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Just found out I have Fibro, Help Just found out I have Fibro, Help

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  #1  
Unread 03-22-2003, 03:36 PM
Just found out I have Fibro, Help

I just found out I have Fibro, cant spell it all but was wondering what everyone takes for it, Dr. wants me to try Elavil. This stuff is a mess, completely feels like it has taken my life away, did not know at first what was going on. Oneday I would feel great and be working in yard, shopping,cleaning house and the next day I would wake up weak,hurt and seems like depression runs with this but the days I wake up and feel good I am not depressed, this don't make sense to me. Someone help me understand also what does your Dr. have you on?Also do you take hormones or does it make it worse. Thanks
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  #2  
Unread 03-22-2003, 03:40 PM
Just found out I have Fibro, Help

Hi

I've had Fibromyalgia and CFIDS for 24 years. There were times I took anti-depressants for the pain and did found it took the edge off, but *just*. I gave up taking pain meds for the FM long ago, as I didn't like the side effects and didn't find them all that effective. But that's just my experience. Yours may be much different.

I have found that after I was through menopause and stopped HRT I felt much better. I have heard that some other women have the same experience. In fact, when I didn't get better earlier my doctor told me that I might feel better later and he was right!

Hopefully you will find a regimen that will work for you. It really seems to be a trial and error thing. Actually, I did find that a TENS machine worked pretty well and hot baths and deep relaxation also helps me a lot.

Joselle
  #3  
Unread 03-22-2003, 05:19 PM
Just found out I have Fibro, Help

So sorry that you are dealing with the FMS monster too. I was diagnosed with FMS/MPS last summer and am still trying to get my meds right so that my symptoms are at least tolerable (re my post Question for FMS/MPS sufferers....) As Joselle mentioned, it seems to be a trial and error thing. I do take Elavil 100mg at bedtime and it has helped with my sleep patterns quite a bit. However, pain control is still a problem. Good luck to you and feel free to pm or e-mail me if you'd like to talk.
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  #4  
Unread 03-22-2003, 05:48 PM
Just found out I have Fibro, Help

(((nature1715)))),
My heart goes out to you I was DX'd with this almost 3 years ago. I take Elavil 100 mgs @ night as well & Soma 3 x's a day. Unfortunately, there is no cure just to find that right mix of meds & lifestyle changes that help you! Here is some info I have that has been of a great help to me in understanding this syndrome better & things that help / thinks that make it worse:

  Quote:
What Your Pharmacist Should Know About FMS and CMP:
by Devin Starlanyl
This information may be freely copied and distributed only if unaltered,
with complete original content including: © Devin Starlanyl, 1995-2001.
Please read “What Everyone on Your Health Care Team Should Know About FMS
and CMP”.
Each of us with fibromyalgia (FMS), Chronic Myofascial Pain (CMP), or FMS/CMP
Complex needs a trustworthy pharmacist to coordinate our medications and keep
us informed. New medications are coming out so rapidly that it is impossible for
physicians to keep up with them all. Our health care team often comprises many
specialists, and they don’t always communicate with each other. Most of us are on
many medications of different kinds, and people with FMS tend to react unusually
to medications. Some of our medications can interact unpleasantly. For example,
Soma (carisoprodol) can react with niacin if taken at the same time, producing
nausea and a painfully hot flush and rash.
FMS/CMP Complex and Medication
Often, people with FMS/CMP Complex have to try many medications before they
find the best ones. We react differently to each medication, and there is no “cook-book
recipe” for FMS or CMP. What works well for one of us can be ineffective for
another. A medication that puts one person to sleep may keep another awake.
There is a whole subset of FMS/CMP Complex patients who find medications such
as Benedryl, Ultram, Pamelor and Paxil stimulating. Some of these people may
look healthy, but their suffering can be great. We all have our own unique combi-nation
of neurotransmitter disruption and connective tissue disturbance. We need
doctors who are willing to stick with us until an acceptable symptom relief level is
reached. We also need a compassionate and understanding pharmacist to work
with us.
The most-studied medications that modulate neurotransmitters are psychoactive
drugs. This does not mean that the patient’s condition is psychological. Fibromy-algia
patients have enhanced nociception (Bendtsen, Norregaard, Jensen et al.
1997) and are often in great pain. Medications that affect the central nervous
system are appropriate for FMS. The target symptoms are sleep lack, muscle
rigidity, pain, and fatigue. These medications don’t stop the alpha-wave intrusion
into delta-level sleep, but they do extend the amount of sleep and may ease
symptom “flares”. It is the rule rather than the exception that an FMS/CMP client
will save strong pain medications from a surgery or an injury for when they are
really needed — for an FMS/CMP “flare”. This behavior indicates that their pre-scription
needs are not being met. FMS is often misunderstood (Jones 1996) by
the medical profession, and your clients may turn to you for guidance and under-standing.

Medications and Narcotics:

It’s normal to be depressed by chronic pain, but that doesn’t mean depression is
causing the pain. FMS is a sensory amplification syndrome (Kosek, Ekholm and
Hannson 1996). Maintenance with mild narcotics (Darvocet, Tylenol #3, Vicodin-Lorcet-
Lortab) for nonmalignant (noncancerous) chronic pain conditions is a logi-cal,
humane alternative if other reasonable attempts at pain control have failed.
The main problem with raised dosages of these medications is not with the nar-cotic
components per se, but with the aspirin or acetaminophen that is often com-pounded
with them. There can be serious side effects with NSAID usage (Gardner
and Simpkin 1991). Please keep an eye on the level of your client’s medications.
Clients with FMS/CMP Complex need adequate pain control to break the pain/
contraction/pain/contraction spiral. It does not serve them well if you treat them
like addicts. They get no pleasure from their medications, just some symptom
relief. However, the level of medication should not be rising steadily. That is a
sign that the perpetuating factors are not being treated properly, and/or that the
level of pain relief is not adequately treated with the current medication. During a
symptom flare, these clients often need more medications, but the level should
decrease again after flare has subsided.
Narcotic analgesics are sometimes more easily tolerated than NSAIDs (Reidenberg
and Portenoy 1994). Neither FMS nor CMP is inflammatory, and anti-inflammatory
medications often contribute to malabsorption in the gut. NSAIDs may disrupt
stage 4 sleep, and delta sleep is already interrupted in FMS. Prolonged use of
narcotics may result in physiological changes affecting tolerance or physical depen-dence
(withdrawal), but these are not the same as psychological dependence (ad-diction).
Be sure to ask your FMS/CMP clients about multiple chemical sensitivities. Many of
us are lactose intolerant and can’t deal with even the small amounts of lactose
used as fillers in many medications. Be patient. Many of us will appear confused
at times, due to “fibrofog”. We need your help to cope with the difficulties of living
with an invisible chronic illness.
http://www.sover.net/~devstar/apothcry.pdf
http://www.fibromyalgiasupport.com/
http://www.fibromyalgiasupport.com/l...le.cfm/ID/3594
http://health.discovery.com/centers/...ain_print.html
http://www.chronicpainfoundation.org/
http://www.familydoctor.org/handouts/551.html
http://www.painfoundation.org/
www.pain.com
http://healthy.net/scr/article.asp?P...rticle&id=2196
http://familydoctor.org/handouts/070.html
http://www.muhealth.org/~fibro/fm-pt.html
http://www.tidalweb.com/fms/
http://www.familydoctor.org/handouts/033.html
http://www.fibromyalgiasupport.com/l...le.cfm/id/4073
http://www.fibromyalgiasupport.com/l...le.cfm/id/4095
http://www.fibromyalgiasupport.com/l...le.cfm/ID/3854
http://health.discovery.com/centers/...romyalgia.html
http://www.painandhealth.org/
National Center for Chronic Disease Prevention and Health Promotion:
http://www.cdc.gov/nccdphp
Women and Pain:
http://health.discovery.com/centers/...pain/pain.html
Self-Discovery Through Journaling:
http://health.discovery.com/centers/...ournaling.html
Depression Risk Assessment:
http://health.discovery.com/tools/hr...press_pg1.html
Fatigue Takes a Special Toll on Women:
http://health.discovery.com/centers/...ngfatigue.html
Disorders More Common in Women:
http://www.painfoundation.org/page.a...ge_links.htm#9
Pain Management and Information Organizations:
http://www.painfoundation.org/page.a...e_links.htm#26

  Quote:
Medications should be used along with a program of proper diet, life style changes, mind work and bodywork. Medications which affect the central nervous system are appropriate for FMS&MPS Complex. They target symptoms of sleep lack, muscle rigidity, pain and fatigue. Pain sensations are amplified by FMS, and so the pain of MPS pain is multiplied. FMS&MPS Complex patients often react oddly to medications.

It is the rule rather than the exception that a FMS&MPS Complex patient will save strong pain meds from surgery or injury for when they REALLY need it -- for an FMS&MPS Complex "flare". This is a sign that your needs aren't being met. I give you the following quotes. I hope you will pass them on to your doctor. They are from "PAIN A Clinical Manual for Nursing Practice", by McCaffrey and Beebe.

* Health professionals "often are unaware of their lack of knowledge about pain control."

* "The health team's reaction to a patient with chronic nonmalignant pain may present an impossible dilemma for the patient. If the patient expresses his depression, the health team may believe the pain is psychogenic or is largely an emotional problem. If the patient tries to hide the depression by being cheerful, the health team may not believe that pain is a significant problem."

* "Research shows that, unfortunately, as pain continues through the years, the patient's own internal narcotics, endorphins, decrease and the patient perceives even greater pain from the same stimuli."

* "The person with pain is the only authority about the existence and nature of that pain, since the sensation of pain can be felt only by the person who has it."

* "Having an emotional reaction to pain does not mean that pain is caused by an emotional problem."

* "Pain tolerance is the individual's unique response, varying between patients and varying in the same patient from one situation to another." "Respect for the patient's pain tolerance is crucial for adequate pain control."

* "THERE IS NOT A SHRED OF EVIDENCE ANYWHERE TO JUSTIFY USING A PLACEBO TO DIAGNOSE MALINGERING OR PSYCHOGENIC PAIN."

* "No evidence supports fear of addiction as a reason for withholding narcotics when they are indicated for pain relief. All studies show that regardless of doses or length of time on narcotics, the incidence of addiction is less than 1%."

This book is so clear and so well documented that I suggested my local library buy it. I wanted everyone in the area to have access to this information. Once you read this book, you get a greater understanding of pain and pain medications, as well as coping mechanisms. Many non-pharmaceutical methods of pain control are also described thoroughly in this reference.

It's normal to be depressed with chronic pain, but that doesn't mean depression is causing the pain. Maintenance with mild narcotics (Darvocet, Tylenol #3, Vicodin-Lorcet-Lortab) for nonmalignant (non-cancerous) chronic pain conditions be a humane alternative if other reasonable attempts at pain control have failed. The main problem with raised dosages of these medications is not with the narcotic components, per se, but with the aspirin or acetaminophen that is often compounded with them. For medical journal documentation on the use of narcotics for non-malignant chronic pain, see "The Fibromyalgia Advocate". Narcotics should not be given in conjunction with benzodiazepines, as the latter antagonize opioid analgesia.

Narcotic analgesics are sometimes more easily tolerated than NSAIDS, the Non-Steroidal Anti-Inflammatory Drugs. Neither FMS nor MPS is inflammatory. NSAIDS may disrupt stage 4 sleep. Prolonged use of narcotics may result in physiological changes of tolerance or physical dependence (with- drawal), but these are not the same as psychological dependence (addiction). Under-treatment of chronic pain of MPS/FMS results in a worsening contraction which results in even more pain. "Anti- anxiety" medications are not an indication that your symptoms are "all in the head". These medications don't stop the alpha-wave intrusion into delta-level sleep, but they extend quantity of sleep, and may ease daytime symptom "flares".
  • Guaifenisen
    Folic acid
    Relafen (nambumetone)
    Benedryl
    Desyrel (Trazodone)
    Atarax (hydroxyzine HCl)
    Elavil (amitriptyline)
    Wellbutrin (bupropion HCl)
    Ambien (zolpidem tartate)
    Soma (carisoprodol)
    Flexeril (cyclobensaprine)
    Sinequan (doxepin)
    Prozac (fluoxetine hydrochloride)
    Ultram (tramadol)
    Hydrocodone/Guaifenisen Syrup
    Xanax (alprazolam)
    Xanax (alprazolam)
    Klonopin (clonazepam)
    BuSpar (buspirone HCl)
    Zoloft (sertraline)
    Tagamet, Zantac, Prilosec, Axid
    Paxil (paroxetine HCl)
    Effexor (venlafaxine HCl)
    Inderal (propranolol HCl)
The rest of the list is at:

http://www.fibromyalgiasupport.com/l...le.cfm/ID/2967
Oral Methadone Effective as First-line Opioid Treatment for Chronic Non-Cancer pain:
http://www.fibromyalgiasupport.com/l...le.cfm/id/3825

Prescribed Medications for Fibromyalgia:

  Quote:
Categories of drugs used in the treatment of fibromyalgia can include: [list=1]
1) Analgesics

2) Anti-inflammatory medicines

3) Antidepressant medicines (tricyclics and selective serotonin reuptake inhibitors)

4) Muscle relaxants

5) Sleep modifiers

6) Anti-anxiety medicines

7) Other medicines used to treat chronic pain [/list=1]

Analgesics:
Analgesics are pain killers and can include over-the-counter medicines such as aspirin and acetaminophen, or prescription-strength pain pills like narcotics (opiates), codeine, Vicodin, Darvocet, Oxycontin and Percocet. Ultram is a pain reliever that differs from narcotics in its action on the central nervous system. These medications do not alter the fibromyalgia, but they can help take the edge off of pain. Many people with fibromyalgia are sensitive to codeine medicines, which can cause nausea or an allergic reaction. Ultram can cause allergic reactions in people sensitive to codeine, and a small number of people taking Ultram have seizures. As a pain specialist, I will frequently prescribe analgesics, including narcotics, for patients experiencing severe pain.

Muscle Relaxants: Muscle relaxants can decrease pain in people with fibromyalgia. Medicines in this family include Flexeril, Soma, Skelaxin, and Robaxin. The most common side effect is drowsiness, although Soma and Skelaxin cause less of it. I have found that muscle relaxants do not really decrease muscle spasms or truly “relax” muscles, because the painful area still has palpable spasms. Rather, the medicine appears to help by a central neurologic mechanism that reduces muscle pain. If drowsiness is a side effect, this medicine should only be taken in the evening so it doesn’t interfere with driving or concentration. Flexeril is a popular medicine for evening. Although it is a muscle relaxant, it is very similar to amitriptyline in structure and effect, hence the benefits reported.

Medicines in the antispasticity category can be used to treat muscle spasms. Two of these medicines, Zanaflex and Baclofen, have been shown to help reduce back muscle spasms and pain. Antispasticity medicines are primarily intended for people who have neurologic conditions causing involuntary muscle spasms (such as spinal cord injuries, multiple sclerosis, or strokes). However, they may have a role in patients with fibromyalgia who have numerous muscle spasms.

Fibromyalgia Survival Strategies:

• Understand there is no magical pill that will get rid of all fibromyalgia symptoms.

• Experiment with your doctor to determine which medicines can help “control” your symptoms.

• Responsibly use analgesics and narcotics to take the edge off the pain. These medications will not relieve all your pain but may improve symptoms and comfort.

• Educate yourself about expectations of medication.

• Use the lowest effective dose of medicine; wean off whenever possible [and discontinue any medication that is not working].

• Be flexible with medications. Keep it simple.

http://www.fibromyalgiasupport.com/l...le.cfm/ID/3308
NEW Fibro Drug:
http://www.ivanhoe.com/

Are Fibromyalgia and Other Chronic Conditions Associated?
http://www.fibrohugs.com/html/immune1.html

Fibromyalgia and Chronic Fatigue Syndrome Clinic:
http://www.doctordantini.com/Fibromyalgia.htm

Breakthrough Pain Resources:
http://www.pain.com/breakthrough/btp_res_main.cfm
http://www.pain.com/breakthrough/btp_library.cfm

Treatments for Pain:
http://doctorsforpain.com/patient/treatments.html

American Society of Regional Anesthesia and Pain Medicine:
http://www.asra.com/

Fibromyalgia Pain Is Real:
http://my.webmd.com/content/article/48/39261.htm

Questions You Should Ask About Pain & Pain Treatment:
http://www.ortho-mcneil.com/painb/index.html

Living with FMS:
http://www.tidalweb.com/fms/headache.shtml

Treatment of Fibromyalgia in Detail:
http://www.fibromyalgiasupport.com/l...le.cfm/ID/3594

Fibromyalgia: Finding Treatments That Work for You:
http://www.immunesupport.com/library...le.cfm/id/4372

I also see a Pain Mgmt Dr, getting some real pain relief has helped me concentrate on other things Maybe something you could inquire about? Here is also anothr good article on FMS:

Without a Cure, Symptom Management Is Key:
  Quote:

Russell Rothenberg, M.D., is a practicing rheumatologist in Washington, D.C.; chairman of the Medical Advisory Committee of the National Fibromyalgia Partnership and associate professor of medicine at the George Washington University Hospital. Dr. Rothenberg has a special interest in fibromyalgia syndrome and chronic pain, and he has treated more than 1,000 patients with fibromyalgia syndrome. He graduated from Albany Medical College in Albany, NY, and he completed an internship and residency at Long Island Jewish Medical Center and a rheumatology fellowship at Mt. Sinai Medical Center in New York City.
Q. Fibromyalgia syndrome often is treated by rheumatologists. Does this mean it is a rheumatic condition?
A. It is treated by rheumatologists for two reasons. First, many fibromyalgia patients have co-existent rheumatological disease such as systemic lupus, Lyme disease or Sjögren's syndrome. Second, rheumatologists are experienced in treating people with chronic pain and chronic fatigue, doing tender point examinations and evaluating myofascial pain. However, people with fibromyalgia could also be cared for by a physical medicine specialist or an internist with extensive experience treating fibromyalgia.
Q. Who is most at risk for developing fibromyalgia syndrome?
A. Women between the ages of 20 and 60 and people with concurrent rheumatologic problems or endocrine problems, such as thyroid disease, are at greatest risk. It is not unusual to see fibromyalgia at the time of menopause and some families that have multiple members with fibromyalgia in two or three generations.
Q. What causes fibromyalgia syndrome?
A. Fibromyalgia is probably a composite of several illnesses that all have the same type of pathogenesis. In my practice, we see patients with post-viral-infection fibromyalgia, post-traumatic fibromyalgia, fibromyalgia associated with rheumatologic illness and what appears to be a genetic form of fibromyalgia that the person may have had since he or she was a teenager. The cause may be a response to chronic pain, it may be endocrinological or it may be both. Ninety percent of people with fibromyalgia are women, so the cause may be somehow related to the physical make-up of women. Some studies have looked at neuroendocrine imbalances in fibromyalgia; these imbalances would be more common in women, who have hormonal variations over the 20- to 60-year age range.
Q. What course does the syndrome usually take?
A. People with fibromyalgia tend to experience gradual problems with chronic pain, chronic fatigue, non-restorative sleep disturbance where they wake up unrefreshed, cognitive changes affecting their ability to perform complex tasks and myofascial pain in which the person has severe spasms and soft-tissue pain. These problems can worsen with increased stress, lack of sleep, injuries or concurrent illnesses, but there is no clear pattern of progression.
Q. Is fibromyalgia associated with psychological distress, either as a cause or an effect of the syndrome?
A. The incidence of depression and distress in the fibromyalgia population is more than 40 percent,which is about the same as that for the rheumatoid arthritis population. Often, patients with a flare-up of fibromyalgia also have a concurrent flare-up of depression or anxiety. People with fibromyalgia also become frustrated with their pain, their inability to concentrate and their fatigue. They can feel alienated from their families, colleagues and friends, who may not understand why the person has such fatigue and difficulty functioning and therefore may not provide much support.
Joining fibromyalgia support groups, getting significant others involved in support groups and having their doctors write letters to their employers to explain needed accommodations can go a long way in helping people with fibromyalgia.
Q. In what ways does fibromyalgia syndrome affect a person's ability to function in daily life?
A. One of the biggest problems is that many fibromyalgia patients have strenuous jobs and cannot get work accommodations, such as working only 30 hours per week, needed to allow the condition to improve. Only about 16 percent of people with fibromyalgia have full work disability, and the majority continue to work but need accommodations. Additionally, heavy housework, any type of repetitive motion and child-rearing can be difficult. People with fibromyalgia need to conserve their energy, and it can be very difficult for them to work full-time, do household chores and take care of young children unless they are getting adequate help from their spouses or other family members.
Q. How can health care practitioners distinguish fibromyalgia syndrome from other conditions, such as chronic fatigue syndrome, that have overlapping symptoms?
A. A full medical evaluation, including blood tests and sometimes X-rays, is necessary to rule out other diseases that can mimic fibromyalgia syndrome. Tender point examination and identification of myofascial pain and sleep disturbance are helpful, and a good clinical understanding of what these patients look like and how they behave is also important. Chronic fatigue syndrome is different from fibromyalgia and it is not associated with pain, abnormal tender points or non-restorative sleep disturbance.
It is also important to understand that people with fibromyalgia may have the same problems-allergies, migraine headaches, sinusitis, abdominal pain from irritable bowel syndrome-as everybody else. However, when a person has concurrent fibromyalgia, these problems, if left untreated, may actually cause the fibromyalgia to worsen. Furthermore, other common problems, such as temporomandibular disorders and irritable bowel syndrome, are amplified in fibromyalgia patients but are not necessarily part of the disease process.
Q. What are the goals in managing fibromyalgia syndrome?
A. The major goals are reduction of pain and fatigue. Other goals include improving cardiovascular fitness through a cardiovascular exercise program and improving muscle tone, posture and gait through a stretching and postural exercise program. Proper ergonomics is especially important for people with fibromyalgia who work at computers, do a lot of repetitive motion or sit in one spot all day. Reducing sleep disturbance and treating concurrent depression are also important in managing this syndrome. Physical therapy is often an important treatment since many patients cannot exercise or adequately stretch due to sever myofascial pain and they require professional help.
Q. Exercise is important, but does diet also play a role in managing Fibromyalgia?
A. Yes. Diet is important in several ways. Those who have fibromyalgia and concurrent food allergies could experience greater fibromyalgia symptoms if they eat foods to which they are allergic. Those with IBS who do not eat a high-fiber diet or do not avoid foods that cause them trouble may experience increased IBS symptoms, which may in turn lead to fibromyalgia flare. Furthermore, people with fibromyalgia can benefit from magnesium for muscle spasms and good multivitamins for general nutrition.
Q. What is the role of stress reduction in managing fibromyalgia?
A. Getting control of one's life is probably the most important way to reduce stress, which is related to increased pain and fatigue. That means conserving energy, taking part in an exercise program, controlling one's hours of work and managing one's family life. Behavior modification programs and support groups are useful in reducing stress.
Q. What is the real importance of multidisciplinary treatment in managing fibromyalgia?
A. It is extraordinarily important. Concurrent health problems-gynecologic problems; ear, nose and throat problems; respiratory problems-all affect fibromyalgia. Physicians who do not understand fibromyalgia may overtreat because the patient has a lot of symptoms, or they may underreact because they don't realize that a relatively minor sinus infection could cause increased myofascial pain of the head and neck and cause a fibromyalgia crisis. The primary care physician needs to understand the patient's fibromyalgia syndrome and how it affects the rest of his or her medical care and needs to work with a specialist and physical therapist or other health professionals who have a good knowledge of fibromyalgia.
Q. Do people with fibromyalgia syndrome often use alternative approaches or medicines, and are these alternatives beneficial?
A. Many people use alternative approaches for very good reasons-because we don't have a cure for fibromyalgia and treatments are limited. I believe that if alternative approaches are not harmful and if they promote a healthy lifestyle, then they may be beneficial for fibromyalgia patients. Physicians and other health professionals need to be open-minded. If we don't have a cure and we don't have answers for patients, then we can try alternatives and then make a medical assessment to see if the patient is getting better.
Q. Can a person with fibromyalgia ever be cured?
A. By definition, you can't cure a problem if you don't know its cause. However, many fibromyalgia patients improve over time if they have a good course of therapy, and we do see remissions. Severity and duration of the illness are important factors-the more severe and prolonged the illness, the less likely the person will have complete remission. Often, fibromyalgia symptoms improve with reductions in work hours, a good program of stretching and low-impact aerobic exercises and appropriate medications.
Many Unexplained Syndromes May Share a Common Root
Fibromyalgia syndrome is unique in many ways, yet researchers and clinicians alike find that it overlaps with other unexplained medical conditions, including chronic fatigue syndrome (CFS), temporomandibular disorder (TMD), irritable bowel syndrome (IBS) and migraine headache. Symptoms such as pain, fatigue, poor sleep and depression cut across these conditions, and many people who have one of these conditions also meet the diagnostic criteria for at least one other. A recent review of evidence shows, for example, that among people with fibromyalgia, as many as 80 percent also have CFS, 75 percent have TMD and as many as 60 percent have IBS.
Some scientists, including rheumatologist Muhammad Yunus, M.D., of the University of Illinois College of Medicine at Peoria, believe that the cause of these unexplained conditions may be rooted in central nervous system dysfunction. For this reason, Yunus has dubbed these overlapping conditions "central sensitivity syndromes."
"The single most remarkable thing that binds these syndromes together is that they lack the usual pathology that one can see under a microscope or on an X-ray," Yunus explains. "However, virtually all of these syndromes appear to have a neurobiological basis that results in central nervous system hypersensitivity."

This hypersensitivity, he says, results in amplified, widespread and persistent pain. For example, "If one applies a painful stimulus like a pin prick to a normal person, the pain is felt in a small circle around the pin prick. In a person who has central sensitivity, the pain is felt in a much wider area and is much more unpleasant."
"An estimated 30 million to 35 million Americans suffer from CSS," Yunus says. "These patients undergo a lot of genuine pain and distress, based on identifiable biopathophysiological mechanisms that produce significant disability to an individual and enormous costs for society."
Much more research into central sensitivity syndromes is needed, Yunus suggests. For now, though, understanding CSS commonalties can help clinicians develop cross-cutting management plans and may provide impetus for developing drugs that can benefit people with more than one of these overlapping syndromes.
Hope this was of some help Good Luck, pls keep us posted...(((hugs)))
  #5  
Unread 03-22-2003, 07:30 PM
Forgot to mention

After all these years with FM I finally found a sleep specialist who put me in the sleep lab and diagnosed me with Obstructive Sleep Apnea. She said I don't really have apneas, but hypopneas (shallow breathing) which may be causing my poor sleep with FM. She said it's not bad enough that she would prescribe anything if I didn't have FM, as I have found a drug combination that works to help me with sleep. (Also forgot to mention that in my previous posts on this subject - getting more sleep has helped quite a bit.) At any rate, I now use a CPAP machine and have noticed some improvement in sleep. My doctor said that in FM patients even a 20% improvement in sleep can make a very significant improvement in quality of life, which is why she encourages a trial use of CPAP.

Joselle
  #6  
Unread 03-22-2003, 07:41 PM
Just found out I have Fibro, Help

Thank you all for you help, I have alot of reading to do on this. Today was a bad day for me so maybe tomorrow will be better for all of us.
  #7  
Unread 03-22-2003, 08:09 PM
Just found out I have Fibro, Help

Oh, I forgot to ask are any of you ladies on hormones? I was weondering if hormones help or hurt the problem.
  #8  
Unread 03-23-2003, 09:26 AM
Just found out I have Fibro, Help

I still have an ovary AND take the bc pill because the remaining ovary tends to be cystic. I would think that hormones may help some and hurt others......same as meds or PT or exercise, etc.
  #9  
Unread 03-23-2003, 10:48 AM
Just found out I have Fibro, Help

I agree with vbjacks5 about the hormones. In my case they seemed to make things worse. Not just with the FM but with a couple of other health problems. That could be why some women feel better after they go through menopause. On the other hand, I know of women who felt better on hormones and I recently spoke to a doctor who said she has seen both responses, and to estrogen and progesterone separately. I thought that it was progeseterone that was the problem for me but estrogen alone turned out to be a problem as well. This is something that needs to be worked out with your doctor - there are so many different ways of taking HRT and a variety of doses that can be tried before giving up on it, especially for younger women. I am older and would normally be basically without hormones anyway if life had unfolded 'naturally'.

Joselle
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