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  #1  
Unread 03-15-2003, 10:34 PM
cyclical pain AFTER hysterectomy info????

Does anyone know where I might find some info on the internet about having cyclical pain after a hysterectomy? I have searched, but everytime, I come up with websites that talk about cyclical pain in women that have never had a hysterectomy. I Just want to find a site that talks about women having cyclical pain after a TAH. I kept my ovaries and have all the same symptoms I had before my hysterectomy and I'm getting so tired of sitting around wondering about why I am having so much pain at the time I would have had my period. I know it's that time because I get other fun PMS symptoms. It's making me nuts! Basically my gyn said the uro will tell him if there's anything more he needs to do. I took that as "don't call me, I'll call you." I just want to find something that tells me I'm not crazy, that this is something that other people experience! My uro thinks I could have endo, but I don't know if he told my gyn about his thoughts. I think both doctors are waiting to see how my IC meds help because I know my gyn thought all my problems were because of my bladder. I just want to prove him wrong so badly! I have an appointment with my uro in 3 weeks and hopefully he will help me out, if he doesn't, I don't know where to turn! Please don't tell me to try a new GYN, I don't think I have it in me to tell my story to a new doctor and take the chance of him/her not taking me seriously.
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  #2  
Unread 03-15-2003, 11:08 PM
cyclical pain AFTER hysterectomy info????

I think you have come to the right place. I have read many post about cycle pain and know from experience that PMS is still a valid episode in ladies that keep their ovaries. You might want to start logging the date and type of pain you are experiencing so you can relate it to your DRs. I understand from experience that DRs like to take the *wait and see* approach to lots of medical issues I think especially after surgery because it takes a while for our bodies to get back into the groove.

Now- don't call me crazy but this has been a thought on my mind- Your body has the same monthly pain for lets say 20 years and then all of sudden the origin isn't there but does it still remember?? just a thought. I understand that individuals who have had aputations performed have phantom pain, could that be related to the missing uterus?? Again call me crazy just wondering

I do know that your ovaries are still sending the same messages to your brain as always, my DR said(now how they now this I don't know) my ovary doesn't know it's all alone. So does it start the process going and the body just follows through uterus or not?

The indication of your URO concerning endo should be brought to your GYN indication though for the matter of discussing his/her opinion on it.

Also, you can do a pull down menu or search on cycle pain to see if you can find info from other post on it. I think this site is as rich on info as I have found on the web.

Medically speaking, did your GYN think it was related to PMS or too painful for that conclusion?

S, hope you find some real answers soon,
DLK
  #3  
Unread 03-15-2003, 11:24 PM
cyclical pain AFTER hysterectomy info????

pasdechat:


I'm sorry that you are dealing with this
I didnt keep my ovaries so I cant offer much insight with this. But I have heard others talk about cyclical pain when they kept their ovaries. I'm sure some of the others will be along soon.
Hang in there - things will get better. I know how you feel though - especially when it comes to the Dr.s not taking you seriously.
Take care & keep us updated on how you're doing

Susan
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  #4  
Unread 03-16-2003, 05:18 AM
Here is some info for you:) Hope it helps...

  Quote:
Although the symptoms of PMS are closely associated with the luteal (last half) of the menstrual cycle, most studies have not shown any consistent differences in levels of estrogen or progesterone between women with PMS and those without. It has been demonstrated, however, that permanent reduction of estrogen and progesterone with oophorectomy (removing ovaries) results in reduction of PMS symptoms even if estrogens are given back as hormone replacement after the surgery. See the two abstracts that follow.
If indeed you are at high risk for ovarian cancer, e.g. family history, bilateral oophorectomy substantially reduces but does not eliminate the risk of ovarian cancer. However, following their removal, your risk of heart disease, osteoporosis (bone thinning), pelvic floor relaxation problems, atrophic vaginitis (to name only a few) is substantially increased over your lifetime IF you are not committed to hormone replacement therapy (HRT). The problem is that most women, 10 years after surgery or menopause, are not taking their HRT. So if you do decide to proceed with removal of your remaining ovary because of your severe PMS and your high ovarian cancer risk, please remember to take your estrogen!

***** Am J Obstet Gynecol 1990 Jan;162(1):105-109
The effect of hysterectomy and bilateral oophorectomy in women with severe premenstrual syndrome.
Casper RF, Hearn MT
Department of Obstetrics and Gynecology, University of Western Ontario, Toronto, Canada.

The etiology of premenstrual syndrome is unknown, although this syndrome is linked to the menstrual cycle. Fourteen women with severe, debilitating premenstrual syndrome volunteered for a study of therapy by hysterectomy, oophorectomy, and continuous estrogen replacement. All had completed their families and had failed to benefit from previous medical treatment. The diagnosis and severity of premenstrual syndrome were assessed by means of prospective charting and psychological evaluation. All patients had clearly cyclic symptoms and psychological scores consistent with a major disruption of their lives before surgery. Six months after surgery, premenstrual syndrome symptom charting revealed complete disappearance of a cyclic pattern with scores equivalent to those of a normal population. Psychological measures 6 months after operation showed dramatic improvement in mood, general affect, well-being, life satisfaction, and overall quality of life. Surgical therapy, involving oophorectomy, hysterectomy, and continuous estrogen replacement, is effective in relieving the symptoms of premenstrual syndrome and is indicated for a small, selected group of women.

*****

Am J Obstet Gynecol 1990 Jan;162(1):99-105
Lasting response to ovariectomy in severe intractable premenstrual syndrome.
Casson P, Hahn PM, Van Vugt DA, Reid RL
Department of Obstetrics and Gynaecology, Queen's University, Kingston, Ontario, Canada.

A total of 14 women with severe premenstrual syndrome unresponsive to conservative medical therapy were treated with danazol in doses sufficient to suppress cyclic ovarian steroidogenesis. In each case medical ovarian suppression resulted in complete relief from symptoms. For ongoing symptom relief, each woman elected to undergo bilateral ovariectomy and concomitant hysterectomy. Both medical ovarian suppression and ovariectomy with low-dose conjugated estrogen therapy afforded lasting relief from cyclic symptoms of premenstrual syndrome and a corresponding improvement in overall quality of life. We conclude that cyclic ovarian steroidogenesis is a powerful determinant for the expression of premenstrual symptomatology.

Ovariectomy with low-dose estrogen replacement is an effective alternative for the woman with debilitating premenstrual syndrome who does not respond to conventional interventions.

Does PMS go away after just hysterectomy alone?

I am 26 and I am considering a hysterectomy. I have very bad periods and major mood swings to the point of being so depressed I don't want to see or talk to anyone. I have a lot of pain 2 weeks before and during. I also gain about 5 pounds.I have had my children and I don't see a need for the plumbing if it is giving me problems. Is this a good idea for me or should I wait till I'm older? It sounds as if you are considering a hysterectomy basically because of severe PMS symptoms. It is possible, however, that there are other causes of your symptoms such as menstrual cramps due to endometriosis or adenomyosis, or chronic pelvic pain due to varicosities, etc. I guess the first question I would ask is whether you have had a diagnostic laparoscopy to look at the pelvis and have you had any hormone therapy to suppress ovulation and menses? These things should be done before considering hysterectomy. Secondly, if you think the main problem is PMS, has your doctor had you fill out a prospective symptom calendar to confirm that the mood changes are not present more than the two weeks premenstrual? If we had an interactive, internet educational consultation we could better pin down whether hysterectomy is the next step for you. It really is essential to know exactly what we are treating in order to fully understand the risks and benefits of the treatment.

Let us assume for the sake of this writing that the diagnosis of PMS, and only that, has been confirmed. The question then becomes as to how successful hysterectomy is in curing PMS symptoms. Also, because you are still quite young, removal of the ovaries would be very undesirable, so the question is refined to "would hysterectomy without ovary removal cure the fluid retention, mood swings, depression, and 2 weeks of pelvic pain that follow ovulation of the egg from the ovaries?"

Women who fail lifestyle changes and medical therapy for PMS often inquire about hysterectomy for PMS. They are cautioned that if the ovaries, which cause the cyclical hormonal changes, are not removed, it is very possible that the symptoms will not go away. Some women continue to have PMS symptoms even after hysterectomy; on the other hand many women having hysterectomy note that their PMS symptoms disappear.

In some of the few studies which have evaluated hysterectomy in PMS patients, the accuracy of the PMS diagnosis suffers from a lack of prospective calendar symptom charting. Nevertheless, hysterectomy without ovary removal seems to cure about 75% of women who have PMS (1). With well documented, refractory-to-medical-therapy PMS, removal of the ovaries along with the uterus cures close to 100% of women (2).

In other studies that look at PMS symptoms in those women who have had a hysterectomy without removing the ovaries, there seems to be a question of whether there is not some other diagnosis than PMS which is causing the symptoms.

In one study of 36 women (3) who felt they still had PMS after a hysterectomy in which the ovaries were not removed, prospective symptom charting along with hormonal assessment to detect ovulation found that:

25% had no PMS
61% had sporadic symptoms not occurring each cycle
14% had true PMS


This probably reflects the lack of consistent criteria to diagnose PMS but it also indicates that many times, hysterectomy without ovary removal is curative of PMS. The bottom line is that about 25% of the time, a woman will undergo hysterectomy for what she thinks is PMS but symptoms of some sort will still persist; 75% of the time she will feel better. As long as you understand this, you can make some choices. In general, I would suggest making sure of the accuracy of the diagnosis for which you are considering surgical therapy.

premenstrual syndrome:
Synonyms~
PMS, premenstrual dysphoric disorder, PMDD, late luteal phase dysphoria, premenstrual tension,
General description~
This syndrome refers to a complex of physical and mood symptoms that worsen in the one to two weeks prior to a woman's menses and disappear by the end of a full menstrual flow.
Behavioral symptoms commonly include:
fatigue
irritability
labile mood (anger/sadness)
depression
oversensitivity
crying spells
social withdrawal
forgetfulness
difficulty concentrating
Physical symptoms commonly include:
abdominal pelvic bloating
breast tenderness
acne flare up
appetite changes
food cravings
extremity swelling
headache
stomach upset
Is it common?
About 80% of women report premenstrual emotional and physical changes. About 20-40% of these women experience difficulty with these symptoms so that there is some change in behavior that is noticeable by themselves and others. This group would be considered to have menstrual distress. Approximately 3-5% of women in the reproductive age group report a significant impact of these symptoms on work, lifestyle or relationships. This degree of severity is called premenstrual syndrome (1).

Some authors have tried to divide PMS into 3 severity stages: low level symptoms, PMS regular or standard symptoms (menstrual distress), and premenstrual magnification symptoms (2, 3, 4). The latter would be identified by most physicians as PMS.


Differentiating
features Mood and physical symptom questionnaires in the follicular phase (days 4-9) and the luteal phase (days 22-27) of the menstrual cycle or a prospective symptom calendar tracking 4 or more prominent symptoms is necessary to differentiate this condition from other medical and psychologic conditions which may just worsen somewhat with menstrual physiology. There should be a symptom free interval from about day 4 to day 12 of a menstrual cycle and at least a 30% higher symptom score in the last 7 days before a menstrual period (1). Other mental health and medical conditions need to be ruled out as underlying problems:

Mental health disorders
major depression
minor depression (dysthymia)
generalized anxiety
panic disorder
bipolar illness (mood irritability) Medical disorders
anemia
autoimmune disorders
hypothyroidism
diabetes
seizure disorders
endometriosis
chronic fatigue syndrome
collagen vascular disease

A serum TSH to check thyroid function and a screening inventory for depression, anxiety disorder and panic disorder have the highest yield to rule out the most commonly confusing conditions.

Other features:
Painful menstrual cramps (dysmenorrhea) may present with PMS but they are not usually considered to be a part of the syndrome and probably have a different etiology. Breast soreness (mastalgia) can go along with PMS but it often occurs as a separate condition without accompanying mood problems. It is estimated that as many as 50-60% of women with the complaint of severe PMS have other medical or psychiatric conditions. Over 150 symptoms have been attributed to PMS so the symptom list can be extensive. It can even include hot flashes, heart palpitations and dizziness (1).


Cause:
Premenstrual syndrome does not occur in women before menarche (start of menses), after menopause or without ovulation. It takes ovulatory menstrual cycles to have PMS. Evidence supports the theory that premenstrual symptoms are caused primarily by changes in brain chemicals that transmit between nerves and cells (neurotransmitters) brought about by cyclical fluctuations in ovarian hormones.

An ovulatory cycle has slightly higher estrogen and massively higher progesterone levels in the two weeks before a menses than in the two weeks after a menses. There is some debate as to whether progesterone causes or relieves PMS symptoms (5, 6, 7, 8, 9), but the consensus seems to be that progesterone and synthetic progestins can cause PMS types of mood symptoms (10). Since progesterone and progestins can also relieve symptoms it seems best not to prejudge its role in the cause of PMS. It is interesting that anti progesterone drugs (RU-486) do not make the symptoms go away (11).

Studies have looked at whether the hormones in the luteal phase are at different levels in women with and without PMS. Essentially they found no differences in estrogen and progesterone levels. Cortisol, which is a stress hormone is lower in women with severe PMS symptoms but this is more likely an effect than a cause, i.e., the stress hormone has been depleted by the stress (12, 13). Thyroid hormone has been looked at and except for the about 5% incidence of hypothyroidism found in women presenting for PMS, abnormal thyroid function has not been found to be associated with premenstrual syndrome (14).

Unnecessary studies:
Serum blood measurements of estradiol (estrogens), progesterone, or testosterone.
Natural historyuntreated:
In the age range of 25-45, PMS symptoms develop and quickly peak within several months. After that they tend to stay at a fixed level and not progressively worsen as do some of the other medical or mental health conditions. Unless the symptoms are treated in some manner, they stay the same until menopause when the cyclicity goes away as ovulation stops.

Goals of therapy (Rx):
The main goal of treating PMS symptoms is to reduce those symptoms in intensity to the point where they do not cause difficulty with family and work relationships, they do not cause time lost from work or leisure activities, and they do not cause a woman to alter her daily activities just because of where she is in the menstrual cycle.
1st choice therapy:
After the diagnosis of PMS without underlying medical or mental health problems is confirmed, the primary treatment is lifestyle changes aimed at reducing the overall baseline stress level. This means discontinuance of all caffeine and alcohol which are known to aggravate stress states (15, 16, 17, 18), beginning a restricted diet such as a low fat, vegetarian or high complex carbohydrate diet (19), and starting a regular exercise or conditioning program (20, 21). All of these need to be instituted before additional over-the-counter or prescription treatment is begun. If prescription medication is needed, fluoxetine (Prozac®), 10-20 mg/day is effective with low side effects.

Other therapies used

Effective non prescription treatments include:
Vitamin B-6 up to 100 mg/day (22)
Calcium 1000 mg/day (calcium carbonate)(23)
Magnesium (Mg) 200 mg/day as MgO (24)
Naproxen sodium 550 mg twice a day (eg, Alleve®)(25)
Effective prescription therapies include:
fluoxetine (Prozac®)(26) 20 mg/day
sertraline (Zoloft®)(27) 50-150 mg/day
paroxetine (Paxil®)(28, 29)10-30 mg/day
clomipramine (Anafranil®)(30, 31) 25-75 mg/day (14 days before menses)
alprazolam (Xanax®)(32, 33, 34) 0.25 mg/ 3-4 times/day (6-14 days before menses)
buspirone (Buspar®) 25-60 mg/day (12 days before menses)
GnRH agonist Lupron®(35, 36, 37) 3.75 - 7.5 mg/monthly I.M.
GnRH agonist Buserelin (38) 400-900 ug/day intranasal
propanolol (39) 20 mg/day between menses and 40 mg/day during menses Removal of both the uterus and ovaries cures PMS (40, 41) but this is generally not an option for younger women. PMS symptoms do not always return following a hysterectomy with oopherectomy for PMS if replacement hormones are given after surgery (42). By itself, hysterectomy without removing the ovaries does not cure PMS but it often decreases many of the physical symptoms to a point where a woman can tolerate the remaining cyclical symptoms (43). In general, 75% of women who have a hysterectomy without oophorectomy will be permanently relieved of their symptoms, while 25% will still complain of PMS (44).


Treatments toavoid:
Herbal treatments have not yet been shown to be effective for PMS. Progesterone efficacy has conflicting studies and since many women get mood side effects from progesterone and progestins, these are not used as treatment. For the same reason birth control pills and progesterone shots such as depomedroxyprogesterone acetate (DepoProvera®) may be used since they block ovulation, but some women have worsened symptoms on these treatments.

A serum TSH to check thyroid function and a screening inventory for depression, anxiety disorder and panic disorder have the highest yield to rule out the most commonly confusing conditions.

Other features:
Painful menstrual cramps (dysmenorrhea) may present with PMS but they are not usually considered to be a part of the syndrome and probably have a different etiology. Breast soreness (mastalgia) can go along with PMS but it often occurs as a separate condition without accompanying mood problems. It is estimated that as many as 50-60% of women with the complaint of severe PMS have other medical or psychiatric conditions. Over 150 symptoms have been attributed to PMS so the symptom list can be extensive. It can even include hot flashes, heart palpitations and dizziness (1).

Cause:
Premenstrual syndrome does not occur in women before menarche (start of menses), after menopause or without ovulation. It takes ovulatory menstrual cycles to have PMS. Evidence supports the theory that premenstrual symptoms are caused primarily by changes in brain chemicals that transmit between nerves and cells (neurotransmitters) brought about by cyclical fluctuations in ovarian hormones.

An ovulatory cycle has slightly higher estrogen and massively higher progesterone levels in the two weeks before a menses than in the two weeks after a menses. There is some debate as to whether progesterone causes or relieves PMS symptoms (5, 6, 7, 8, 9), but the consensus seems to be that progesterone and synthetic progestins can cause PMS types of mood symptoms (10). Since progesterone and progestins can also relieve symptoms it seems best not to prejudge its role in the cause of PMS. It is interesting that anti progesterone drugs (RU-486) do not make the symptoms go away (11).

Studies have looked at whether the hormones in the luteal phase are at different levels in women with and without PMS. Essentially they found no differences in estrogen and progesterone levels. Cortisol, which is a stress hormone is lower in women with severe PMS symptoms but this is more likely an effect than a cause, i.e., the stress hormone has been depleted by the stress (12, 13). Thyroid hormone has been looked at and except for the about 5% incidence of hypothyroidism found in women presenting for PMS, abnormal thyroid function has not been found to be associated with premenstrual syndrome (14).

http://www.duj.com/cystitis.html

Abdominal or Pelvic Pain Occurring Monthly: http://www.wdxcyber.com/npain08.htm

Hysterectomy Factsheet: http://www.womens-health.org.nz/WHIS...com/adca4.html

Pelvic Pain Assessment Form: http://www.pelvicpain.org/pdf/FRM_Pa...stionnaire.pdf

Pain in pelvis/lower abdomen: http://www.wdxcyber.com/what.htm#pelvicmn
http://www.wdxcyber.com/ppain.htm#ppainprs
http://www.wdxcyber.com/ovarymas.htm#ovmixed

PMS Symptoms after Menopause? http://www.wdxcyber.com/nmood19.htm

Progesterone Cream and Menopausal Symptoms: http://www.wdxcyber.com/nmood20.htm

Muscle Pain Presenting as Pelvic Pain: http://www.wdxcyber.com/npain05.htm

Hysterectomy & PMS: http://www.ivillagehealth.com/expert...151346,00.html http://forums.obgyn.net/forums/women...9809/1066.html http://www.ivillage.com/topics/healt...166046,00.html

Menopause Matters: The Menopause Handbook: http://www.menopausehandbook.co.uk/aftermeno.html

PMS and You - Symptoms and Treatments - Premenstrual Syndrome: http://womenshealth.about.com/librar...y/aa110297.htm http://womenshealth.about.com/librar...y/aa112397.htm http://allhealth.com/experts/womens/...03_498,00.html

  Quote:
while it may be hard to explain, physicians do report that patients find relief from PMS after a hysterectomy. ... http://www.ynhh.org/pat_edu/hysterectomy/faq.html
((Pasdechat))
  #5  
Unread 03-16-2003, 07:51 AM
cyclical pain AFTER hysterectomy info????

(((((padechat)))))) I know exactly how you're feeling: I too kept my ovaries after my TVH and have been having these extreme PMS symptoms ever since my ovaries woke up, 3 months after my surgery. This was something I never expected since, Pre-op, I'd never experienced anything of the like. Since about the 10th month post op, the symptoms did relent somewhat and, most of the time, I barely know I'm ovulating.

I did consult my ob/gyn at 5 months post-op, since the pain, back then, was so extreme that I would spend at least 3 days (usually on the week-end ) each month, curled up on the couch, with my tummy pillow. At the same time, I was experiencing peri-meneposal symptoms in the form of hot flashes, night sweats and dizzy spells, as well as having increased joint pains.

My doctor indicated the following:
  • There was basically no reason for my PMS to be more extreme after my hyst (problem was that it was...)
  • Most likely, my ovaries were reacting to the shock of surgery and the shock of having the uterus removed;
  • Most likely, the symptoms would relent, even completely go away, once my ovaries recovered from the shock of the surgery and of having my uterus removed.
However, just to be sure, he did test both my hormone levels and my thyroid levels. He also prescribed some anti-inflammatories (anaprox) to help with the pain when it was at it's extreme.

Another thing he had me do, to confirm that it was indeed cyclical, was to chart my symptoms. I also would include what I was doing, if there were stressors involved, what I was eating, any new activities/exercises and chartered my moods since this was all part of my symptoms. What the journalling revealed was that it was indeed cyclical. It was also thanks to the journaling that I realized that things were starting to improve around the 10th month post-op.

It's good that you are seeing a uro and getting those problems addressed. You might also want to start the journalling, just to help your doctor realize that it is indeed cyclacle.

Just a thought: if you were having these symptoms, at the same intensity, pre-op, removing only the uterus would probably help, espetially if it involved removing the cause of the majority of the problems (mine was extreme bleeding, rectocele and hormonal unbalance thanks to a huge fibroid). However, the way I see it (remember, I'm not a doctor) you would still have the same cycles, hence, your problems might be explained this way

I hope that you get answers .... and relief... real soon. Please keep us posted.
  #6  
Unread 03-16-2003, 09:45 AM
cyclical pain AFTER hysterectomy info????

Thanks everyone for your responses and all the info!!!! I have been charting my symptoms. Every month around the beginning of each month, I break out like crazy(that is definately getting worse each month), my breasts hurt(that has gotten slightly better) and I get that same old pelvic pain(where my ovaries are)....sharp, sharp pains that make it hard to even stand up. I am now almost 10 months post-op and I see no signs that it is getting better. I also do notice during that same time I get depressed(although that might be the pain getting me down) and I feel out of control with my eating and I get really snappy with my poor hubby. My gyn originally suggested I go on BCP's, but I didn't want to, but now I am considering it.

Do any of you have any info on pelvic congestion? That's something that is in my surgery report and I wonder if that is a source of my pain???? Just a thought.

Sometimes I think I'm making it out to be worse than it really is. I think that way about 2 weeks each month, then I start thinking "I'm cured!" because I'm not in pain, or it's very minimal. Then it hits and I realize how bad it really is and that it IS there.....that's why I have to keep a journal because I forget the intensity of the pain so well. I think I am so used to pain that I even forget the intensity of the most severe pain I've been in(childbirth, waking up after my hysterectomy, etc.....).

Thanks again everyone! And if any of you have any info on pelvic congestion, I would greatly appreciate it!

's
  #8  
Unread 03-16-2003, 08:14 PM
cyclical pain AFTER hysterectomy info????

Thanks so much Sheri!!!!! You always have so much info to share! What would I do without you? What would I do without everyone here?

Thanks again ladies
  #9  
Unread 03-17-2003, 12:21 AM
cyclical pain AFTER hysterectomy info????

Hi, Pasdechat, I too have pain every month. I had a tvh/rso and bladdersling last July. I develop cysts every month on my left ovary.I used to get them on the right one too. they cause horrible pain and discomfort. I also experience some pms symptoms too, sore breasts, acne, moodiness. I think that's normal after a hyst seeing that the hormones come from the ovaries. My Dr. told me before my surgery that I would still have some pms symptoms. About the cysts tho, he suggested BC to supress ovulation and thus stopping the production of ovulation cysts. I tried it but I can't handle the yucky side effects of BC so I stopped taking it after 2 days, so I don't know what to do about it now. My Dr. said no way would he take out my remaining ovary since it is healthy and functional and because of the fact that I'm only 36. I hope you find some answers soon and begin to feel better. I just wanted to share my experience with you. Maybe you should try the BC and see if it works for you.Good Luck to you and take care! Kathyanne
  #10  
Unread 03-20-2005, 02:27 PM
cyclical pain AFTER hysterectomy info????

Hi Pasdechat,

I have had the same problem that you have been experiencing - except that I am 7 months post-TVH, kept ovaries. I started having the same exact pains that drove me to have my hyst in the first place about 2-3 months after my surgery. The pain wasn't as extreme at first but now it is worse than it was -even before my surgery. On the 17th of March I had it sooo bad that I wanted to call 911 but couldnt because I was by myself, in too much pain to walk or crawl and was even afraid to be moved by emergency personal if they did come. The pain was worse than I have ever felt in my whole life! I went to the dr yesterday. She ordered a Pelvic and Full Abdominal Ultrasound and Numerous blood tests. She then informed me that she didnt really know what could be causing this cyclic pelvic pain. The only guesses that she had was that it could be ovarian cysts, overian cancer, interstitial cystitis, adhesions, or endometriosis that could have attached itself to my bladder or elsewhere. Please keep me informed on your dr. visits and physical symptoms, medical tests or emotional status. Cause I sure could use a friend in this situation as well. Good Luck to you, Krisclynn
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