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Cancer was worse than originally diagnosed...A Gentle Warning Cancer was worse than originally diagnosed...A Gentle Warning

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  #11  
Unread 03-17-2003, 09:08 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Chicklet----

Yes, a hysterectomy is the only way to know what is really going on, however the odds are with you that they did get everything. I once read a statistic that the cone biopsies with adenocarcinoma are 80% accurate. My cancer was only 1mm and a cone most likely would have gotten it. I needed the peace of mind though. As long as you are being followed closely, I would not worry too much about it. As long as your paps and CT scans are clear for about a year or two, I think that you can be confident that you got it all. (I am not a doctor though)
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  #12  
Unread 03-18-2003, 08:08 AM
Cancer was worse than originally diagnosed...A Gentle Warning

Hi Denise,

I guess this is a good way to discuss the trachelectomy alternative! I'm just not sure why a trachelectomy would not get all of the cancer if it's confined to the cervix and uterine biopsies were negative. A cone biopsy leaves a lot of the cervix; a trach. removes the whole thing. My lymph nodes were clear as well.

The type of adenocarcinoma I had does not produce skip lesions and since my whole cervix is gone, I can't figure out why I would be at higher risk than someone with a hysterectomy . When making this choice I was constantly debating this very question. Is there something that I am missing here? I really appreciate input on this if I don't have all of the information, b/c everything I've read says equal risk of recurrence for trach/hyst. I know you've done a great deal of research and are really knowledgeable on the subject so I appreciate your input.

Chicklet
  #13  
Unread 03-18-2003, 02:04 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Chicklet,

I do not know the answer to your question. It sounds like the doctors are taking good care of you. As long as you are being followed closely and you trust your doctors I would try not to worry. I did not have my lymph nodes looked at and that worried me for a while. I am finally beginning to breathe a bit easier.
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  #14  
Unread 03-18-2003, 02:35 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Denise,

Yeah, I suppose I'm having a case of second-guess-itis! Thanks.
  #15  
Unread 03-22-2003, 09:25 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Chicklet....I did not mean to cause you to worry. You seem to be very aware of the pros and cons of the trachelectomy and have taken good care of yourself. Don't second guess yourself.

All the research I did agrees that the recurrence rate is no greater with a trach. vs. a hysterectomy. Keep trusting yourself and your Dr.

I met with my local oncologist this week and he stated that I would not have chemo or radiation. Just followup PAPS.

I think you made the right decision in getting a trachelectomy. I never realized how wonderful it would be to be a Mom. So...put that trachelectomy to use and have a baby!!!! Jill Sue
  #16  
Unread 03-24-2003, 02:05 PM
Cancer was worse than originally diagnosed...A Gentle Warning

Jill Sue,

Thanks!!!! I think I was having a low day when I saw your post, you know, cancerhead and the whole nine yards. You sound like you are recovering very well after a few setbacks, I am so glad for you!

On the trach. front, it turns out I may have to have a hyst. after all. My "neocervix" has scarred over, so my period can't get out and might cause me some serious problems. So hubby and I are under major pressure to decide whether to try for a pregnancy or not. I realize that I am very fortunate to have that choice at all, believe me. But we shall see, and I just wanted to keep the board posted on the issues with a trachelectomy, of which there are many!

Thanks again for your support, Jill Sue, and keep taking good care of yourself as well.

Beth
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