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Bladder distention Bladder distention

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  #1  
Unread 03-23-2003, 01:27 PM
Bladder distention

In January, I was diagnosed with IC. My urologist put my on lots of meds and told me to come back in 3 months and then we'd schedule a bladder distention in the OR. I am coming up on my 3 month appointment with him....in about 2 1/2 weeks and I want to be fully prepared with any questions I might need to ask.

Has anyone here had this procedure done? I know that I will be asleep during the procedure. Did the bladder distention help? Did you still have to take IC medications after having this done? How did you feel after? Were you in pain for a while after? When my uro looked inside my bladder and filled it to see how much my bladder could hold, I was in horrible pain for the rest of the day....I wonder if it will be the same after this procedure where my bladder will be stretched alot more.

I hope someone here can tell me their experience.

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  #2  
Unread 03-23-2003, 04:31 PM
Bladder distention

(((Pasdechat))),
I have never had this procedure done but I do have a few links w/some info on it that might be of some help:

Interstitial Cystitis:
http://www.pelvicpain.org/resources/IPPS2002%20CLPM.ppt
http://www.niddk.nih.gov/health/urol...s/cystitis.htm
http://www.healthorchid.com/content/...cystitis_w.asp
http://www.interstitialcystitis.co.uk/
http://www.wdxcyber.com/what.htm#urinemn
http://www.duj.com/cystitis.html
http://www.healthcentral.com/peds/top/000477.cfm
http://www.womenshealthmatters.ca/ce...ain/index.html
http://www.avera.org/adam/ency/article/000477.htm
http://www.wdxcyber.com/nurine03.htm
http://womenshealth.about.com/librar...y/aa012199.htm
http://www.urologychannel.com/inters...is/index.shtml
http://www.nlm.nih.gov/medlineplus/i...lcystitis.html

bladder diary:
http://www.dukeuroandgyncare.com/diar.html

Interstitial Cystitis - Pelvic Pain from the Bladder:
http://www.wdxcyber.com/nurine04.htm

http://health.discovery.com/centers/...pain/pain.html

http://www.pelvicpain.org/communication.ppt

http://www.pelvicpain.org/pdf/diagnosis_management.pdf

http://www.familydoctor.org/handouts/284.html

http://www.gynsecondopinion.com/pelvic-pain.htm


bladder distention:

http://www.ic-network.com/handbook/dist.html

http://www.urologychannel.com/emergencies/

http://www.bladderinfo.com/condition...r_cystitis.htm

http://www.helioshealth.com/bladder/...treatment.html

http://aua02.agora.com/planner/displ...ntationid=2443

http://www.aafp.org/afp/20011001/1212ph.html

http://www.cc.nih.gov/nursingnew/nur...rigpro1_02.htm

http://www.elmiron100.com/release1.html


Good Luck
  #3  
Unread 03-23-2003, 05:07 PM
Hi Pasdechat...



I've got all the same questions. My Uro follow-up is on 4/15. When is yours?

As for the pain, geez I hope the docs would give their patients some good pain drugs....I sure could have used something after the proceedure he did in his office! What did your Uro give you for pain? Fortunately, I had some Vicidin at home so I took one that night.

I have a strong feeling I'll need the distention also. After the office proceedure the Uro did, I filled my IC meds but was given the wrong med..so went 5 1/2 weeks without it - wondering too hope crucial it was to start taking it as soon after the proceedure was done as possible.

We can go through this together...hang in there. 's

Lori
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  #4  
Unread 03-23-2003, 05:34 PM
Bladder distention

Sheri, as always, you have given me tons of info Thank you so much!

Lori, my uro didn't give me anything for the pain after the procedure in his office either. I was in so much pain afterwards that I thought something was wrong. They didn't warn me that I'd hurt that badly....I can only imagine how I might feel after the bladder distention! My follow up appointment is 4/11, just a few days before yours. Maybe I'll have info that I will be able to share with you

Thanks for your input ladies
  #5  
Unread 03-23-2003, 05:42 PM
questions

what were your symptoms to make your dr check for IC and what kind of test did he do? What is a bladder distension, same as a bladder sling? Thanks. cindy
  #6  
Unread 03-23-2003, 06:59 PM
Bladder distention

Cindy, my symptoms were pain in my bladder(especially when full), urinary frequency....I was going every 10-30 minutes before I went to the urologist and starting taking my IC meds. I was also having urinary urgency and alot of the times after I'd go, I'd still feel full. The bladder distention is basically where he will fill my bladder to stretch it out. He filled my bladder when he made the IC diagnosis, but he was only able to fill it with 200cc's before I was crying(it hurt bad!).....200 cc's is less than half of what my bladder should be able to hold. He will do it in the OR where I will be asleep so that I don't feel anything....most likely I would be in alot of pain if he did it while I was awake because even though the meds have helped me, I'm still in alot of pain when my bladder gets full.
  #7  
Unread 03-23-2003, 07:26 PM
meds

What meds are you on for IC. I have frequency and they have done 2 cultures, nothing there. Some white blood cells showed on the stick to warrant a culture tho. Do the meds help. Cindy
  #8  
Unread 03-23-2003, 09:10 PM
Bladder distention

So glad to see this, I will probably be calling a urologist soon with the same symptoms. Tomorrow I will call my gyn to tell her I am still having problems, it is good to know what to expect but I hate to hear about how it hurts when they fill the bladder with water. I hope they will give pain meds. This is no fun!!!! I give tours at a museum and there is no way I could stand for 6 hours and stay cheery and not get to a bathroom every 20 minutes or more! Also hoping to hear tomorrow on gall bladder ultrasound. Everyone around me has heard enough bladder stuff, am glad to have this forum because I think they will probably be sick of hearing it at home!
Those links are absolutely wonderful, thanks so much.
Cathy
  #9  
Unread 03-23-2003, 11:07 PM
Bladder distention

Cindy, I am on Elmiron, Ditropan XL, Atarax and Pyridium. Yes, they help, but not 100%....I am going every 1-3 hours now, which is a huge improvement, but I still have alot of pain. That's only slightly better

Cathy, I look at it this way....yes it hurt when the doctor filled my bladder, but he was so nice and compassionate, as soon as I started crying, he immediately emptied my bladder. It is worth it just to have a diagnosis and get treated. He said my bladder was VERY inflamed and it was no wonder I was going every 10 minutes! After the procedure, I was in alot of pain, but the problem was, I had to go to work right afterwards and I had no pain meds with me. If I could have gone home and taken one of my vicodin, I'm sure I would have felt fine. Also I can't take ibuprofen, so I'm sure if I could have atleast taken that, I would have felt better. My advice would be, if you can just go home and rest after the procedure, then you would probably feel ok. I teach ballet and that's where I was after I left the doctor and I'm sure that made it soooo much worse! Like I said, it's worth it to get a diagnosis and know what's wrong and then get treated. If you ever need to talk bladder.....I'm hear to listen I know people aren't too thrilled about hearing bladder talk.....I understand all about it though...unfortunately!
  #10  
Unread 03-24-2003, 02:18 PM
Bladder distention

That's reassuring. I heard from my regular doc today and have to see a surgeon tomorrow because I am "full" of gall stones, and got the name of a urologist to call if need be. First I will see my gyn who did the hyst, appt is Friday (we are due another BIG snowstorm here in Denver that day,wouldn't you know) and I will also mention it to the surgeon tomorrow and ask if he has any other suggestions in the meantime. A friend who is a nurse told me I might have to self-cath if it isnt' emptying properly and to that I said "I cannot even think of that today - enough for one day!" . Put a call in to gyn office to see if they'd call in Ditropan to see if it would do anything before I see her Friday.
My DH told me last night he is SO thankful I found this website as it is answering so many of our questions and helping take away the fears. This gall bladder surgery will be my third surgery in a year and am finding out I am not alone!
Cathy
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