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Help I feel like an old football Help I feel like an old football

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  #1  
Unread 03-25-2003, 10:35 PM
Help I feel like an old football

A little over ...approx two years and three months ago I went into the hospital to see the surgeon who had operated on me several years prior. This time I told him I knew he would be operating again, as I could feel the abdominal hernia he had "repaired" pushing out again. I was up to 800 miligrams ibruprophine for the excruiciting pain, and i could barely lift anything over 5 lbs without the feeling that my guts were gonna spill out.
At the time i looked as though i was 8 months pregnant...even though I was not.
After the Dr. ordered xrays, they operated...and beforehand i had joked with the dr. and the operating team that I had given permission for him to remove all the fat from me he saw.
When I woke up i felt really strange..and unlike the first surgery i had years prior..i was in great pain. The next morning the team came in to visit me..and i asked them to remove the breathing tube that they had, against my expressed wishes , put in during surgery. One doctor looked sheepish and asked the female dr. to tell me what they had done to me during surgery. She looked stunned that he had past the "ball " to her to break the news, and she prefaced the news with "Remember what you asked us to do...remove all the fat?. I nodded and she then said they did not take out the fat...but they took out something else.
Before she had gotten out what she was trying to say...i knew what the news was and started crying. They had removed my reproductive organs...while i was unconcious. I asked them why? who hold them they could do this to me, and they hurriedly called in my surgeon, and an older surgeon who I did not know.
My surgeon told me he found out why my former hernia repair had busted lose again...its because they found thirty lbs of tumours--fibroid tumours.. He explained that the veins on the tumours were as big as a pencil...when they were supposed to be as small as the pencil point. He said that they were afraid because they had never seen tumours that large before. I still had tear in my eyes as he said one tumour was 5 lbs another 15 lbs and another ten lbs. and they had taken pics. He left and the older surgeon approached me and he said he was not from this hospital but had been flown in by helicopter to finiash the operation that the other drs had started...in short he said he was the dr. who had saved my life.
They left me there crying softly to myself, and I did ask another dr. who was very kind to me if i could get the tube taken out of my throat. and he said yes. He left and i began to gag..i pushed the button for help but no one came to help me...so I gently pulled the tube out of my throat, and it was so long it seemed to have come from my stomach. Laying the self removed tube on the hospital table..i pressed the help button one more time and after a few mintues an irate nurse appeared and asked me how did that tube get out my throat, and I said calmly "I removed it because the dr. said it could come out and i was gagging. She screamed that they were gonna put it back in, and i said"not while i am concious, you will not." She stormed out the room and i called my then daughter in law to be, and she said she was on her way to set those nurses and drs straight. She even called them while she was waiting for the cab and was reading them the riot act. Being a CNA herself she knew i was not getting proper care.
When she arrived she fussed at the new nurse saying look at the blood on her neck...why are her sheets not changed...give me some disenfect so I can clean her wounds. They scuffled like the dickens to get her what she demanded. She snatched the clean sheets from the trembling nurse's hands and told her to step aside while she changed my bedding, because they should have done it beforehand.
A day later when I had completed a hospital survey from some hospital admin. team and gave the dr. and nurse team there a bad overal score...suddenly here comes my surgeon in the room to declare that I could be released.(it did not take a rocket scientist to know that they were really rushing to get me out of their hospital). The dr. told me that my oldest son had given them permission to remove my reproductive organs , when i was bleeding and unconciuos. I was married and separated from my husband at the time.
It has been years past and I am still in excruciating pain. At some times I have to walk with a cane. I cannot lift things over ten lbs without having pain that lasts for hours. I have taken ten thousand hot baths...I am depressed because my newest grandbaby was here for the weekend and i could not really lift him and carry him around..he is only 1 year old.
The scars have keloid up and they ooze a clear yet odorless fluid but for the thrid week they have been oozing increasingly more blood.
When i went to the old surgeon.about three months ago...he became nervous and kept saying...its so sad..."You are a nice lady--take care of yourself, you hear?? He said he did not remember what he left in me, and that he could not find my records. I then went to the first surgons office and he was no longer there...he was sent to Harvard. The dr now in charge said...he did not do the surgery...i felt unwanted . It seems no one wants to help me.
I am getting increasingly sick. I get what seems like hot flashes. What can I do? Reenie36
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  #2  
Unread 03-25-2003, 11:30 PM
Help I feel like an old football

Oh renee,

It seems you have had such a tramatic experience, first off I would like to offer s to you, I wish I could personally give them to you. It sounds like you had some major stuff going on in there that needed some real attention. Not that you could do this, but what would you have decided if the DR/Surgeon had told you your diagnosis before surgery or could have awakened you to make this decision? It sounds like they were really concerned about saving your life at that point, not that it isn't frustrating not to know what is happening to you. Your DD was probably just as frustrated as you were and concerned about getting you the best care possible, it's always good to have someone who can take charge if you need them. I am glad she went to bat for you.

I also dealt with a fibroid about the size of a 20 wk pregnancy(not as big as yours) and I felt invaded. It wasn't anyone's fault that my body started to disfunction like this but I was still unhappy with this fact. I didn't want to have to make this decision and really battled with it. Looking back now I know I did what I had too and now must move on- with other medical issues that can sometimes be hard to do.

I am so glad you were able to vent here, lots of us have had to do that to help with the feelings we have had since our hysts, etc. You might not be able to change what has happened but you can take charge of where you are today. IMHO: I would continue to seek out a DR that will listen to you and help you sort out what is now best for you. Please don't give up hope, and continue to keep us posted. You can vent here anytime.

Big s,
lenee
  #3  
Unread 03-26-2003, 05:40 AM
Help I feel like an old football

((((Renee)))),
I am soo very sorry for all you have been thru The hospital where your surgery was done should have copies of this report. You have a right to copies of them...Pls seek out another opinion, you have something going on that needs medical attention. Do you have PCP, Primary Dr? They should be able to put you in to see a Specialist who can get to the bottom of your incisional problems & hopefully your pain
Pls continue to post, there are several of is here living w/ daily pain & complications..it has been of such a big comfort to me just knowing there are others who understand. My prayers will be w/ you ((Renee))...pls keep us posted...(((hugs)))

PS~
Is there a Law about getting getting Records or Lab reports from Drs Offices?
http://www.wdxcyber.com/law/nhelaw02.htm
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