Cancer was worse than originally diagnosed...A Gentle Warning - Page 2 | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > Cancer Concerns - GYN is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Cancer was worse than originally diagnosed...A Gentle Warning Cancer was worse than originally diagnosed...A Gentle Warning

Thread Tools
Unread 03-17-2003, 09:08 PM
Cancer was worse than originally diagnosed...A Gentle Warning


Yes, a hysterectomy is the only way to know what is really going on, however the odds are with you that they did get everything. I once read a statistic that the cone biopsies with adenocarcinoma are 80% accurate. My cancer was only 1mm and a cone most likely would have gotten it. I needed the peace of mind though. As long as you are being followed closely, I would not worry too much about it. As long as your paps and CT scans are clear for about a year or two, I think that you can be confident that you got it all. (I am not a doctor though)
Sponsored Links
Unread 03-18-2003, 08:08 AM
Cancer was worse than originally diagnosed...A Gentle Warning

Hi Denise,

I guess this is a good way to discuss the trachelectomy alternative! I'm just not sure why a trachelectomy would not get all of the cancer if it's confined to the cervix and uterine biopsies were negative. A cone biopsy leaves a lot of the cervix; a trach. removes the whole thing. My lymph nodes were clear as well.

The type of adenocarcinoma I had does not produce skip lesions and since my whole cervix is gone, I can't figure out why I would be at higher risk than someone with a hysterectomy . When making this choice I was constantly debating this very question. Is there something that I am missing here? I really appreciate input on this if I don't have all of the information, b/c everything I've read says equal risk of recurrence for trach/hyst. I know you've done a great deal of research and are really knowledgeable on the subject so I appreciate your input.

Unread 03-18-2003, 02:04 PM
Cancer was worse than originally diagnosed...A Gentle Warning


I do not know the answer to your question. It sounds like the doctors are taking good care of you. As long as you are being followed closely and you trust your doctors I would try not to worry. I did not have my lymph nodes looked at and that worried me for a while. I am finally beginning to breathe a bit easier.
Sponsored Links
Unread 03-18-2003, 02:35 PM
Cancer was worse than originally diagnosed...A Gentle Warning


Yeah, I suppose I'm having a case of second-guess-itis! Thanks.
Unread 03-22-2003, 09:25 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Chicklet....I did not mean to cause you to worry. You seem to be very aware of the pros and cons of the trachelectomy and have taken good care of yourself. Don't second guess yourself.

All the research I did agrees that the recurrence rate is no greater with a trach. vs. a hysterectomy. Keep trusting yourself and your Dr.

I met with my local oncologist this week and he stated that I would not have chemo or radiation. Just followup PAPS.

I think you made the right decision in getting a trachelectomy. I never realized how wonderful it would be to be a Mom. So...put that trachelectomy to use and have a baby!!!! Jill Sue
Unread 03-24-2003, 02:05 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Jill Sue,

Thanks!!!! I think I was having a low day when I saw your post, you know, cancerhead and the whole nine yards. You sound like you are recovering very well after a few setbacks, I am so glad for you!

On the trach. front, it turns out I may have to have a hyst. after all. My "neocervix" has scarred over, so my period can't get out and might cause me some serious problems. So hubby and I are under major pressure to decide whether to try for a pregnancy or not. I realize that I am very fortunate to have that choice at all, believe me. But we shall see, and I just wanted to keep the board posted on the issues with a trachelectomy, of which there are many!

Thanks again for your support, Jill Sue, and keep taking good care of yourself as well.


Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
3 Replies, Last Reply 11-11-2010, Started By renu
8 Replies, Last Reply 06-22-2010, Started By sistertlb
8 Replies, Last Reply 11-10-2008, Started By DeniseOfPA
12 Replies, Last Reply 08-07-2008, Started By beinginthenow
20 Replies, Last Reply 07-30-2008, Started By Trickie
31 Replies, Last Reply 06-29-2008, Started By pooshxwoosh
3 Replies, Last Reply 12-20-2006, Started By darlahans
34 Replies, Last Reply 03-27-2006, Started By hildetta
12 Replies, Last Reply 01-20-2005, Started By Latina
11 Replies, Last Reply 01-06-2005, Started By Carrie20
20 Replies, Last Reply 12-19-2004, Started By Danaka
31 Replies, Last Reply 08-30-2004, Started By known2b
7 Replies, Last Reply 03-04-2004, Started By CJ58
21 Replies, Last Reply 02-11-2004, Started By SparkleFarkle
27 Replies, Last Reply 12-30-2003, Started By liz109
11 Replies, Last Reply 01-25-2003, Started By swolf171
11 Replies, Last Reply 08-25-2001, Started By Jules
18 Replies, Breast Health
4 Replies, Prayer Requests for Hyster Sisters
16 Replies, Hysterectomy Recovery (post hysterectomy)


Hysterectomy News

September 27,2021


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!