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1 year post op and not doing well 1 year post op and not doing well

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  #1  
Unread 03-26-2003, 07:07 PM
1 year post op and not doing well

I had my surgery last january. They took my uterus, and one ovary. Since june I have been having a period again. (yes once a month), finally convinced the doctor to let me see the reports form the surgery and it turns out that the reason he left my cervi is that is has lesion (?) all over it and was attached to the inside of my body. He stated that the surgery was more invasive than he thought it would ne and that now I need to see a specialist to have the rest of the stuff removed. I am angry and scared. I was out of work for a year due to numerous medical problems and have just gotten back to work and now I am going to have to take off more time. This was supposed to solve these problems and it just seems to be getting worse. Has anyone else experienced anything like this? please respond.
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  #2  
Unread 03-26-2003, 07:44 PM
1 year post op and not doing well

Hi Susan, I had everything removed except my cervix. My surgery was in July. In August I felt bad like having a period but no blood. So when I went to the dr. I was told I had a bladder infection. Then each month the same thing was happen pain and a little blood. The pain and the blood increased until the pain became unbearable. I realized I was still having a period could not believe it. Now I'm seeing a specialist that want to do more surgery. Sulene
  #3  
Unread 03-26-2003, 09:15 PM
1 year post op and not doing well

I am SO sorry you are having these problems. My heart goes out to you and I sincerely hope you can find a resolution to your problems.

I hate to say it but it does sound like you did not have the best medical care. I can't believe you are still having periods without a uterus. I know I would be major honkerblonked ! I would be in the doctors face and questioning why they did not fix everything while they had me on the operating table.

It was reading posts such as yours on this site that helped me decide to have it all taken out and I do not regret it at all ! I feel better than I have in years and I do not have to worry about problems with anything left behind.

I understand you being angry and scared. I would be too in your situation. It just makes me want to take your doctor out back and beat him to a pulp. He certainly deserves it for leaving you with these problems. A GOOD DOCTOR would not have left you like this. But, then good doctors are VERY hard to find these days.

Go see the specialist and get it fixed for good. I know there is a lot of debate on what to remove and what to leave and it is a very individual decision but I decided to have it all removed and in almost 3 months, I have not regretted my decision at any time.

Lots of love to you today from me to you. Please keep us posted on how you are doing. You will be in my prayers that everything will work out well for you.... Janie
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  #4  
Unread 03-27-2003, 11:17 AM
1 year post op and not doing well

Hi Susan,
I am so sorry to hear you are having these problems. I imagine this is because you still have one ovary and your cervix. I can't speak from experience here because I had everything removed ... but I have read multiple posts here about the possibility of "mini" periods if the cervix and ovary(ies) are left.

Is the specialist a gyn oncologist or a urogynecologist? I would suggest you get two opinions on what to do next. I can understand why you are scared and angry. It is difficult to understand why you were not informed of everything immediately after your surgery.

Please make sure you feel very comfortable with whatever doc you select to treat these problems. You owe it to yourself to have a great outcome after any additional treatment. We're here for you. Let us know how you are doing and what you decide.

Beth
  #5  
Unread 03-27-2003, 06:25 PM
thanks for the support

To those who have responded so far I just want to say thanks. I wanted to clarify I few things, one I asked that everything be removed but my doctor refused. Two these are not "mini" periods, they are 10 day long beeding episodes. as bad as before the surgery. I cannot see a specialist until May as that is when my insurance kicks in but I have an appointment with my GYN for May 1st to get the referal. Hopefully they will be able to fix the problem with very little difficulty although with my luck I doubt it.
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