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Breast Cancer, Tamoxifen, Hysterectomy Breast Cancer, Tamoxifen, Hysterectomy

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Unread 03-21-2003, 08:00 AM
Breast Cancer, Tamoxifen, Hysterectomy


I had breast cancer last year and had a masectomy on my left breast. I had DCIS and was put on tamoxifen. I feel like I get worn out pretty fast and sometimes dont want to do a whole lot. I have noticed that I have gained a few pounds but dont know if it is related to the tamoxifen or the other stuff going on in my life now. Because of taking the tamoxifen my gyn told me they could check my uterus to see if the lining was building up which could be a sign of possible cancer. Well I have been at 4cm until last month then I had moved up to 8cm. I also have cysts on both ovaries and the right side has been extremely painful. I had been on depro prevara for several years and the dr said that I shouldnt have had cysts while on the depro. So I am having a hysterectomy on April 7. It is suppose to be the laproscopic type unless too big then I have to have a bikini cut the dr. said. I have known about the cysts for about two months but the build up of the uterus lining was new. My dr. said he dont want to wait because of all the indications that something is going on. I am hoping and praying that it is not cancer. I was scheduled for surgery this month but had to put it off because I do not have enough sick leave time. Oh that has been one more mess....I work for the state and was told in my orientation that they have this program that if you dont have enough sick time that people in the agency can donate it to you. Well then they claimed the program didnt exist anymore or it had been changed to something else and you have to work with the state for a year before someone can donate to you. Well the employee handbook had no time restraints in it and the lady that give the orientation class along with some of the other people that was in the class all stepped up and said hey we we told that it was available to you immediatly no waiting period. I have had to take this all the way up the food chain and was told finally the other day that it looks like I will get them time donated to me that they are 99.9% sure. When I went to the dr last week he said I can not wait until August which would be my aniversary date with the state, so as you can probally tell it has been fun battling to get your sick time and knowing you have to have surgery and wondering if it is cancer.
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Unread 03-21-2003, 08:38 AM
Breast Cancer, Tamoxifen, Hysterectomy


I was so sorry to read that you've had to deal with the time-off issues while contemplating your surgery. 99.9% sounds good, but wouldn't it have been so much better to be told that it's "all set"? I'm glad you're not going to wait until August....too much time to worry!

Unread 03-21-2003, 11:01 AM
Breast Cancer, Tamoxifen, Hysterectomy

Gina - first of all, I'm sending you a big You have so much going on.

Second, since I'm the nosy type, & I looked at your profile and discovered that we are birthday sisters...mine is 11/26 too. (I'm 8 years older than you though!)

I have not had breast cancer, but had 2 sisters with it, and I had a bilateral prophylactic mastectomy years & years ago, so that gives you an idea about what I think about cancer. At that time I had to fight w/my insurance company to be covered.

I agree, it sounds like you can't wait for surgery. You need to take care of yourself. (I had a TAH/BSO because of a bumpy pap history, family history & cysts.)

My guess is that your body still may be recovering from your previous surgery. So please, take good care of yourself.

I sure hope it comes through re getting donated sick days.,.99.9% sounds good, but I bet you can't wait to see it in writing! Is there an ombudsman or an office that works on behalf of employees that may be able to help you as you fight the system for sick days? If you can manage w/o the $$$ could you take a medical leave if you don't get the sick days???

Are you seeing an oncology gyn??? What type of hysterectomy are you anticipating?

Remember to visit over on the pre-op thread for lots of answers & support.

take care iof yourself

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Unread 03-21-2003, 02:41 PM
Thanks for Responses

Well I just talked to the person in charge of the human resources and she said that they had not gotten the signed paper work back and now it will probally be sometime next week but she is still 99.9% sure. I told her I wanted that 100%........I am being cautious about this because I have been told so many things that I want it in writing.

I am just seeing a regular ob/gyn now. He did a CA-125 blood test on me in January and it was like 14 so he thought that was okay. It was just the last visit with the uterus lining showing a buildup that has him concerned now more about cancer. He had orginally told me if my CA-125 test showed up something he would send me to an oncology-gyn. I am suppose to have total hysterectomy done laproscopic if possible but he said he may have to cut me which recovery would be longer.

Glad to see someone with the same birthday.......I was born on Thanksgiving were you?
Unread 03-21-2003, 02:51 PM
On tamoxifen and cant take Hormones

I forget to say that the dr said I would not be taking any hormone replacement since I have had the breast cancer and on tamoxifen. He said that really I was already in a pre-menapause state since the tamoxifen blocks the estrogen. I already have the hot flashes and wake up soaking wet or it seems sometimes that I will just sweat down doing regular stuff like grocery shopping and doing house chores. The dr told me that what I was feeling like now was basically what it was going to be like after the hysterectomy.
Unread 03-22-2003, 10:41 AM
Breast Cancer, Tamoxifen, Hysterectomy


Wow - a Thanksgiving baby!!! I think I was a Sunday or Monday arrival...would need to look at a backwards perpetual calendar. I was my mom's 6th baby & her first w/ob doc.

Anyway, back to your surgeon going to be an oconolgy specialist? Can they really check around your endometrial lining with a laproscopy?

When you have time, check into the no hormone site in the jungle for more info that may be of help.

Lots of folks here on this site to share info, experiences and support.



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